Cystic Fibrosis Center

Cystic Fibrosis Center

Accredited by the Cystic Fibrosis Foundation (CFF), we are a premiere Cystic Fibrosis Center serving Upstate New York. Our Center adheres to the stringent standards set forth by the CF Foundation using approved guidelines resulting in an appropriate management of patients with CF. Our sweat test laboratory uses only CFF-approved techniques, which result in accurate diagnoses and quality ongoing care of patients of all ages.

At the Golisano Children's Hospital, we incorporate a team approach. Our pulmonologists are supported by a core team of dieticians, social workers, nurses, and respiratory therapists. We also have available the consultative expertise of gastroenterologists, surgeons, psychiatrists, radiologists, and other specialists needed in the evaluation of new patients and the ongoing management of CF.

National Involvement

Our national involvement strengthens our clinical and research position by keeping us abreast of rising issues in the study, education, and treatment of cystic fibrosis. Our faculty and nurses have served in an advisory capacity to the Cystic Fibrosis Foundation in several areas, including Quality Improvement, the Patient and Family Education Committee, and the Program Planning for the North American CF Conference. Through the Epidemiological Study of CF, we have participated in data analysis and the publication of results addressing questions to improve the quality of specific care initiatives in cystic fibrosis, keeping us on the forefront for new therapies. We are also active participants in the North American CF Conference, an annual professional conference of clinical and basic science research professionals sponsored by the Cystic Fibrosis Foundation.

Community Outreach and Professional Development

We are fortunate to have the Kit Taylor Memorial Lectureship at the Golisano Children's Hospital, established in 1982. The annual two-day event continues to draw enthusiasm from parents, trainees, nurses, physicians and community medical professionals. It is an opportunity for parents and medical professionals to learn from renown national experts in CF. An evening is set aside strictly for parents, patients, and interested community members. Guest speakers have presented such topics as latest improvements in care, newborn screening, new therapies, genetics, and lung transplants.

More Information

For more information on this event, contact the Division of Pediatric Pulmonology at (585) 275-2464.

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What is Cystic Fibrosis?

Cystic fibrosis (CF) is a chronic condition in children and adults. It most often affects the lungs and digestive system of the body. Children with CF may have chronic lung infections and/or poor digestion of their food. Symptoms which are sometimes seen in CF but are also common in other illnesses may include:

  • A chronic cough
  • Frequent infections in the lungs
  • Wheezing/asthma
  • Nasal polyps
  • Difficulty gaining weight
  • Salty taste of the skin