Resources for Patients and Families

• American Academy of Pediatrics (AAP) is an organization formed to guide and define the child health care system and/or improve the health of all children.
• American Dietetic Association is the nation’s largest organization of food and nutrition professionals. ADA serves the public by promoting optimal nutrition, health and well-being.
• American Gastroenterological Association (AGA) is a society of physicians, surgeons, scientists and other individuals within the healthcare community who have a demonstrated and continued interest in the functions and disorders of the digestive system.
• American Liver Foundation is a non-profit health agency focused on the prevention and treatment of liver ailments and hepatitis.
• Celiac.com is an invaluable resource to people who seek information about celiac disease and related disorders.
• Celiac Disease Foundation strives to end suffering caused by celiac disease, through medical research, patient and healthcare provider education, and public policy advocacy.
• Crohn's and Colitis Foundation of America (CCFA) sponsors basic and clinical research of the highest quality. The foundation also offers a wide range of educational programs for patients and health-care professionals, and provides supportive services to help people cope with these chronic intestinal diseases.
• Find Me Gluten Free - smartphone application that helps find celiac friendly food based on zip code.
• North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research and education.
• National Foundation for Celiac Awareness believes that by addressing barriers, and with a strategic approach to research, an effective treatment or cure is possible by 2030.
• The Oley Foundation-Children Receiving Parenteral Nutrition is a national, independent, non-profit organization that provides up-to-date information, outreach services, conference activities, and emotional support for consumers, their families, caregivers, and professionals.
• Rochester Celiac Support Group is for people with Celiac Disease and Dermatitis Herpetiformis in the Greater Rochester New York area.
• Food Allergy and Anaphylaxis Network (FAAN) works to build public awareness of food allergy through media, education, publishing, advocacy, and research efforts. FAAN serves as the communication link between the patient and others.
• Food Allergies: Coping, Teaching, Supporting is a local organization that raises awareness and educates the community about food allergies.