Neurodevelopmental and Behavioral Pediatrics

Fetal Alcohol Spectrum Disorder Resources

National Organization for Fetal Alcohol Syndrome strives to prevent alcohol use during pregnancy and supports individuals and families affected by Fetal Alcohol Spectrum Disorders.  They provide an information clearinghouse and media center, an international peer mentoring birth mother’s network, family support networks, professional training, and public awareness.

American Academy of Pediatrics has an online FASD Toolkit that is aimed at health care providers.  It was designed to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions. 

SAMSA FASD Center of Excellence is a federal initiative devoted to preventing and treating FASDs. This Web site provides information and resources about FASDs, including materials you can use to raise awareness about FASDs. Additionally, the center is dedicated to providing training, technical assistance, and conference/event speakers.

National Institute on Alcohol Abuse and Alcoholism

Centers for Disease Control and Prevention: basic information on FASD

FAS Community Resource Center: family oriented information and support on FAS and FASD

Do2Learn: A resource for families of children with special needs. The website includes a variety of strategies and products to help parents and teachers address children’s needs in the areas of academics, social skills, and behavior management, as well as resources on disabilities and transitioning to the workplace.

Books

Trying Differently Rather than Harder: Fetal Alcohol Spectrum Disorders  by Diane Mablin,

This book provides a readable, narrative discussion of the neurobehavioral approach for working effectively with children, adolescents and adults with FASD. After a brief review of the diagnosis, the focus is on understanding behaviors differently - primary and secondary learning and behavioral characteristics.

Fantastic Antone Succeeds: Experiences in Educating Children with Fetal Alcohol Syndrome, by Judith Kleinfield.  Fantastic Antone Succeeds! describes in concrete, specific ways how to educate children with fetal alcohol syndrome/fetal alcohol effects (FAS/FAE).

Fantastic Antone Grows Up: Adolescents and Adults with Fetal Alcohol Syndrome, By Judith Kleinfeld.  Fantastic Antone Grows Up is a field guide to life with an adolescent or young adult with fetal alcohol syndrome/effects.

Local Fetal Alcohol Spectrum Disorder resources

DePaul’s National Council on Alcoholism and Drug Dependence- Rochester Area (NCADD-RA) is the Upstate NY NOFAS affiliate providing community education, training and parent resources, including a parent support group.

FASD Support group contact: Jennifer Faringer, MS.Ed.,Director, NCADD_RA at Jfaringer@depaul.org or (585)719-3480

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Golisano Children's Hospital Development

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