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Social Engagement Coaching for Caregivers

Research Question:
Does an in-home program, called Social Engage Coaching, help reduce stress and enhance social connections in caregivers of a family member with dementia?

Basic Study Information

Taking care of a loved one who has dementia can become increasingly difficult. Over time, people can experience more stress as they adjust to their progressing role as caregiver. The purpose of this study is to evaluate the effects of the ‘Social Engage’ coaching program on dementia caregivers, and to determine if a computer-based planning tool can further improve program effects. The study will also examine how subjective social connectedness may relate to the ways in which people respond to social cues. The Social Engage program involves up to nine 30-minute virtual sessions (such as via Zoom) conducted over 8-10 weeks. Sessions are flexible and individualized to help you enhance your relationships and improve well-being while managing caregiving stress. Participation also involves two in-person study visits, one before and one after completing the Social Engage program. Visits are flexibly scheduled and parking is free. Study visits involve answering some questions about yourself, including your mood and stress, and what caregiving has been like for you. Visits also include some computer-based tasks.

Location: University of Rochester
Study Reference #: STUDY00007800

Lead Researcher (Principal Investigator)

Lead Researcher:  Kathi Heffner

Study Contact Information

Study Coordinator: Kelly Bellenger-Fedele
Phone: (585) 276-6204

Additional Study Details

Study Details:
Travel is required only for the two study visits (at the UR School of Nursing); all other study activities are conducted remotely by phone or Zoom. Participation is only for the person caring for a loved one (the caregiver); nothing would be requested of the individual with dementia. All information we collect from you is kept strictly confidential and secure.

Parking:  Free
Reimbursement:  Yes
Payment Details:  You will be paid up to $100 for your participation.

Learn More About These Conditions

More information about Dementia

More information about Dementia, Multi-Infarct

More information about Dementia, Vascular

More information about Dementias

More information about Frontotemporal Dementia

More information about Stress, Psychological

More information about Vascular dementia

More information about Healthy

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