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Lainie Friedman Ross, M.D., Ph.D.

Lainie Friedman Ross, M.D., Ph.D.

Pediatrics, General Pediatrics

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About Me

Professional Background

Lainie Ross, MD, PhD, joined the University of Rochester in January 2023 as Dean’s Professor and inaugural Chair, Department of Health Humanities and Bioethics and Director of the Paul M. Schyve MD Center for Bioethics with a secondary appointment in the Department of Pediatrics. Prior to her move, ...
Lainie Ross, MD, PhD, joined the University of Rochester in January 2023 as Dean’s Professor and inaugural Chair, Department of Health Humanities and Bioethics and Director of the Paul M. Schyve MD Center for Bioethics with a secondary appointment in the Department of Pediatrics. Prior to her move, Dr. Ross was the Carolyn and Matthew Bucksbaum Professor of Clinical Medical Ethics; Professor, Departments of Pediatrics, Medicine, Surgery and the College; Co-Director of the Institute for Translational Medicine, and Associate Director of the MacLean Center for Clinical Medical Ethics at the University of Chicago. Clinically, Dr. Ross is a primary care pediatrician. She ran the clinical ethics consultation service at the University of Chicago for 20 years and the research ethics consultation for 25 years.

Dr. Ross earned her undergraduate degree from the School of Public and International Affairs from Princeton University (1982), her medical degree from the University of Pennsylvania Perelman School of Medicine (1986), and her doctorate in philosophy from Yale University (1996). She trained in Pediatrics at the Children’s Hospital of Philadelphia (1986-1988)and New York-Columbia Presbyterian Morgan Stanley Children's Hospital (1988-89).

Dr. Ross has lectured nationally and internationally on ethical and policy issues in organ transplantation, pediatrics, genetics, and human subjects protections. She has published five books and over 400 articles. She is currently writing a 6th book examining the ethical issues related to siblings in health care that received funding from the National Library of Medicine. Her five areas of expertise are: 1) pediatric ethics and policy; 2) genetic ethics and policy; 3) transplantation ethics and policy; 4) research ethics, publication ethics, and human subjects protection; and 5) gender and racial equity across the 3 academic pillars.

Dr. Ross has received funding from the Illinois Department of Public Health, the Greenwall Foundation, the Robert Wood Johnson, Jr Foundation, the National Institutes of Health, and the Canadian Institute of Health Research. She received several teaching/mentorship awards at the University of Chicago, and has received national awards including: Kellogg National Leadership Fellowship Class XVI (1997-2000), the second recipient of the Patricia Price Brown Prize in Biomedical Ethics from the Oklahoma Health Sciences University (2009), a John Simon Guggenheim Memorial Foundation Fellowship (2014), and The American Academy of Pediatrics (Section on Bioethics) William G. Bartholome Award for Ethical Excellence (2015).

Faculty Appointments

Professor - Department of Health Humanities and Bioethics (SMD)

Chair - Department of Health Humanities and Bioethics (SMD)

Dean's Professorship - Department of Health Humanities and Bioethics (SMD)

Director, Paul M. Schyve, MD Center for Bioethics - Department of Health Humanities and Bioethics (SMD)

Professor - Department of Pediatrics (SMD) - Joint

Professor - Department of Philosophy RC (RC) - Joint

Connect with Lainie Friedman Ross, M.D., Ph.D.

Credentials

Residency & Fellowship

Residency, Internship/Residency, Morgan Stanley Children's Hospital of NY-Presbyterian. 1988 - 1989

Residency, Internship/Residency, Children's Hospital of Philadelphia. 1987 - 1988

Internship, Pediatrics, Children's Hospital of Philadelphia. 1986 - 1987

Education

PHD | Yale University. 1996

MD | Perelman School Of Medicine At The University Of Pennsylvania (USA). Pediatrics. 1986

Awards

National Academy of Medicine. 2023

Honorary Degree in the Humanities. 2023

American Academy of Pediatrics William G. Bartholome Award for Ethical Excellence. 2015

John Simon Guggenheim Memorial Foundation Fellowship. 2014 - 2015

Hastings Center Fellow. 2009

Patricia Price Brown Prize in Biomedical Ethics. 2009

Kellogg National Leadership Fellow Class of XVI. 1997 - 2000

Publications

Journal Articles

Against the Equality of Moral Spheres in Healthcare.

Herington J, Ross LF

The American journal of bioethics : AJOB.. 2023 December 23 (12):23-25. Epub 11/27/2023.

