Neurodevelopmental and Behavioral Pediatrics

Advocacy

General Advocacy Resources

  • The Advocacy Center
    The goal of The Advocacy Center is to deliver consumer-driven services including information sharing, individual advocacy support, service coordination and educational workshops to support people with disabilities and their families.
  • Rochester Regional Center for Autism Spectrum Disorders (RRCASD)
    The Rochester Regional Center for Autism Spectrum Disorders provides community education and technical assistance to professionals, caregivers and individuals affected by an autism spectrum disorder within our 17-county region within Central/Western New York State.
  • ACCES-VR
    Offers access to a full range of services that may be needed by persons with disabilities through their lives. Through its administration of vocational rehabilitation and independent living programs, ACCES-VR coordinates policy and services relating to: transition services for students with disabilities from school to adult services; vocational rehabilitation services for individuals with disabilities, ages 16 and older; independent living services for people with disabilities of all ages; and employer services for hiring a qualified diverse workforce
  • Camp Good Days
    Camp Good Days and Special Times, Inc., a 501(c)3 not-for-profit organization is dedicated to improving the quality of life for children, adults and families whose lives have been touched by cancer and other life challenges through summer camping experiences and year-round events and activities.

Parent Resources

  • Parent to Parent - New York State
    Parent to Parent NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs.  There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs
    585-546-1700- (Susie Nettleton)
  • Finger Lakes Parent Network
    Finger Lakes Parent Network is a parent-governed organization, focused on the needs of children and youth with emotional, behavioral, developmental, and/or mental disorders and their families. Their mission is to support and empower families so that they can improve the quality of their lives and help their child to achieve his/her full potential within the community
  • New Directions Youth & Family Services, Inc.
    At New Directions Youth & Family Services, Inc. the Family Support Coordinator (FSC) works with families of children having an emotional, behavioral or socially handicapping condition. The FSC oversees the provision of three support groups for parents and provides support, advocacy, educational resources and information regarding special education services. This program is funded by the New York State and Niagara County Offices of Mental Health.
    Margaret Wright : Family Support Coordinator
    Email: mwright@ndyfs.org

Youth Advocacy

  • Youth Advocacy Program
    A program of the Legal Aid Society of Rochester. The purpose of the Youth Advocacy Program is to provide legal representation, educational advocacy, advice and counsel to youth and their families in education related cases. Cases can involve issues of access to school, residency, special education and long term suspension.
  • New York Yellow Pages for Kids with Disabilities
    New York Yellow Pages for Kids with Disabilities is a resource directory assisting with finding educational consultants, psychologists, educational diagnosticians, and health care providers among others.

Connect with Golisano Children's Hospital

Golisano Children's Hospital Development

Contact Us

Golisano Children’s Hospital
Box 671
601 Elmwood Avenue
Rochester, NY 14642

Phone: (585) 275-2986
Fax: (585) 275-3366

Directions to the Kirch Clinical Offices

Survey - Connecting Online with Families