Type 1 Diabetes Mellitus in Children
What is type 1 diabetes in children?
Diabetes is a condition in which the body can't make enough insulin, or can't use
insulin normally. Type 1 diabetes is an autoimmune disorder. The body's immune system damages the
cells in the pancreas that make insulin. Insulin is a hormone. It helps sugar (glucose) in
the blood get into cells of the body to be used as fuel. When glucose can’t enter
the cells, it builds up in the blood. This is called high blood sugar (hyperglycemia).
High blood sugar can cause problems all over the body. It can damage blood vessels
and nerves. It can harm the eyes, kidneys, and heart. It can also cause symptoms such
Type 1 diabetes mellitus is a long-term (chronic) condition. It may start at any age.
Insulin from the pancreas must be replaced with insulin injections or an insulin pump.
There are two forms of type 1 diabetes:
Immune-mediated diabetes. This is an autoimmune disorder in which the body's immune system damages the cells
in the pancreas that make insulin. This is the most common kind of type 1 diabetes.
Idiopathic type 1. This refers to rare forms of the disease with no known cause.
What causes type 1 diabetes in a child?
The cause of type 1 diabetes is unknown. Researchers think some people inherit a gene
than can cause type 1 diabetes if a trigger such as a viral infection occurs.
Which children are at risk for type 1 diabetes?
A child is more at risk for type 1 diabetes if he or she has any of these risk factors:
Has a family member with the condition
Is from Finland or Sardinia
Is age 4 to 6, or 10 to 14
What are the symptoms of type 1 diabetes in a child?
Type 1 diabetes often appears suddenly. In children, type 1 diabetes symptoms may
seem like flu symptoms. Symptoms can be different for each child. They can include:
High levels of glucose in the blood and urine when tested
Fluid loss (dehydration)
Frequent urination (a baby may need more diaper changes, or a toilet-trained child
may start wetting their pants or bed)
Extreme hunger but weight loss
Loss of appetite in younger children
Nausea and vomiting
Belly (abdominal) pain
Weakness and severe tiredness (fatigue)
Irritability and mood changes
Serious diaper rash that does get better with treatment
Fruity breath and fast breathing
Yeast infection in girls
The symptoms of type 1 diabetes can seem like other health conditions. Make sure your child
sees their healthcare provider for a diagnosis.
How is type 1 diabetes diagnosed in a child?
The healthcare provider will ask about your child’s symptoms and health history. They
may also ask about your family’s health history. They will give your child a physical
exam. Your child may also have blood tests, such as:
Fasting plasma glucose. The blood is tested after at least 8 hours of not eating.
Random plasma glucose. The blood is tested when there are symptoms of increased thirst, urination, and hunger.
A1C test. This test reflects the average amount of glucose in the blood over the last 2 to
3 months. An elevated A1C result can be used to diagnose diabetes.
How is type 1 diabetes treated in a child?
Children with type 1 diabetes must have daily injections of insulin to keep the blood glucose level
within normal ranges. Insulin is given either by injection or insulin pump. Your child’s
healthcare provider will show you how to give your child insulin with either method.
Treatment will also include:
Eating the right foods to manage blood glucose levels. This includes timing meals
and counting carbohydrates.
Exercise, to lower blood sugar
Regular blood testing to check blood-glucose levels
Regular urine testing to check ketone levels
What are possible complications of type 1 diabetes in a child?
Type 1 diabetes can cause:
Ketoacidosis. This is when blood sugar levels are very high and the body starts making ketones.
This is a very serious condition that needs to be treated right away in the hospital,
sometimes in the intensive care unit. If your child is not treated right away, they
are at risk for diabetic coma. A child with a diabetic coma loses consciousness because
of brain swelling. The brain swells because of the very high blood sugar levels.
Low blood sugar (hypoglycemia). This is also sometimes called an insulin reaction. This occurs when blood glucose
drops too low.
Your child’s healthcare provider will tell you how to prevent these problems.
Over time, high blood sugar levels can damage blood vessels. Balancing insulin, diet,
and activity can help keep blood sugar levels in the target range and help prevent
complications such as:
How can I help my child live with type 1 diabetes?
A type 1 diabetes diagnosis can be stressful for a child and his or her family. A
younger child may not understand all the life changes, such as glucose monitoring
and insulin injections. A child may feel:
Parents can help their child by treating them as a normal child with diabetes management
as just one aspect of their daily life.
Many areas have diabetes camps, support groups, and other organizations for children
with type 1 diabetes and their families. Talk with your child’s healthcare provider
for more information.
When should I call my child's healthcare provider?
Call your child's healthcare team if you need help. Also call the healthcare team
if your child:
Key points about type 1 diabetes in children
Type 1 diabetes mellitus is a long-term (chronic) condition in which blood glucose
levels are abnormally high. It may start at any age.
It is most often caused by an autoimmune disorder. The body's immune system destroys
the cells in the pancreas that make insulin.
Children with type 1 diabetes must have daily insulin shots to keep the blood glucose level
within normal ranges.
Without insulin, blood glucose levels continue to rise and death will occur.
With daily insulin injections, and other management activities, children with type
1 diabetes can lead active, healthy lives.
Tips to help you get the most from a visit to your child’s healthcare provider:
Know the reason for the visit and what you want to happen.
Before your visit, write down questions you want answered.
At the visit, write down the name of a new diagnosis, and any new medicines, treatments,
or tests. Also write down any new instructions your provider gives you for your child.
Know why a new medicine or treatment is prescribed and how it will help your child.
Also know what the side effects are.
Ask if your child’s condition can be treated in other ways.
Know why a test or procedure is recommended and what the results could mean.
Know what to expect if your child does not take the medicine or have the test or procedure.
If your child has a follow-up appointment, write down the date, time, and purpose
for that visit.
Know how you can contact your child’s provider after office hours. This is important
if your child becomes ill and you have questions or need advice.