International Pediatric Transplant Association (IPTA) position statement supporting prioritizing pediatric recipients for deceased donor organ allocation.

Freeman MA, Botha J, Brewer E, Damian M, Ettenger R, Gambetta K, Lefkowitz DS, Ross LF, Superina R, McCulloch MI, Blydt-Hansen T,

Pediatric transplantation.. 2023 February 27 Suppl 1 :e14358. Epub 12/05/2022.

The Dead Donor Rule Does Require that the Donor is Dead.

Ross L

The American journal of bioethics : AJOB.. 2023 February 23 (2):12-14. Epub 1900 01 01.

Diagnosis, treatment and disclosure: A qualitative exploration of participant challenges in a Monogenic Diabetes Registry.

Noohi F, Sundaresan M, Naylor R, Ross LF

Genetics in medicine : official journal of the American College of Medical Genetics.. 2023 January 19 :100019. Epub 01/19/2023.

Is it Reasonable to Demand Reasons in Pediatric Decision-Making?

Ross LF

The Journal of pediatrics.. 2022 December 251 :36-37. Epub 09/17/2022.

Expounding on Shared Decision-Making in Pediatrics.

Ross LF

The Journal of pediatrics.. 2022 December 251 :3-5. Epub 09/18/2022.

50 Years Ago in TheJournalofPediatrics: Points to Consider: Sickle Cell Screening.

Ross LF

The Journal of pediatrics.. 2022 December 251 :126. Epub 1900 01 01.

The case against COVID-19 vaccine mandates in pediatric solid organ transplantation.

Ross LF, Opel DJ

Pediatric transplantation.. 2022 November 26 (7):e14243. Epub 02/12/2022.

Race in the Reading: A Study of Problematic Uses of Race and Ethnicity in a Prominent Pediatrics Textbook.

Li A, Deyrup AT, Graves JL, Ross LF

Academic medicine : journal of the Association of American Medical Colleges.. 2022 October 197 (10):1521-1527. Epub 09/23/2022.

Clarifying the Blurry Boundaries between Research and Clinical Care.

Noohi F, Ross LF

The American journal of bioethics : AJOB.. 2022 October 22 (10):96-98. Epub 1900 01 01.

50 Years Ago in TheJournalofPediatrics: Public Health Redux.

Bartlett AH, Ross LF

The Journal of pediatrics.. 2022 September 248 :38. Epub 1900 01 01.

The Use of Race, Ethnicity, and Social Determinants of Health in Three Pediatrics Journals.

Williams WA, Ross LF

The Journal of pediatrics.. 2022 August 247 :81-86.e3. Epub 03/29/2022.

The philosopher as partner: an introduction to the scholarship of Robert M. Veatch.

Ross LF

Theoretical medicine and bioethics.. 2022 August 43 (4):179-185. Epub 07/13/2022.

A festschrift in memory of Robert M. Veatch.

Ross LF

Theoretical medicine and bioethics.. 2022 August 43 (4):177-178. Epub 07/20/2022.

The Journal of Pediatrics Turns 90! A Perspective on Progress, Opportunities, and Challenges.

Balistreri WF, Daniels SR, Welch TR, Long SS, Jobe AH, deRegnier RA, Ross LF, Fisher PG, Goodman DM, Jewett KC

The Journal of pediatrics.. 2022 July 246 :235-241. Epub 1900 01 01.

An Ethical Analysis of Newborn Congenital Cytomegalovirus Screening.

Pesch MH, Danziger P, Ross LF, Antommaria AHM

Pediatrics.. 2022 June 1149 (6)Epub 1900 01 01.

COVID-19 Vaccine Refusal and Organ Transplantation.

Ross LF

American journal of kidney diseases : the official journal of the National Kidney Foundation.. 2022 June 79 (6):771-773. Epub 03/04/2022.

Revise the Uniform Determination of Death Act to Align the Law With Practice Through Neurorespiratory Criteria.

Omelianchuk A, Bernat J, Caplan A, Greer D, Lazaridis C, Lewis A, Pope T, Ross LF, Magnus D

Neurology.. 2022 March 2998 (13):532-536. Epub 01/25/2022.

Correspondence on "Exploring the motivations of research participants who chose not to learn medically actionable secondary findings about themselves" by Schupmann et al.

Clayton EW, Ross LF, Rothstein MA

Genetics in medicine : official journal of the American College of Medical Genetics.. 2022 February 24 (2):499-500. Epub 11/30/2021.

