Resources for Families
CompassionNet
CompassionNet serves children with life-threatening illnesses and their families. This unique case management program is offered by Excellus BlueCross BlueShield and administered by Lifetime Care. All-inclusive care, addressing physical, emotional and spiritual needs of patient and family including bereavement services. Services can be provided at patient's home.
Mended Little Hearts of Rochester, Inc.
Mended Little Hearts is a unique support group for children with congenital heart defects, and their families.
Ronald McDonald House Charities
Families are stronger when they are together, and their presence helps a sick child heal faster and cope better. While Ronald McDonald House Charities® cannot make medicine taste better or take away painful treatments, we can help lessen the burden and ensure families have the stability and resources to keep their child healthy and happy.
CURE Childhood Cancer Association
CURE Childhood Cancer Association was formed in Rochester, NY in 1976 by a group of parents who lost their children to cancer. They wanted to provide support to parents going through the same experience, and to raise money for cancer research. Today, CURE is the only organization in Rochester focused solely on meeting the emotional, social, financial, and educational needs of children diagnosed with cancer and chronic blood disorders.
CaringBridge.Org
Think of us as an online space where you can connect, share news, and receive support. It’s your very own health social network, coming together on your personalized website. And thanks to those who donate to CaringBridge.org, we are available 24/7 to anyone, anywhere, and at no cost.
The Society of Critical Care Medicine (SCCM) Patient Support
The The Society of Critical Care Medicine (SCCM) site is the largest multidisciplinary, multi-professional organization dedicated to ensuring excellence and consistency in the practice of critical care medicine. Their Patient Support website includes a section for patient and family resources.
ICU-USA.com
ICU-USA.com is a resource for patients and families which gives information regarding intensive care, including pediatric care.
Patient & Family Relations
Patient and Family Relations is a confidential resource for patients and families who have concerns about communication, quality of care or unexpected outcomes.
News
Hospitalized Children get an Interactive Experience with Strong Museum of Play
Heather Reyes, M.D., Assistant Professor - Pediatric Critical Care, and Wendy Lane, Manager for the Wegmans Child Life Program, spoke with Rochester First (Oct. 19, 2021) about The Strong National Museum of Play's new "WeGo" robot, a tool that allows children to see, hear and interact with fun museum activities from their hospital room. "This partnership with WeGo and The Strong museum will allow us to provide engaging and interactive virtual experiences for our patients outside the four walls of their hospital room," Reyes said.
View more at: New Strong Museum partnership helps hospitalized children get interactive experience.