Publications
Publications
- Care of the Infant With Congenital Cytomegalovirus Infection: Clinical Report.; Pediatrics. 2026 Sep 21.
- Care Delivery Redesign for Children with Chronic Conditions: A Call to Embrace the Reality of Children's Needs.; Academic pediatrics. 2026 Sep 04.
- Pediatricians' perceptions of children with disabilities and their health care.; Health affairs scholar; Vol 4(7), pp. qxag152. 2026 Jul 28.
- Increasing Access to FASD-Informed Care: Bringing an Adapted Intervention to Mental Health Providers.; Evidence-based practice in child and adolescent mental health. 2026 Jul 22.
- Meeting the Needs of Neurodivergent Teens for Dialectical Behaviour Therapy: Challenges and Adaptation Strategies From Clinicians, Teens With Fetal Alcohol Spectrum Disorders and Caregivers.; Journal of applied research in intellectual disabilities : JARID; Vol 39(4), pp. e70290. 2026 Jul.
- Neurodevelopmental impacts of unique postnatal adversity subgroups in children with prenatal alcohol exposure.; Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence. 2026 Jun 23.
- AV-Play: Co-Designing VR Games to Study Audiovisual Integration in Children with ADHD; CHI '26: Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems. 2026 Jan 01.
- Families Moving Forward Connect mHealth Intervention for Caregivers of Children With Fetal Alcohol Spectrum Disorders: Randomized Controlled Trial.; JMIR mHealth and uHealth; Vol 14, pp. e73647. 2026 Mar 20.
- Pediatrician reported experiences of transitioning adolescents with disabilities.; Journal of pediatric rehabilitation medicine. 2026 Mar 20.
- Community Perceptions of Integrating Community Health Workers and Telehealth Services for Chronic Disease Management in a Rural Island Community: A Qualitative Study.; Journal of participatory medicine; Vol 18, pp. e86907. 2026 Mar 19.
- A Health Equity-Driven Approach to Primary Care for the Child Born Premature.; Academic pediatrics. 2026 Mar 08.
- Profiles of polysubstance exposure in youth with fetal alcohol spectrum disorders and the association with neurodevelopmental outcomes.; Neurotoxicology and teratology; Vol 114, pp. 107585. 2026 Feb 01.
- Author Reply.; Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research. 2025 Dec 16.
- Variability in Insurance Adequacy for Children With Special Health Care Needs on Medicaid.; JAMA health forum; Vol 6(12), pp. e255366. 2025 Dec 05.
- Researchers' roadblocks to including people with intellectual and developmental disabilities (DD) in research: Translational science and I/DD program leaders insights.; Journal of clinical and translational science; Vol 10(1), pp. e2. 2025 Dec 04.
- Trends in Hospital Resource Use for Children With Complex Chronic Conditions.; JAMA network open; Vol 8(12), pp. e2544686. 2025 Dec 01.
- "The School Cafeteria Problem": Disrupted Visuospatial Attention During Multisensory Speech-in-Noise Perception in Children with ADHD.; bioRxiv : the preprint server for biology. 2025 Nov 12.
- The Families Moving Forward Connect Teacher Companion website: Development and initial pilot randomized trial of an FASD-informed resource for teachers.; Alcohol, clinical & experimental research; Vol 49(12), pp. 2796-2809. 2025 Nov 12.
- When the Lights Go Out: Studying Sex Differences in Sleep Latency, Sleep Quality, and Social Behavior in Captive Rhesus Macaques (Macaca mulatta) Over a 24-h Period.; American journal of primatology; Vol 87(11), pp. e70098. 2025 Nov.
- Randomised hybrid type 1 pilot trial evaluating preliminary effectiveness and implementation of an emergency care action plan (ECAP) for infants with medical complexity within a rural health network: a study protocol.; BMJ open; Vol 15(10), pp. e106842. 2025 Oct 06.
- Mental Health, Quality of Life, and Work Functioning of Parents of Children Who Have Died from Spinal Muscular Atrophy.; Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research. 2025 Sep 10.
- Results of a pilot randomized controlled trial of Tuning in to Kids for children with FASD in nonbiological parent care.; Alcohol, clinical & experimental research; Vol 49(10), pp. 2349-2364. 2025 Aug 29.
- Preferences for Outcome Data Collection and Access in a Pediatric Autism Learning Health Network Registry.; Journal of developmental and behavioral pediatrics : JDBP. 2025 Aug 15.
- Mindfulness and Psychoeducation Are Associated With Improved Perceived and Physiological Health Outcomes in Caregivers of Children With Autism.; American journal on intellectual and developmental disabilities; Vol 130(4), pp. 280-293. 2025 Jul 01.
