Resources for Patients and Families

Online Resources

The following organizations sponsor websites providing education, information, and support to patients and families dealing with pediatric heart conditions:

• Adult Congenital Heart Association
• American Heart Association
• Children's Cardiomyopathy Foundation
• Congenital Heart Information Network
• Make-A-Wish Foundation® of Western New York
• March of Dimes
• Mended Little Hearts - Greater Rochester Chapter
• National Heart, Lung and Blood Institute