Neurodevelopmental and Behavioral Pediatrics

Family Support

Developmental & Behavioral Pediatrics Programs: Provide Specialized Care to Children with Known or Suspected Developmental Disabilities

General Resources

  • New York State Office for People With Developmental Disabilities (OPWDD)
    New York State Office for People With Developmental Disabilities (OPWDD) is responsible for coordinating services for New Yorkers with developmental disabilities, providing services including service coordination, family support services, employment supports, residential supports and services, and clinical services. OPWDD Has published a resource booklet for individuals and families
  • New York State Regional Center for Autism Spectrum Disorders
    New York State Regional Center for Autism Spectrum Disorders.located at the University of Albany
  • Ability Path
    Ability Path  Support for parents of children with disabilities.
  • New York Parent Network
    New York Parent Network  upports families of people who are deaf-blind, or visually and hearing impaired throughout New York State.
  • Parent Network of Western New York
    The Parent Network of Western New York's goal is to help families successfully advocate for their children with special needs.
  • Daystar for Medically Fragile Children

    Daystar for Medically Fragile Children is New York State’s only pediatric day-respite program designed specifically to meet the needs of families with children as young as six months through age five who are coping with serious medical conditions and developmental complexities.

Sibling Support

Autism Spectrum Disorders Family Support

  • Happiness House
    Happiness House provides autism resources for families and professionals in Ontario, Seneca, Yates and Wayne Counties. Resources include; Autism family support and training group, Early childhood education services and Evaluation services.
  • UNYFEAT – Upstate New York Families for Effective Autism Treatment
    UNYFEAT seeks to provide parents, guardians and families who have members with an Autism Spectrum Disorder, with information and resources including family support and other services for individuals with developmental disabilities, Information regarding medical practitioners and interventions and many other services
  • Managing Autism Together Today
    Managing Autism Together Today (MATT) is a local organization that is dedicated to assisting families that have children with an autism spectrum disorder.
  • Square Pegs
    Square Pegs is a support group for adults with Asperger Syndrome.
  • Continuing Developmental Services
    Continuing Developmental Services has a sibling and parent support group call: Jackie Blake, Program Coordinator, at 585-347-1031 or email jblake@cdsunistel.org.
  • ARC of New York
    Chapters of the ARC of New York The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
  • Southern Tier Independence Center
    Southern Tier Independence Center(Binghamton, NY).
  • Parent to Parent of New York
    Parents of children with disabilities can find support through Parent to Parent of New York. A unique feature of this organization is the Parent Matching Program where volunteer Support Parents provide 1:1 assistance and support. Check their web site to find the Parent to Parent office in your area.

Down Syndrome Family Support

Mental Health Family Support

Fetal Alcohol Spectrum Disorders Family Support

Trisomy 13, 18, and Related Disorders Family Support

Connect with Golisano Children's Hospital

Golisano Children's Hospital Development

Contact Us

Main Phone: (585) 275-0355

See our complete listing of contact numbers for NDBP services and programs.

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