- Preventing exclusionary discipline and adverse life experiences in FASD: Teachers' ability to recognize students with FASD in the classroom and develop and implement preventative strategies to support learning and behavior.; Alcohol, clinical & experimental research; Vol 49(8), pp. 1828-1838. 2025 Jun 16.
- Feasibility trial of the My Health Coach app for adults with fetal alcohol spectrum disorders.; Research in developmental disabilities; Vol 164, pp. 105053. 2025 May 31.
- Caregivers of Children with Medical Complexity: A Qualitative Study of Their Adaptation.; Hospital pediatrics. 2025 Apr 28.
- Emotion awareness and perceptions of parental response to emotion in children with fetal alcohol spectrum disorders: development and preliminary testing of the Qualitative Emotion Interview.; Advances in neurodevelopmental disorders; Vol 9(2), pp. 229-240. 2025 Apr 23.
- Emotion socialization practices in non-biological parents of children with FASD.; Research in developmental disabilities; Vol 162, pp. 105011. 2025 Apr 12.
- Provider, staff, and parent perspectives on the feasibility, utility, and implementation of the Family Health Scale in primary care pediatrics.; Families, systems & health : the journal of collaborative family healthcare. 2025 Mar 10.
- Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity.; Pediatrics. 2025 Feb 12.
- Adaptive Intervention for School-Age, Minimally Verbal Children With Autism Spectrum Disorder in the Community: Primary Aim Results.; Journal of the American Academy of Child and Adolescent Psychiatry. 2025 Jan 22.
- Understanding the intersection of prenatal alcohol exposure and postnatal adversity: A systematic review from a developmental psychopathology lens.; Alcohol, clinical & experimental research; Vol 49(1), pp. 25-42. 2024 Dec 24.
- Accidental Physical Trauma in Children and Youth with Special Health Care Needs: A Scoping Review.; Academic pediatrics. 2024 Oct 10.
- Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention.; Autism research : official journal of the International Society for Autism Research. 2024 Oct 07.
- Cultural Adaptation of Child Discipline Measures for Puerto Rican Mothers: Enhancing the Cultural Sensitivity of Parenting Assessments.; Children (Basel, Switzerland); Vol 11(9). 2024 Aug 29.
- Social Justice Is Overdue for Puerto Rican Mothers.; American journal of public health; Vol 114(S6), pp. S450-S452. 2024 Jul.
- ¿De Dónde Eres? Latine Identity and Representation in Health Statistics.; American journal of public health; Vol 114(S6), pp. S439-S443. 2024 Jul.
- My Health Coach: Community members' perspectives on a mobile health tool for adults with fetal alcohol spectrum disorders.; Digital health; Vol 10, pp. 20552076241261458. 2024 Jun 14.
- Building Better Bridges: Outcomes of a Community-Partnered New School Transition Intervention for Students on the Autism Spectrum.; Journal of autism and developmental disorders. 2024 Jun 12.
- Positive behavior support (PBS) with children with fetal alcohol spectrum disorders: Characterizing caregivers' use of PBS using follow-up clinical trial data.; Research in developmental disabilities; Vol 151, pp. 104773. 2024 Jun 04.
- Considerations for Alternative Decision-Making When Transitioning to Adulthood for Youth With Intellectual and Developmental Disabilities: Policy Statement.; Pediatrics; Vol 153(6). 2024 Jun 01.
- Profiles of minimally verbal autistic children: Illuminating the neglected end of the spectrum.; Autism research : official journal of the International Society for Autism Research; Vol 17(6), pp. 1218-1229. 2024 May 27.
- Child Ability and Parental Attributions: Development and Validation of the Reasons for Children's Behavior Scale.; Child psychiatry and human development; Vol 57(2), pp. 337-352. 2024 May 20.
- Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders.; Digital health; Vol 10, pp. 20552076241242328. 2024 Mar 28.
- Racial and ethnic disparities in psychological care for individuals with FASD: a dis/ability studies and critical race theory perspective toward improving prevention, assessment/diagnosis, and intervention.; Frontiers in public health; Vol 12, pp. 1355802. 2024 Mar 13.
- Neurodevelopmental Outcomes of Extremely Preterm Infants Fed Donor Milk or Preterm Infant Formula: A Randomized Clinical Trial.; JAMA; Vol 331(7), pp. 582-591. 2024 Feb 20.
- Measuring What Matters to Children With Medical Complexity and Their Families.; Pediatrics; Vol 153(Suppl 1). 2024 Jan 01.
- What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change.; Pediatrics; Vol 153(Suppl 1). 2024 Jan 01.
- Investigating the associations between prenatal exposure to substances and intergenerational maltreatment and symptoms of psychopathology for adolescent girls from families with low income.; Child abuse & neglect; Vol 147, pp. 106594. 2023 Dec 11.
