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Finger Lakes Regional Perinatal Program

URMC / Finger Lakes Regional Perinatal Program / Perinatal Data System / Data Sharing

 

Perinatal/Obstetrics Data Sharing

Obstetrics Data from the Finger Lakes Region of New York

Perinatal Data System (PDS) data is collected and used at designated hospitals and within the community for quality assurance, program planning and research purposes. Data is available for the years 1998 to present and is released according to the region's Data Access Policy. Persons interested in analyzing de-identified regional data or receiving a summary report may file a request by clicking on the appropriate data request form below, printing and signing the form and then faxing or emailing a signed copy to Sarah McKinney at (585) 461-4532 (please, email Sarah to let her know that you have done this) or sarah_mckinney@urmc.rochester.edu. Questions regarding the data should be directed to Sarah at 585-276-8737 or sarah_mckinney@urmc.rochester.edu.

DataRelease-Aggregate-Summary

DataRelease-Hospital-Specific-Identified

DataRelease-Research

DataRelease-Student

All variables collected in the PDS Core Module between 1998 and present are available for your review in the SPDS Data Dictionary SPDS-Data-Dictionary-2016_1 The 2004-present data collection form Work Booklet is also available. Please note that the following fields were added in 2017 - @1488   V405   $01.   /* Newborn Hearing Screen*/
                                                                                       @1489   V406   $02.   /* HS Equipment Type*/
                                                                                       @1491   V407   $02.   /* HS Results-Left Ear*/
                                                                                       @1493   V408   $02.  /* HS Results-Right Ear*/
                                                                                       @1495   V409   $08.   /* HS Final Date*/

 

Changes were made by New York State to the variables being collected beginning January 1, 2004. Data guidelines for the information currently being collected are available in the NYS-Guidelines-2011

An added question - Do I need an IRB approval? www.rochester.edu/ohsp/