Neurodevelopmental and Behavioral Pediatrics
Support and Advocacy
Developmental & Behavioral Pediatrics Programs: Provide specialized care to children with known or suspected developmental disabilities
Early Childhood Information and Referral
Early Childhood Direction Centers.
New York State Special Education
New York State Education Department Regional Special Education Technical Assistance Support Centers.
Autism Spectrum Disorders Family Support
UNYFEAT – Upstate New York Families for Effective Autism Treatment
UNYFEAT seeks to provide parents, guardians and families who have members with an Autism Spectrum Disorder, with information and resources including family support and other services for individuals with developmental disabilities, Information regarding medical practitioners and interventions and many other services
Managing Autism Together Today
Managing Autism Together Today (MATT) is a local organization that is dedicated to assisting families that have children with an autism spectrum disorder.
Square Pegs is a support group for adults with Asperger Syndrome.
Continuing Developmental Services
Continuing Developmental Services has a sibling and parent support group call: Jackie Blake, Program Coordinator, at 585-347-1031 or email firstname.lastname@example.org.
ARC of New York
Chapters of the ARC of New York The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
Southern Tier Independence Center
Southern Tier Independence Center(Binghamton, NY).
General Advocacy Resources
The Advocacy Center
The goal of The Advocacy Center is to deliver consumer-driven services including information sharing, individual advocacy support, service coordination and educational workshops to support people with disabilities and their families.
Rochester Regional Center for Autism Spectrum Disorders (RRCASD)
The Rochester Regional Center for Autism Spectrum Disorders provides community education and technical assistance to professionals, caregivers and individuals affected by an autism spectrum disorder within our 17-county region within Central/Western New York State.
Offers access to a full range of services that may be needed by persons with disabilities through their lives. Through its administration of vocational rehabilitation and independent living programs, ACCES-VR coordinates policy and services relating to: transition services for students with disabilities from school to adult services; vocational rehabilitation services for individuals with disabilities, ages 16 and older; independent living services for people with disabilities of all ages; and employer services for hiring a qualified diverse workforce
Camp Good Days
Camp Good Days and Special Times, Inc., a 501(c)3 not-for-profit organization is dedicated to improving the quality of life for children, adults and families whose lives have been touched by cancer and other life challenges through summer camping experiences and year-round events and activities.
Parent to Parent - New York State
Parent to Parent NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs
585-546-1700- (Susie Nettleton)
Finger Lakes Parent Network
Finger Lakes Parent Network is a parent-governed organization, focused on the needs of children and youth with emotional, behavioral, developmental, and/or mental disorders and their families. Their mission is to support and empower families so that they can improve the quality of their lives and help their child to achieve his/her full potential within the community
New Directions Youth & Family Services, Inc.
At New Directions Youth & Family Services, Inc. the Family Support Coordinator (FSC) works with families of children having an emotional, behavioral or socially handicapping condition. The FSC oversees the provision of three support groups for parents and provides support, advocacy, educational resources and information regarding special education services. This program is funded by the New York State and Niagara County Offices of Mental Health.
Margaret Wright : Family Support Coordinator
Youth Advocacy Program
A program of the Legal Aid Society of Rochester. The purpose of the Youth Advocacy Program is to provide legal representation, educational advocacy, advice and counsel to youth and their families in education related cases. Cases can involve issues of access to school, residency, special education and long term suspension.
New York Yellow Pages for Kids with Disabilities
New York Yellow Pages for Kids with Disabilities is a resource directory assisting with finding educational consultants, psychologists, educational diagnosticians, and health care providers among others.