- Extension for Community Healthcare Outcomes fetal alcohol spectrum disorder (ECHO FASD): Tele-mentoring program to increase healthcare capacity for FASD diagnosis.; Alcohol, clinical & experimental research; Vol 48(1), pp. 110-121. 2023 Dec 06.
- Teachers' needs for an FASD-informed resource: a qualitative interview needs assessment based on the ADAPT-ITT framework.; Psychology in the schools; Vol 61(3), pp. 1255-1279. 2023 Dec 06.
- Adapting a preschool physical activity intervention to be inclusive of children on the autism spectrum.; International Journal of Disability, Development and Education. 2023 Jan 01.
- Impairment Types and Combinations Among Adolescents and Young Adults with Disabilities: Colorado 2014-2018.; Academic pediatrics; Vol 24(4), pp. 587-595. 2023 Nov 02.
- Comparing Pediatric Physical Trauma Outcomes by Special Health Care Needs Status.; Hospital pediatrics; Vol 13(9), pp. 849-856. 2023 Sep 01.
- Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocol.; Cost effectiveness and resource allocation : C/E; Vol 21(1), pp. 55. 2023 Aug 23.
- Proceedings of the 2022 annual meeting of the Fetal Alcohol Spectrum Disorders study group.; Alcohol (Fayetteville, N.Y.); Vol 113, pp. 11-20. 2023 Aug 10.
- The trauma experiences of children with fetal alcohol spectrum disorders: Developmental outcomes utilizing a threat/deprivation child adversity framework.; Alcohol, clinical & experimental research; Vol 47(9), pp. 1722-1735. 2023 Jul 18.
- Exploring health behaviors and the role of pet dogs in households with autistic children: the DANE study.; Frontiers in pediatrics; Vol 11, pp. 1153124. 2023 Jul 14.
- Spoken language outcomes in limited language preschoolers with autism and global developmental delay: RCT of early intervention approaches.; Autism research : official journal of the International Society for Autism Research; Vol 16(6), pp. 1236-1246. 2023 Apr 18.
- Severely attenuated visual feedback processing in children on the autism spectrum.; The Journal of neuroscience : the official journal of the Society for Neuroscience. 2023 Feb 27.
- Adverse childhood experiences in children with fetal alcohol spectrum disorders and their effects on behavior.; Alcohol, clinical & experimental research; Vol 47(3), pp. 577-588. 2023 Feb 21.
- Coping Factors for Caregivers of Children With Medical Complexity During Hospitalization.; Hospital pediatrics. 2023 Jan 16.
- Earning your way into general education: Perceptions about autism influence classroom placement.; Journal of Education Sciences.; Vol 13. 2023 Jan 01.
- COVID-19 Vaccines for Children with Developmental Disabilities: Survey of New York State Parents' Willingness and Concerns.; Journal of developmental and behavioral pediatrics : JDBP; Vol 43(9), pp. 521-528. 2022 Sep 02.
- The Strengths and Positive Influences of Children With Fetal Alcohol Spectrum Disorders.; American journal on intellectual and developmental disabilities; Vol 127(5), pp. 355-368. 2022 Sep 01.
- A National Profile of Families and Caregivers of Children with Disabilities and/or Medical Complexity.; Academic pediatrics. 2022 Aug 21.
- Attentional influences on neural processing of biological motion in typically developing children and those on the autism spectrum.; Molecular autism; Vol 13(1), pp. 33. 2022 Jul 18.
- Using Novel Implementation Tools for Evidence-based Intervention Delivery (UNITED) across public service systems for three evidence-based autism interventions in under-resourced communities: study protocol.; BMC psychiatry; Vol 22(1), pp. 478. 2022 Jul 16.
- The strength of feedback processing is associated with resistance to visual backward masking during illusory contour processing in adult humans.; NeuroImage. 2022 Jun 25.
- Access to Services for Children and Youth With Special Health Care Needs and Their Families: Concepts and Considerations for an Integrated Systems Redesign.; Pediatrics; Vol 149(Suppl 7). 2022 Jun 01.
- Proceedings of the 2021 annual meeting of the Fetal Alcohol Spectrum Disorders Study Group.; Alcohol (Fayetteville, N.Y.); Vol 102, pp. 23-33. 2022 May 18.
- How Is Colonialism a Sociostructural Determinant of Health in Puerto Rico?; AMA journal of ethics; Vol 24(4). 2022 Apr 01.
- Characterizing physical trauma in children and youth with special health care needs.; The journal of trauma and acute care surgery; Vol 93(3), pp. 299-306. 2022 Mar 14.
- Research Agenda for Implementation of Principles of Care for Children and Youth With Special Health Care Needs.; Academic pediatrics; Vol 22(2S), pp. S41-S46. 2022 Mar.
