Neurodevelopmental and Behavioral Pediatrics

Autism Resources

Health and Safety Resources

Physical Health

  • Autism Intervention Research Network
    The AIR Network has a website dedicated to physical health for children and adolescents with ASD

Dental Care

  • Autism Speaks
    Dental Toolkitfrom Autism Speaks was created to help with oral health.

Emotional, Behavioral and Mental Health

  • The Explosive Child: A New Approach to Understanding and Parenting Easily Frustrated, Chronically Inflexible Children, by Ross W. Greene, (2010),  Harper Publishing
  • 10 Days to a Less Defiant Child: The Breakthrough Program for Overcoming Your Child’s Difficult Behavior, by Jeffrey Bernstein,  (2006), De Capo Press
  • The Feelings Book: the Care & Keeping of Your Emotions, by Lynda Madison & Norm Bendell, (2002), American Girl
  • When My Worries Get Too Big by K. D. Buron (2006), Autism Asperger Publishing Company.
  • Helping Your Anxious Child by Ron Rapee's (2008), New Harbinger Publications
  • Up and Down the Worry Hill: A Children's Book about Obsessive-Compulsive Disorder and it's Treatment by Aureen Pinto Wagner (), Lighthouse Press
  • Worried No More: Help and Hope for Anxious Children by Aureen Pinto Wagner (2002), Lighthouse Press

Feeding

Medical Visits and Procedures

Medicine

  • Autism Speaks
    • The Medication Decision Aid developed for Autism Speaks by The University of Rochester and Neurodevelopmental and Behavioral Pediatrics in collaboration with Oregon Health and Science University and Texas Children’s Hospital to assist families in the medication decision process.
    • The Autism and Medication: Safe and Careful use toolkit. This free publication provides strategies and resources for parents of children with autism who use medicines to help treat their child’s challenging behavior or manage emotional issues

      The tool kit author is Lynn Cole, NDBP's Director of Clinical Services. Lynn recently wrote a blog on the development of the toolkit being inspird by the needs and desires of families.
  • North Shore Long Island Jewish Health System
    North Shore Long Island Jewish Health System's website on pill swallowing.
  • Alberta Children's Hospital
    Alberta Children's Hospital: "Better than a spoonful of sugar: how to swallow pills"
  • Taking the Mystery Out of Medications in Autism/Asperger Syndrome: a Guide for Parents and Non-medical Professionals, by Luke Tsai (2001), Future Horizons

Pica (eating non-foods)

  • Autism Speaks
    The Autism Speaks website provides agencies and organizations that provide Applied Behavioral Analysis (ABA), a training used to help with the prevention of pica behaviors in children with ASD. Simply Click your state and then enter your zip code. There is also a recently published blog regarding common questions.

Product Recalls

For information regarding product recalls

 

Puberty/Adolescence

Safety

  • National Autism Association
    The NAA has released a statement on recent drowning deaths in the autism community. The statement contains information and links related to safety
  • AWAARE
    AWAARE Collaboration is an initiative to prevent wandering as well as wandering related fatalities.  This website contains a wide variety of information on how to decrease the risk of wandering, including; different types of tracking materials that children can wear or have on their person, and suggestions of what to do if a child does wander.
  • Autism Speaks
    Autism Speaks has a toolkit for creating Safety Plans for children with autism.
  • Stop Bullying Now
    Stop Bullying Now is sponsored in part by HRSA (Health Resources and Services Administration). It's a site where you will find lots of information on bullying for parents and kids. Includes Spanish content materials for parents.
  • Autism Risk Management
    Autism Risk Managementprovides autism training and resources for law enforcement, emergency first responders, parents, educators, care providers, and the autism community. Some resources include: The autism Emergency Contact Form, Autism Travel and Airport Safety, and Disaster Preparedness.
  • Project Lifesaver International
    Project Lifesaver International is an initiative to provide training to law enforcement and other public safety agencies on the use of specialized electronic search and rescue equipment, technology and procedures, as well as teaching rescuers how to communicate with people with autism and other disabilities.

Self Injurious Behavior

  • Autism Health
    Autism Health has a fact sheet page covering Self-Injurious Behavior
  • Autism Research Institute
    The Autism Research Institute provides a comprehensive guide for parents regarding both the causes and effective treatment interventions for Self-Injurious Behaviors.

Sleep

  • Autism Speaks
    Sleep Toolkitfrom Autism Speaks was created to help with sleep.
  • Sleep Better: A Guide to Improving Sleep for Children with Special Needs, by V. Mark Durand, (1998), Brookes Publishing
  • Solve Your Child’s Sleep Problems, by Richard Ferber, (2006), Fireside Publishing.

Toe Walking

Toileting

  • University of North Carolina
    The University of North Carolina's Toilet Training guide for children with autism.
  • Toilet Training for Individuals with Autism & Related Disorders: A comprehensive Guide for Parents & Teachers, (1998), Future Horizons.

Vaccines

  • American Academy of Pediatrics
    The AAP website offers information on Vaccines and Autism as well as an Overview of the Immunization process
  • Vaccinating Your Child: Questions and Answers for the concerned parent.  By Sharon G. Humiston & Cynthia Good, (2000) Peachtree Publishers

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Golisano Children’s Hospital
Box 671
601 Elmwood Avenue
Rochester, NY 14642

Phone: (585) 275-2986
Fax: (585) 275-3366

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