Cystic Fibrosis Center


  • 2nd Annual Cystic Fibrosis Family Connection 3 on 3 Basketball Tournament
    • Saturday, March 24, 2012, 11:00am, Victor Central Sr. and Jr. High Gymnasium. Register here.
  • Pediatric Cystic Fibrosis Family Advisory Board Meeting
    • March 28, 2012, 6pm
    • July 18, 2012, 6pm
    • November 14, 2012, 6pm
    • Please contact Marcy Odell at (585) 275-9105 for more information.
  • Kit Taylor Memorial Lecture - Tuesday, May 8th, 2012, 7:30pm, Valley Manor 1570 East Avenue. Guest speaker Michael Boyle, MD, from Johns Hopkins University. Topic to be determined.
  • The Power of Two - Saturday, May 12th, 2012, 6:30pm at the Our Lady of Mercy High School auditorium. This film follows twin sisters, both with Cystic Fibrosis, on their journey to double lung transplantation. This viewing opportunity has been brought to Rochester by the Cystic Fibrosis Family Connection and various local sponsors. See the CFFC website for more details.
  • Great Strides - May 19th, 2012, 10:00am, Genesee Valley Park. Register or view other area walks.
  • 2nd Annual Finger Lakes Aptalis CF Cycle for Life © - August 11, 2012, Geneseo, NY. More information

Connect with Golisano Children's Hospital

Golisano Children's Hospital Development

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a chronic condition in children and adults. It most often affects the lungs and digestive system of the body. Children with CF may have chronic lung infections and/or poor digestion of their food. Symptoms which are sometimes seen in CF but are also common in other illnesses may include:

  • A chronic cough
  • Frequent infections in the lungs
  • Wheezing/asthma
  • Nasal polyps
  • Difficulty gaining weight
  • Salty taste of the skin