Resources for Families
CompassionNet serves children with life-threatening illnesses and their families. This unique case management program is offered by Excellus BlueCross BlueShield and administered by Lifetime Care. All-inclusive care, addressing physical, emotional and spiritual needs of patient and family including bereavement services. Services can be provided at patient's home.
Mended Little Hearts of Rochester, Inc.
Mended Little Hearts is a unique support group for children with congenital heart defects, and their families.
Ronald McDonald House Charities
Families are stronger when they are together, and their presence helps a sick child heal faster and cope better. While Ronald McDonald House Charities® cannot make medicine taste better or take away painful treatments, we can help lessen the burden and ensure families have the stability and resources to keep their child healthy and happy.
CURE Childhood Cancer Association
CURE Childhood Cancer Association was formed in Rochester, NY in 1976 by a group of parents who lost their children to cancer. They wanted to provide support to parents going through the same experience, and to raise money for cancer research. Today, CURE is the only organization in Rochester focused solely on meeting the emotional, social, financial, and educational needs of children diagnosed with cancer and chronic blood disorders.
Think of us as an online space where you can connect, share news, and receive support. It’s your very own health social network, coming together on your personalized website. And thanks to those who donate to CaringBridge.org/board, we are available 24/7 to anyone, anywhere, and at no cost.
The Society of Critical Care Medicine (SCCM) Patient Support
The The Society of Critical Care Medicine (SCCM) site is the largest multidisciplinary, multi-professional organization dedicated to ensuring excellence and consistency in the practice of critical care medicine. Their Patient Support website includes a section for patient and family resources.
ICU-USA.com is a resource for patients and families which gives information regarding intensive care, including pediatric care.