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Dr. Robert Thompson Stone

Robert Thompson-Stone, M.D.
Center Director

  • Dr. Thompson-Stone is a pediatric neurologist who specializes in the treatment of children with acquired and inherited white matter (demyelinating) disorders such as inherited leukodystrophies, pediatric multiple sclerosis and related disorders. He is a graduate of New York University School of Medicine, and did residency training in adult and child neurology at the University of Rochester. He works closely with the Leukodystrophy Care Network and Hunter’s Hope Foundation to provide high-quality, personalized, and attentive care based on general consensus guidelines for best practice to children and families struggling with these conditions.

Dr. Alexander R. Paciorkowski

Alexander R. Paciorkowski, M.D.
Associate Director

Dr. Paciorkowski is a pediatric neurologist who specializes in children with genetic disorders that effect the brain. He attended University of Connecticut for his pediatrics and genetics training, and Washington University in St. Louis for child neurology training. He has significant expertise in genetic testing and interpretation in children with undiagnosed white matter disorders.

Elaine Philipson

Elaine Philipson, MS, P.N.P.
Clinical Care Coordinating Provider

Ms Philipson has been a practicing pediatric nurse practitioner for over 20 years. Prior to completing her training as a PNP at University of Rochester School of Nursing she practiced as a Registered Nurse for several years and has experience caring for children with complex medical disorders and their families that spans her entire career.

Kathy Wright

Kathy Wright, R.N.
Registered Nurse

Lisa Luxemberg, LMSW

Lisa Luxemberg, L.M.S.W.
Social Worker