Neurodevelopmental and Behavioral Pediatrics

Cerebral Palsy - Resources

Regional Resources

  • CPRochester Connecting People with Physical Disabilities to Communities. CP Rochester provides supports and services to individuals with physical and developmental disabilities across the life span.
  • Rochester Rehabilitation Center provides services to individuals with disabilities, focusing on work, wellness and independence.
  • Upstate Cerebral Palsy based in Utica New York provides individualized programs and services for individuals with disabilities in the Utica area.
  • Aspire, Buffalo New York provides services to individuals with cerebral palsy and other developmental disabilities in Western New York.

Support Groups

  • Parent/Caregiver Support group for parents of children with disabilities. Please contact CP Rochester at (585) 334-6000, ext 211.
  • Hispanic Family Support Group for parents of children with developmental disabilities. Please contact them at (585) 454-1620.

National Resources

  • Center for Disease Control
    The Center for Disease Control website provides an overview of Cerebral Palsy, common causes, screening for cerebral palsy and current research and tracking of prevalence.  They also have links to research papers and several other online resources.
  • National Intitute of Neurologic Disorders and Stroke (NINDS)
    National Intitute of Neurologic Disorders and Stroke (NINDS) is an excellent resource for any neurologic condition and links to other national resources.
  • Cerebral Palsy International Research Foundation
    Cerebral Palsy International Research Foundation offers information to families with a focus on current research into such topics like hyperbaric oxygen, Adeli suits, dolphin assisted therapy and cell based research.
  • Children's Hemiplegia and Stroke Association
    Children's Hemiplegia and Stroke Association site provides information about a wide range of topics for families from new diagnosis to teen and adult issues.  They also provide suggestions about daily living skill modifications for people with hemiplegia
  • American Academy of Developmental Medicine and Cerebral Palsy
    American Academy of Developmental Medicine and Cerebral Palsy web site offers professional information and some family directed information regarding recognizing the symptoms and locating professionals.
  • The American Academy of Pediatrics
    The American Academy of Pediatrics provides an overview of CP. This includes information on signs and symptoms, treatments, and associated problems
  • My Child Without Limits
    My Child Without Limits provides resources for families of young children ages 0-5 with developmental delays or disabilities, including CP. The site also has information about government programs that may be accessed, educational recommendations including assistive technology and complementary and alternative therapies.
  • The National Information Center on Children and Youth with Disabilities (NICHCY)
    The National Information Center on Children and Youth with Disabilities (NICHCY) provides information on disabilities and disability-related issues for families, teachers, and other professionals. NICHCY has a fact sheet about cerebral palsy that includes information on topics such as signs of cerebral palsy and treatment, as well as tips for parents and teachers. NICHCY staff will also give information and referrals over the phone (800-695-0285) or by email
  • The National Institute of Neurological Disorders and Stroke (NINDS)
    The National Institute of Neurological Disorders and Stroke (NINDS) has a brochure on cerebral palsy that includes information on early signs of the condition, diagnosis, causes, treatment, and where to go for more information. The brochure is available in both English and Spanish. This site also provides information about medical issues for adults with cerebral palsy.
  • Canine Companions
    Canine Companions for Independence: a nonprofit organization that enhances the lives of people with disabilities by providing trained assistance dogs.

Books and Other Materials

  • Caring for Children with Cerebral Palsy: A Team Approach written by John Dormans and Louis Pelligrino (Eds), 1998.
  • Ceana has CP, written by C. Fran Card.
  • Children with Cerebral Palsy, A Parents Guide, written by Elaine Geralis, 1998, 2nd edition.
  • Cerebral Palsy: A Complete Guide for Care Giving, written by Freeman Miller, Steven  Bachrach and Sieglinde Martin, 1995.
  • Coping With Cerebral Palsy: Answers to Questions Parents Often Ask, written by Jay Schleickorn, 1993, 2nd edition.
  • I Raise My Eyes To Say Yes (Cerebral Palsy Biography) written by Ruth Sienkiewicz-Mercer and Steven Kaplan, 1989.
  • Keys to Parenting a Child with Cerebral Palsy, Jane Faulkner Leonard, Sherri Cadenhead and Margaret Myer, 1997.
  • Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders, written by Sieglinde Martin, 2006.

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