Golisano Children's Hospital / Palliative Care / Resources Resources Living with Chronic and Life Altering Illnesses High Risk Pregnancy and Loss Bereavement Support Living with a Chronic and Life Altering Illnesses Helpful Sites HealthyChildren: Living with a Chronic Illness or Disability Needymeds: Financial Resources and Support Kidshealth: Balancing Academics and Serious Illness Mended Hearts for Cardiac Families SuperSibs Local Groups and Organizations CompassionNet UR Medicine Homecare Caring Bridge Make a Wish CURE Childhood Cancer Camp Good Days 13-30 Cancer Connect Books Kids The Hospital Hoppities (Charlotte Hartley-Jones) The Perfect Shelter (Clare Helen Walsh) When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change – Interactive Journal for 6-12 year olds – also available in Spanish (Marge Heegaard) Adults Shelter from the Storm: Caring for a Child with a Life-Threatening Condition (Joanne Hilden & Karen Lindsey) Armfuls of Time (Barbara Sourkes) High Risk Pregnancy and Loss Top Helpful Sites SHARE Perinatal Hospice & Palliative Care Now I Lay Me Down to Sleep Kids Health for Preemies SOFT (Trisomy Support) Star Legacy Foundation Local Groups and Organizations SAIL: (Strong Arms in Infant Loss) Contact Liz Conrow at (585) 275-8304 or by email at Elizabeth_Conrow@urmc.rochester.edu for meeting information. Forget Me Not: Contact: Kim Doolittle at (585) 454-9299, or by email at forgetmenotrochester@gmail.com Books Kids No Bigger Than My Teddy Bear (Valerie Panknow) Adults A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life is Expected to be Brief (Amy Kuebelbeck) Preemies - Second Edition: The Essential Guide for Parents of Premature Babies (Dana Wechsler Linden) Waiting for Gabriel: A Story of Cherishing a Baby’s Brief Life (Amy Kuebelbeck) Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Deborah Davis) Bereavement Support Top Helpful Sites Golosano Children's Hospital Hospital Bereavement Website Guide to Grieving Support Resources What’s Your Grief A Bed for My Heart: Dear Newly Bereaved Parent Local Groups and Organizations Compassionate Friends Mended Hearts Angels Healing After Suicide Loss Addiction or Overdose Rise Up Rochester Dreams from Drake Books Kids The Invisible String & The Invisible String Workbook (Patricia Karst) I miss you: A First Look at Death (Pat Thomas) I will always Love You: A Journey from Grief and Loss to Hope and Love (Melissa Lyons) The Goodbye Book (Todd Parr) The Memory Box: A Book About Grief (Joanna Rowland) Tear Soup: A Recipe for Healing After Loss (Pat Schwiebert) Lifetimes: A Beautiful Way to Explain Death to Children (Bryan Mellonie) Grieving for the Sibling You Lost: A Teens Guide to Coping With Grief and Finding Meaning After Loss (Erica Goldblatt Hyatt) Fire in My Heart, Ice in My Veins: A Journal for Teenagers Experiencing Loss (Enid Samuel Traisman) Adults Healing a Parent’s Grieving Heart: 100 Practical Ideas After Your Child Dies (Alan Wolfelt) It’s Ok that You’re Not OK (Megan Devine) Permission to Mourn (Tom Zuba)