G-Tube Support and Parent Resources

• www.tubefed.com
  (Avanos company) offers care guide pamphlets, animated care instructions (info available in other languages as well).
• www.tubiefriends.com
  Tubie friends offers families stuffed animals with feeding tubes (and sometimes other medical equipment) for a tube fed child.
• www.parenttoparentnys.org
  Parent to Parent Support is a program established in 2013 at Golisano Children’s Hospital by two social work interns with the support and guidance from GCH social worker, care coordinators, and a parent of a child with a feeding tube who is an employee of the University. Provides opportunities for parents to interact with parent supporter (someone who has been there, done that!)
• www.oley.org
  The Oley Foundation helps people dependent on home parental nutrition and home enteral nutrition.
• www.mybuttonbuddies.com
  MyButtonBuddies offers ordering information on these cute cloth pads to be worn around MIC-KEY buttons in place of gauze.
• www.feedinG-tubeawareness.org
  Feeding Tube Awareness offers information regarding care of different types of feeding tubes, basic terms related to feeding tubes, link to Facebook support group, troubleshooting information for feeding tubes, information about different supplies used with feeding tubes (syringes, types of tape).
• Facebook
  • My MIC-KEY is a page designed to help users and caregivers share and learn best use and care practices
  • Tubie Friends is a page started by a group of moms whose children have been or are currently using a feeding tube as a primary source of nutrition.
  • MyButtonBuddies
  • Two Sisters Tubie Corner (button buddies, G-tube belts, etc.)
  • Joseph's Genetic Journey
  • The Parker Lee Project
  • POTTS and PANS at HOME is a page started by a group of Rochester parents of medically fragile children to provide council and support to parents of other medically fragile children – with a focus of tube related and/or nutritional needs.