Psychological Complications of Chronic Illness
Adolescence, alone, is a stressful developmental process even for physically healthy
teens. Chronic illness that happens during adolescence makes adolescent development
even more difficult. The chronic disorder, treatment, hospitalization, and surgery
(when necessary) all magnify concerns about physical appearance. They also interfere
with the process of gaining independence, and disrupt changing relationships with
parents and friends. Also, adolescent developmental issues complicate a teen's transition
toward taking responsibility for managing his or her illness and learning to do what
is needed in terms of recommended treatment.
Developmental complications of chronic illness
Adolescents who are faced with acute or chronic illness are more likely to experience
increased concerns and fears when their illness or healthcare needs conflict with
the following normal developmental issues:
Body image issues. Adolescents are normally focused on the physical changes happening in their bodies.
Chronic illness intensifies these concerns with fears or distortions related to their
illness. (Examples of this are fears that a surgical scar will interfere with physical
attractiveness or the ability to wear certain clothes):
Encourage adolescents to share their concerns related to their body and how it may
be affected by their illness or treatment.
Inform adolescents about anticipated physical effects of medicines and treatment.
Encourage discussion about ways to reduce or cope with the effects.
Developing independence. Chronic illness often interferes with an adolescent's comfort in becoming less dependent
on parents. Parents of chronically ill adolescents often are more resistant to the
adolescent's efforts to act independently. Some ways to address the conflict between
normal development of independence, while still addressing healthcare needs of the
chronic illness, include the following:
Involve adolescents in health-related discussions (for example, current concerns about
their illness, treatment choices).
Teach adolescents self-care skills related to their illness.
Encourage adolescents to monitor and manage their own treatment needs as much as possible.
Encourage the development of coping skills to address problems or concerns that might
arise related to their illness.
Relationships with peers. Chronic illness and treatment often interfere with time spent with peers or in the
school setting. This is the adolescent's primary social environment. Self-esteem issues
related to acceptance of one's self and concerns about acceptance by others are intensified
by chronic illness and related treatment needs. To address these concerns, consider
Encourage spending time with friends as much as possible.
Discuss concerns about what to share with friends.
Help adolescents find ways to respond if teased by peers.
Encourage and assist friends in being supportive.
Noncompliance with medical treatment and teens
As adolescents with chronic illness learn more about their illness and are encouraged
to take responsibility for its management, attempts to make their own decisions about
management are common. Teens may try decreasing their medicine or not taking it without
discussing this with their healthcare provider. While this behavior may be developmentally
normal, it may create the need for additional healthcare measures. Angry or self-conscious
feelings related to having a chronic illness, or poor judgment in how to cope with
their feelings about their illness, might also affect obeying the recommended treatment
or management techniques. For example, adolescent diabetics are more likely to use
poor judgment in making food choices when they are with their friends. It is important
for parents and healthcare professionals working with adolescent patients to help
the adolescent develop emotionally healthy ways of living with their chronic illness
and its management requirements. Some ways to help adolescents deal with the complications
chronic illness often imposes on development may include the following:
Encourage adolescents to share their ideas and concerns with healthcare professionals.
When an adolescent's chronic illness reaches an unstable state due to not following
treatment recommendations, encourage discussion of what happened rather than scold
Teach and encourage use of problem-solving skills related to their illness. Ask questions,
such as: "What do you think you would you do if ... ?"or "What do you think would
happen if ... ?" Encourage adolescents to ask you the same kinds of questions.
Seek mental health services when:
An adolescent seems overwhelmed with emotional issues related to living with a chronic
A pattern of not following treatment recommendations continues.
An adolescent's development regresses, overly dependent behavior continues, and/or
the adolescent withdraws from or gives up interest in activities that are appropriate
to his or her age.
Transplant-related issues and adolescents
The need for an organ transplant is difficult to understand, accept, and cope with
for anyone. The emotional and psychological stress impacts all family members.
For adolescents who are developing the ability to think in new ways and explore new
thoughts, the idea of facing transplantation stimulates thoughts, concerns, and questions
about their bodies, their relationships, and their lives.
Important factors in helping adolescents cope effectively with a transplantation experience
include the following:
Be honest with your teen about his or her illness and his or her healthcare needs.
Include your adolescent in discussions and decision-making related to the need for
transplantation, the benefits, and the risks involved. This is very important to helping
him or her cope with the process and life after transplant.
Supportive communication is vital. Encourage your adolescent to ask questions and
express his or her fears and feelings about how this affects his or her life.
Concerns about death and the possibility of dying are difficult to talk about. However,
it is important to address this topic with adolescents in any life-threatening situation.
Encourage humor, as it helps to reduce stress.
Encourage friends to visit your teen in the hospital, when possible.
Enlist the help of mental health professionals in addressing fears, feelings, and
behaviors that are difficult to deal with for your adolescent or for other family