- Pediatric primary care immunization policies in New York State.; Vaccine; Vol 40(10), pp. 1458-1463. 2022 Feb 04.
- COVID-19 Vaccine Equity and Access: A Case for Healthcare Chatbots.; JMIR formative research. 2022 Jan 29.
- Predictors of Secondhand Smoke Exposure during pregnancy in Costa Rica, the Dominican Republic, and Honduras.; Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco. 2022 Jan 27.
- Developmental Behavioral Pediatrician Perspectives on Decision-Making in Early Treatment Planning for Children with Autism Spectrum Disorder.; Journal of developmental and behavioral pediatrics : JDBP; Vol 43(2), pp. 71-79. 2022 Jan.
- Initial Feasibility of the "Families Moving Forward Connect" Mobile Health Intervention for Caregivers of Children With Fetal Alcohol Spectrum Disorders: Mixed Method Evaluation Within a Systematic User-Centered Design Approach.; JMIR formative research; Vol 5(12), pp. e29687. 2021 Dec 02.
- Science, healthcare system, and government effectiveness perception and COVID-19 vaccination acceptance and hesitancy in a global sample: an analytical cross-sectional analysis.; BMJ open; Vol 11(11). 2021 Nov 23.
- Moving From Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs.; Academic pediatrics; Vol 22(2S), pp. S47-S53. 2021 Nov 19.
- A meta-analytic review of adaptive functioning in fetal alcohol spectrum disorders, and the effect of IQ, executive functioning, and age.; Alcoholism, clinical and experimental research; Vol 45(12), pp. 2430-2447. 2021 Nov 09.
- Improving Health Care Transitions for Children and Youth With Special Health Care Needs.; Academic pediatrics; Vol 22(2S), pp. S7-S13. 2021 Oct 29.
- "Y no quedó nada, nada de la casa, todo salió volando" (And there was nothing left, nothing of the house, everything flew away): a critical medical ecological perspective on the lived experience of hurricane María in Puerto Rico.; BMC public health; Vol 21(1). 2021 Oct 09.
- Self-regulation predicts companionship in children with autism.; International journal of developmental disabilities; Vol 68(6), pp. 889-899. 2021 Sep 27.
- Attitudes Toward the Environment and Use of Information and Communication Technologies to Address Environmental Health Risks in Marginalized Communities: Prospective Cohort Study.; Journal of medical Internet research; Vol 23(9). 2021 Sep 23.
- The Development of a Mental Health Program for Unaccompanied Minors in the United States.; International journal for the advancement of counseling; Vol 44(1), pp. 164-196. 2021 Sep 02.
- Participation in genetic research among Latinx populations by Latin America birth-residency concordance: a global study.; Journal of community genetics. 2021 Aug 10.
- COVID-19 vaccine perceptions in New York State's intellectual and developmental disabilities community.; Disability and health journal; Vol 15(1), pp. 101178. 2021 Jul 31.
- A National Mental Health Profile of Parents of Children With Medical Complexity.; Pediatrics. 2021 Jun 21.
- Animal-Assisted Intervention: A Promising Approach to Obesity Prevention for Youth With Autism Spectrum Disorder.; Frontiers in veterinary science; Vol 8, pp. 646081. 2021 May 19.
- Partner influence as a factor in maternal alcohol consumption and depressive symptoms, and maternal effects on infant neurodevelopmental outcomes.; Alcoholism, clinical and experimental research; Vol 45(6), pp. 1265-1275. 2021 May 17.
- Use of Telehealth in Fellowship-Affiliated Developmental Behavioral Pediatric Practices During the COVID-19 Pandemic.; Journal of developmental and behavioral pediatrics : JDBP; Vol 42(4), pp. 314-321. 2021 May 01.
- Effects of a teacher training program to promote physically active play among preschoolers with autism spectrum disorders.; Journal of school psychology; Vol 85, pp. 57-79. 2021 Feb 13.
- Decídetexto: Feasibility and Acceptability of a Mobile Smoking Cessation Intervention in Puerto Rico.; International journal of environmental research and public health; Vol 18(4). 2021 Feb 03.
- A Stakeholder-Engaged Approach to Development of an Animal-Assisted Intervention for Obesity Prevention Among Youth With Autism Spectrum Disorder and Their Pet Dogs.; Frontiers in veterinary science; Vol 8, pp. 735432. 2021 Jan 11.
- Timing of Co-occurring Chronic Conditions in Children With Neurologic Impairment.; Pediatrics; Vol 147(2). 2021 Jan 07.
- Relationship between perceived social support and postpartum care attendance in three Latin American countries: a cross-sectional analytic study.; Global Health Research and Policy; Vol 6(16). 2021 Jan 01.