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Resources

Living with Chronic and Life Altering Illnesses

  • Caring Bridge
    Create free websites to keep share, connect and rally support for your child.
  • Make a Wish
    Volunteers work towards granting a "wish" for a child diagnosed with a life-altering medical condition.
  • Camp Good Days
    Support Services and recreational activities are offered year-round for children with cancer, children who have a parent or sibling with cancer and/or children who have lost a parent or sibling to cancer.
  • SuperSibs!
    A free program that provides mailings to children ages 4 -18 who live in the United States and have (or had) a sibling with cancer.
  • Teens Living with Cancer
    An engaging site with a wealth of resources for teenagers.
  • Mended Little Hearts
    Mended Little Hearts provides hope and support to children, families, and caregivers impacted by congenital heart defects.

Books

  • Shelter From the Storm: Caring for a Child with a Life-threatening Condition
    (Joanne Hilden Daniel and Tobin Karen Lindsey)
  • The Fault in Our Stars
    (John Green)
  • Charlott's Web (For kids)
    (E.B. White)

Pregnancy Through Infancy

  • Share
    A nationwide organization with local chapters supporting parents who have serious prenatal diagnosis during pregnancy and infant loss.
  • Now I Lay Me Down to Sleep
    A network of trained photographers who provide remembrance photography, free of charge, for parents who have suffered the loss of a child.

Books

  • Empty Cradle, Broken Heart: Surviving the Death of your Baby
    (D. Davis)
  • A Gift of Time: Your Pregnancy When Your Baby's Life is Expected to be Brief
    (A. Kuebelbeck, DL Davis)
  • Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life
    (A. Kuebelbeck)
  • For Parents: Preemies - Second Edition: The Essential Guide for Parents of Premature Babies
    (Dana Wechsler, Emma Trenti Paroli, Mia Wechsler Doron)
  • No Bigger than My Teddy Bear
    (Valerie Pankow)

Bereavement

Books

  • Beyond Tears: Living After Losing a Child
    (Ellen Mitchell)
  • Empty Cradle, Broken Heart:  Surviving the Death of Your Baby
    (Deborah Davis, PhD)
  • The Grieving Garden: Living with the Death of a Child
    (Suzanne Redfern and Susan K. Gilbert)
  • Grieving Dads: To the Brink and Back
    (Kelly Farley with David DiCola)
  • How Do We Tell the Children? A Guide for Helping Children Cope When Someone Dies
    (Dan  Schaefer)

Books for Children and Teens

  • The Invisible String
    (Patricia Karst) Ages 3 and up
  • When Dinosaurs Die
    (Laurie Kesney Brown and Marc Brown) Ages 4-8
  • Help Me Say Goodbye: Activities for Helping Kids Cope When a Special Person Dies
    (Janis Silverman) Ages 5 and up
  • When Someone You Love Dies (A coloring book)
    (Channing Bete Company) Ages 6-9
  • Tear Soup: A Recipe for Healing After Loss
    (Pat Schwiebert) Ages 8 and up
  • When Someone Very Special Dies: Children Can Learn to Cope with Grief
    (Marge Heegaard) Ages 9-12
  • Healing Your Grieving Heart for Teens: 100 Practical Ideas
    (Alan Wolfelt)  Ages 12 and up
  • Fire In My Heart, Ice In My Veins
    (Enid S. Traisman) Ages 12 and up
  • The Healing Your Grieving Heart Journal for Teens
    (Alan D. Wolfelt PhD) Ages 12 and up
  • Helping Teens Cope with Death
    (The Dougy Center for Grieving Children) Ages 12 and up
  • Weird Is Normal When Teenagers Grieve
    (Jenny Lee Wheeler) Ages 13 and up