Epilepsy and Seizures in Children
What is epilepsy in children?
Epilepsy is a brain condition that causes a child to have seizures. It is one of the
most common disorders of the nervous system. It affects children and adults of all
races and ethnic backgrounds.
The brain consists of nerve cells that communicate with each other through electrical
activity. A seizure occurs when one or more parts of the brain has a burst of abnormal
electrical signals that interrupt normal brain signals. Anything that interrupts the
normal connections between nerve cells in the brain can cause a seizure. This includes
a high fever, high or low blood sugar, alcohol or drug withdrawal, or a brain concussion.
But when a child has 2 or more seizures with no known cause, this is diagnosed as
There are different types of seizures. The type of seizure depends on which part and
how much of the brain is affected and what happens during the seizure. The 2 main
categories of epileptic seizures are focal (partial) seizure and generalized seizure.
Focal (partial) seizures
Focal seizures take place when abnormal electrical brain function occurs in one or
more areas of one side of the brain. Before a focal seizure, your child may have an
aura, or signs that a seizure is about to occur. This is more common with a complex
focal seizure. The most common aura involves feelings, such as deja vu, impending
doom, fear, or euphoria. Or your child may have visual changes, hearing abnormalities,
or changes in sense of smell. The 2 types of focal seizures are:
- Simple focal seizure. The symptoms depend on which area of the brain is affected. If the abnormal electrical
brain function is in the part of the brain involved with vision (occipital lobe),
your child’s sight may be altered. More often, muscles are affected. The seizure activity
is limited to an isolated muscle group. For example, it may only include the fingers,
or larger muscles in the arms and legs. Your child may also have sweating, nausea,
or become pale. Your child won’t lose consciousness in this type of seizure.
- Complex focal seizure. This type of seizure often occurs in the area of the brain that controls emotion and
memory function (temporal lobe). Your child will likely lose consciousness. This may
not mean he or she will pass out. Your child may just stop being aware of what's going
on around him or her. Your child may look awake, but have a variety of unusual behaviors.
These may range from gagging, lip smacking, running, screaming, crying, or laughing.
Your child may be tired or sleepy after the seizure. This is called the postictal
A generalized seizure occurs in both sides of the brain. Your child will lose consciousness
and be tired after the seizure (postictal state). Types of generalized seizures include:
- Absence seizure. This is also called petit mal seizure. This seizure causes a brief changed state of
consciousness and staring. Your child will likely maintain posture. His or her mouth
or face may twitch or eyes may blink rapidly. The seizure usually lasts no longer
than 30 seconds. When the seizure is over, your child may not recall what just occurred.
He or she may go on with activities as though nothing happened. These seizures may
occur several times a day. This type of seizure is sometimes mistaken for a learning
or behavioral problem. Absence seizures almost always start between ages 4 to 12.
- Atonic seizure. This is also called a drop attack. With an atonic seizure, your child has a sudden
loss of muscle tone and may fall from a standing position or suddenly drop his or
her head. During the seizure, your child will be limp and unresponsive.
- Generalized tonic-clonic seizure (GTC). This is also called grand mal seizure. The classic form of this kind of seizure has
5 distinct phases. Your child’s body, arms, and legs will flex (contract), extend
(straighten out), and tremor (shake). This is followed by contraction and relaxation
of the muscles (clonic period) and the postictal period. During the postictal period,
your child may be sleepy. He or she may have problems with vision or speech, and may
have a bad headache, fatigue, or body aches. Not all of these phases occur in everyone with
this type of seizure.
- Myoclonic seizure. This type of seizure causes quick movements or sudden jerking of a group of muscles.
These seizures tend to occur in clusters. This means that they may occur several times
a day, or for several days in a row.
What causes a seizure in a child?
A seizure can be caused by many things. These can include:
- An imbalance of nerve-signaling brain chemicals (neurotransmitters)
- Brain tumor
- Brain damage from illness or injury
A seizure may be caused by a combination of these. In most cases, the cause of a seizure
can’t be found.
What are the symptoms of a seizure in a child?
Your child’s symptoms depend on the type of seizure. General symptoms or warning signs
of a seizure can include:
- Jerking movements of the arms and legs
- Stiffening of the body
- Loss of consciousness
- Breathing problems or stopping breathing
- Loss of bowel or bladder control
- Falling suddenly for no apparent reason, especially when associated with loss of consciousness
- Not responding to noise or words for brief periods
- Appearing confused or in a haze
- Nodding head rhythmically, when associated with loss of awareness or consciousness
- Periods of rapid eye blinking and staring
During the seizure, your child’s lips may become tinted blue and his or her breathing
may not be normal. After the seizure, your child may be sleepy or confused.
The symptoms of a seizure may be like those of other health conditions. Make sure
your child sees his or her healthcare provider for a diagnosis.
How are seizures diagnosed in a child?
The healthcare provider will ask about your child’s symptoms and health history. You’ll
be asked about other factors that may have caused your child’s seizure, such as:
- Recent fever or infection
- Head injury
- Congenital health conditions
- Preterm birth
- Recent medicines
Your child may also have:
- A neurological exam
- Blood tests to check for problems in blood sugar and other factors
- Imaging tests of the brain, such as an MRI or CT scan
- Electroencephalogram, to test the electrical activity in your child’s brain
- Lumbar puncture (spinal tap), to measure the pressure in the brain and spinal canal
and test the cerebral spinal fluid for infection or other problems
How are seizures treated in a child?