SARS-CoV-2 vaccine testing and trials in the pediatric population: biologic, ethical, research, and implementation challenges.

Cooper DM, Afghani B, Byington CL, Cunningham CK, Golub S, Lu KD, Radom-Aizik S, Ross LF, Singh J, Smoyer WE, Lucas CT, Tunney J, Zaldivar F, Ulloa ER

Pediatric research.. 2021 November 90 (5):966-970. Epub 02/24/2021.

"Medical Benefit" and Therapeutic Misconception: The Ethical Conundrum of Phase 1 Pediatric Oncology Research.

Hester DM, Ross LF

The Journal of pediatrics.. 2021 November 238 :11-13. Epub 07/03/2021.

50 Years Ago in TheJournalofPediatrics: Attention-Deficit/Hyperactivity Disorder Contextualized.

Sobotka SA, Ross LF

The Journal of pediatrics.. 2021 October 237 :58. Epub 1900 01 01.

First world consensus conference on pancreas transplantation: Part I-Methods and results of literature search.

Boggi U, Vistoli F, Marchetti P, Kandaswamy R, Berney T,

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2021 September 21 Suppl 3 (Suppl 3):1-16. Epub 07/29/2021.

First World Consensus Conference on pancreas transplantation: Part II - recommendations.

Boggi U, Vistoli F, Andres A, Arbogast HP, Badet L, Baronti W, Bartlett ST, Benedetti E, Branchereau J, Burke GW, Buron F, Caldara R, Cardillo M, Casanova D, Cipriani F, Cooper M, Cupisti A, Davide J, Drachenberg C, de Koning EJP, Ettorre GM, Fernandez Cruz L, Fridell JA, Friend PJ, Furian L, Gaber OA, Gruessner AC, Gruessner RWG, Gunton JE, Han DJ, Iacopi S, Kauffmann EF, Kaufman D, Kenmochi T, Khambalia HA, Lai Q, Langer RM, Maffi P, Marselli L, Menichetti F, Miccoli M, Mittal S, Morelon E, Napoli N, Neri F, Oberholzer J, Odorico JS, Öllinger R, Oniscu G, Orlando G, Ortenzi M, Perosa M, Perrone VG, Pleass H, Redfield RR, Ricci C, Rigotti P, Paul Robertson R, Ross LF, Rossi M, Saudek F, Scalea JR, Schenker P, Secchi A, Socci C, Sousa Silva D, Squifflet JP, Stock PG, Stratta RJ, Terrenzio C, Uva P, Watson CJE, White SA, Marchetti P, Kandaswamy R, Berney T

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2021 September 21 Suppl 3 (Suppl 3):17-59. Epub 07/29/2021.

Diversity, Equity, and Inclusion in The Journal of Pediatrics.

, Fisher PG, Long SS, Cole CR, Cohran VC, Fuentes-Afflick E, Krantz I, Lion KC, McDevitt M, Ott MA, Ross LF, Toltzis P, Washington RL, Welch TR, Balistreri WF

The Journal of pediatrics.. 2021 September 236 :4. Epub 07/15/2021.

Ethics of Organ Transplantation in Persons with Intellectual Disability.

Ross LF

The Journal of pediatrics.. 2021 August 235 :6-9. Epub 05/21/2021.

Gender and race/ethnicity differences in living kidney donor demographics: Preference or disparity?

Ross LF, Thistlethwaite JR

Transplantation reviews.. 2021 July 35 (3):100614. Epub 04/09/2021.

Analyzing Trends in the Global Surge of Coronavirus Disease 2019 Pandemic Submissions to The Journal of Pediatrics.

Williams WA, Li A, Goodman DM, Ross LF

The Journal of pediatrics.. 2021 June 233 :273-276.e1. Epub 02/10/2021.

Mandatory Coronavirus Disease 2019 Vaccine for Children?-Reply.

Opel DJ, Diekema DS, Ross LF

JAMA pediatrics.. 2021 May 1175 (5):534. Epub 1900 01 01.

Reflections on Ethics and Advocacy in Child Health (REACH): Creating a Forum for Ethical Dialogue.

Ross LF, Ott MA

The Journal of pediatrics.. 2021 April 231 :5-6. Epub 01/18/2021.

Should We Mandate a COVID-19 Vaccine for Children?

Opel DJ, Diekema DS, Ross LF

JAMA pediatrics.. 2021 February 1175 (2):125-126. Epub 1900 01 01.

