Educational and Support Resources
Educational and Support Resources
Cystic Fibrosis Foundation
- Cystic Fibrosis Foundation - The Cystic Fibrosis Foundation offers a wealth of information about the disease, available treatments, on-going research and donation opportunities.
- Western New York Chapter
Managing Cystic Fibrosis
Cystic Fibrosis Networking & News
Financial, Legal, Insurance ...
Community Resources
- Cystic Fibrosis Family Connection (CFFC)
- Mental Health Association - For patients with chronic illness AND a mental health concern; parents can call themselves.
- Crisis Nursery of Greater Rochester - Provides a safe, nurturing environment for children from birth to age 12 whose families are in crisis. For up to 72 hours, children can live at the nursery, cared for by trained staff.