The goal of treatment is to control, stop, or reduce how often seizures occur. Treatment
is most often done with medicine. Many types of medicines used to treat seizures and
epilepsy. Your child’s healthcare provider will need to identify the type of seizure
your child is having. Medicines are selected based on the type of seizure, age of
the child, side effects, cost, and ease of use. Medicines used at home are usually
taken by mouth as capsules, tablets, sprinkles, or syrup. Some medicines can be given
into the rectum or in the nose. If your child is in the hospital with seizures, medicine
may be given by injection or intravenously by vein (IV).
It is important to give your child medicine on time and as prescribed. The dose may
need to be adjusted for the best seizure control. All medicines can have side effects.
Talk with your child’s healthcare provider about possible side effects. If your child
has side effects, talk to the healthcare provider. Do not stop giving medicine to
your child. This can cause more or worse seizures.
While your child is taking medicine, he or she may need tests to see how well the
medicine is working. You may have:
- Blood tests. Your child may need blood tests often to check the level of medicine in his or her
body. Based on this level, the healthcare provider may change the dose of medicine.
Your child may also have blood tests to check the effects of the medicine on his or
her other organs.
- Urine tests. Your child’s urine may be tested to see how his or her body is reacting to the medicine.
- Electroencephalogram (EEG). An EEG is a procedure that records the brain's electrical activity. This is done by
attaching electrodes to the scalp. This test is done to see how medicine is helping
the electrical problems in your child’s brain.
Your child may not need medicine for life. Some children are taken off medicine if
they have had no seizures for 1 to 2 years. This will be determined by your child's
If medicine doesn’t work well enough for your child to control seizures or your child
has problems with side effects, the healthcare provider may advise other types of
treatment. Your child may be treated with any of the below:
A ketogenic diet is a type of diet is very high in fat, and very low in carbohydrates.
Enough protein is included to help promote growth. The diet causes the body to make
ketones. These are chemicals made from the breakdown of body fat. The brain and heart
work normally with ketones as an energy source. This special diet must be strictly
followed. Too many carbohydrates can stop ketosis. Researchers aren’t sure why the
diet works. But some children become seizure-free when put on the diet. The diet doesn’t
work for every child.
Vagus nerve stimulation (VNS)
This treatment sends small pulses of energy to the brain from one of the vagus nerves.
This is a pair of large nerves in the neck. If your child is age 12 or older and has
partial seizures that are not controlled well with medicine, VNS may be an option.
VNS is done by surgically placing a small battery into the chest wall. Small wires
are then attached to the battery and placed under the skin and around one of the vagus
nerves. The battery is then programmed to send energy impulses every few minutes to
the brain. When your child feels a seizure coming on, he or she may activate the impulses
by holding a small magnet over the battery. In many cases, this will help to stop
the seizure. VNS can have side effects such as hoarse voice, pain in the throat, or
change in voice.
Surgery may be done to remove the part of the brain where the seizures are occurring.
Or the surgery helps to stop the spread of the bad electrical currents through the
brain. Surgery may be an option if your child’s seizures are hard to control and always
start in one part of the brain that doesn’t affect speech, memory, or vision. Surgery
for epilepsy seizures is very complex. It is done by a specialized surgical team.
Your child may be awake during the surgery. The brain itself does not feel pain. If
your child is awake and able to follow commands, the surgeons are better able to check
areas of his or her brain during the procedure. Surgery is not an option for everyone
How can I help my child live with epilepsy?
You can help your child with epilepsy manage his or her health. Make sure to:
- If age-appropriate, make sure your child understands the type of seizure he or she
has, and the type of medicine that is needed.
- Know the dose, time, and side effects of all medicines. Give your child medicine exactly
- Talk with your child's healthcare provider before giving your child other medicines.
Medicines for seizures can interact with many other medicines. This can cause the
medicines to not work well, or cause side effects.
- Help your child avoid anything that may trigger a seizure. Make sure your child gets
enough sleep, as lack of sleep can trigger a seizure.
- Make sure your child visits his or her healthcare provider regularly. Have your child
tested as often as needed.
Keep in mind that your child may not need medicine for life. Talk with the healthcare
provider if your child has had no seizures for 1 to 2 years.
If your child’s seizures are controlled well, you may not need many restrictions on
activities. Make sure your child wears a helmet for sports such as skating, hockey,
and bike riding. Make sure your child has adult supervision while swimming.
When should I call my child’s healthcare provider?
Call the healthcare provider if:
- Your child’s symptoms get worse or do not get better
- Your child has side effects from medicine
Key points about epilepsy and seizures in children
- A seizure occurs when one or more parts of the brain has a burst of abnormal electrical
signals that interrupt normal signals
- There are many types of seizures. Each can cause different kinds of symptoms. These
range from slight body movements to loss of consciousness and convulsions.
- Epilepsy is when a person has 2 or more seizures with no known cause.
- Epilepsy is treated with medicine. In some cases, it may be treated with VNS or surgery.
- It’s important to avoid anything that triggers seizures. This includes lack of sleep.
Tips to help you get the most from a visit to your child’s healthcare provider:
- Know the reason for the visit and what you want to happen.
- Before your visit, write down questions you want answered.
- At the visit, write down the name of a new diagnosis, and any new medicines, treatments,
or tests. Also write down any new instructions your provider gives you for your child.
- Know why a new medicine or treatment is prescribed and how it will help your child.
Also know what the side effects are.
- Ask if your child’s condition can be treated in other ways.
- Know why a test or procedure is recommended and what the results could mean.
- Know what to expect if your child does not take the medicine or have the test or procedure.
- If your child has a follow-up appointment, write down the date, time, and purpose
for that visit.
- Know how you can contact your child’s provider after office hours. This is important
if your child becomes ill and you have questions or need advice.