Perinatal/Obstetrics Data Sharing
Obstetrics Data from the Finger Lakes Region of New York
Perinatal Data System (PDS) data is collected and used at designated hospitals and within the community for quality assurance, program planning and research purposes. Data is available for the years 1998 to present and is released according to the region's Data Access Policy. Persons interested in analyzing de-identified regional data or receiving a summary report may file a request by clicking on the appropriate data request form below, printing and signing the form and then faxing or emailing a signed copy to Rosemary Varga at (585) 461-4532 (please, email Rosemary to let her know that you have done this) or rosemary_varga@urmc.rochester.com. Questions regarding the data should be directed to Rosemary at 585-276-8737 or Rosemary_Varga@urmc.rochester.eduD
DataRelease-Aggregate-Summary
DataRelease-Hospital-Specific-Identified
DataRelease-Preliminary-to-Research
DataRelease-Research
DataRelease-Student
All variables collected in the PDS Core Module between 1998 and present are available for your review in the SPDS Data Dictionary SPDS-Data-Dictionary-2016_1 The 2004-present data collection form Work Booklet is also available. Please note that the following fields were added in 2017 - @1488 V405 $01. /* Newborn Hearing Screen*/
@1489 V406 $02. /* HS Equipment Type*/
@1491 V407 $02. /* HS Results-Left Ear*/
@1493 V408 $02. /* HS Results-Right Ear*/
@1495 V409 $08. /* HS Final Date*/
Changes were made by New York State to the variables being collected beginning January 1, 2004. Data guidelines for the information currently being collected are available in the NYS-Guidelines-2011
An added question - Do I need an IRB approval? www.rochester.edu/ohsp/