Lupus-related skin changes, complementary therapies and the latest research advances are the focus of a half-day education program for patients and caregivers. The event will be held 8:30 a.m. to 12:30 p.m. Saturday, Oct. 27, at the University of Rochester School of Nursing.
“This is a great opportunity to learn more about the many ways to cope with living with this complex disease and latest opportunities to participate in research,” said Jennifer Anolik, M.D., Ph.D., director of UR Medicine’s nationally recognized lupus clinic and research programs.
Dermatologist Dr. Christopher Richardson will lead a discussion of how lupus affects the skin, Anolik will share the latest research advances. Small group sessions will address yoga, nutrition, mindfulness and complementary therapies.
Lupus is an autoimmune disorder that affects about 1.5 million Americans, mainly women diagnosed during their childbearing years. It can cause joints to swell and attack the kidneys, heart, lungs and liver, leading to pain, dysfunction, and sometimes permanent damage to healthy tissues. Medication and consistent monitoring by physicians can bring the disease under control for most people. A fraction of patients, however, suffer a more extreme disease course, sometimes facing life-threatening problems.
University of Rochester Medical Centerlupus researchers lead laboratory and translational research programs to advance patient care. URMC is a main site for the National Institutes of Health Accelerating Medicines Partnership in Rheumatoid Arthritis and Lupus Network. The program brings together the NIH, biopharmaceutical companies, advocacy organizations and academic scientists designed to rapidly identify promising drug targets and develop much-needed new treatments for patients with these conditions.