Pediatric Intensivist and Pediatric Neurologist Perspectives and Practices on Death by Neurologic Criteria.

Mataya L, Ross LF, Ghavam A, Paquette ET

The Journal of clinical ethics.. 2021 32 (3):195-205. Epub 1900 01 01.

Reopening K-12 Schools in the Era of Coronavirus Disease 2019: Review of State-Level Guidance Addressing Equity Concerns.

Li A, Harries M, Ross LF

The Journal of pediatrics.. 2020 December 227 :38-44.e7. Epub 08/29/2020.

Why Most Bad Decisions About Vaccines Do Not Constitute Child Neglect.

Salter EK, Ross LF

Pediatric neurology.. 2020 December 113 :85-87. Epub 09/17/2020.

The Harms of Carrier Status Identification: A Cautionary Warning Against Newborn Sequencing.

Williams WA, Ross LF

The Journal of pediatrics.. 2020 September 224 :22-23. Epub 05/15/2020.

50 Years Ago in The Journal of Pediatrics: Plus ça Change: Halfway Technologies in Pediatrics.

Ross LF

The Journal of pediatrics.. 2020 September 224 :29. Epub 1900 01 01.

Reopening Schools Safely: The Case for Collaboration, Constructive Disruption of Pre-Coronavirus 2019 Expectations, and Creative Solutions.

Cooper DM, Guay-Woodford L, Blazar BR, Bowman S, Byington CL, Dome J, Forthal D, Konstan MW, Kuppermann N, Liem RI, Ochoa ER, Pollock BH, Price OA, Ramsey BW, Ross LF, Sokol RJ, Wright RJ

The Journal of pediatrics.. 2020 August 223 :183-185. Epub 05/21/2020.

Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals.

Ross LF

Pediatrics.. 2020 August 146 (Suppl 1):S33-S41. Epub 1900 01 01.

Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean.

Ross LF

Pediatrics.. 2020 August 146 (Suppl 1):S60-S65. Epub 1900 01 01.

The Ethical Limits of Children's Participation in Clinical Research.

Ross LF

The Hastings Center report.. 2020 July 50 (4):12-13. Epub 1900 01 01.

Surrogate Decision Making for Children: Who Should Decide?

Fishman M, Paquette ET, Gandhi R, Pendergrast TR, Park M, Flanagan E, Ross LF

The Journal of pediatrics.. 2020 May 220 :221-226. Epub 11/08/2019.

50 Years Ago in TheJournalofPediatrics: Shifting Attitudes toward the Disclosure of Serious Illness.

Ross LF

The Journal of pediatrics.. 2020 May 220 :48. Epub 1900 01 01.

50 Years Ago in TheJournalofPediatrics: Renal Homotransplantations in Children.

Ross LF

The Journal of pediatrics.. 2020 March 218 :15. Epub 1900 01 01.

Health Care Surrogacy Laws Do Not Adequately Address the Needs of Minors.

Gandhi R, Paquette ET, Ross LF, Flanagan E

The Hastings Center report.. 2020 March 50 (2):16-18. Epub 1900 01 01.

50 Years Ago in TheJournal ofPediatrics: A New Diagnostic Test for Hemoglobin S.

Ross LF

The Journal of pediatrics.. 2020 January 216 :18. Epub 1900 01 01.

Abusive Head Trauma and Parental Participation in Pediatric Decision Making.

Paquette ET, Ross LF

The Journal of clinical ethics.. 2020 31 (2):121-125. Epub 1900 01 01.

The Pediatrician's Moral Obligation to Counsel Directively Against Youth Tackle Football.

Ross LF

The Journal of clinical ethics.. 2020 31 (4):331-337. Epub 1900 01 01.

Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.

Ross LF, Clayton EW

Pediatrics.. 2019 December 144 (6)Epub 11/12/2019.

Delegating Decision-Making Authority To a Surrogate.

Ross LF

The Annals of thoracic surgery.. 2019 December 108 (6):1615-1616. Epub 1900 01 01.

Association of Transplant Center With Survival Benefit Among Adults Undergoing Heart Transplant in the United States.

Parker WF, Anderson AS, Gibbons RD, Garrity ER, Ross LF, Huang ES, Churpek MM

JAMA.. 2019 November 12322 (18):1789-1798. Epub 1900 01 01.

Child maltreatment and modifying factors in Shanghai, China.

Ross LF

The Journal of pediatrics.. 2019 October 213 :1-3. Epub 1900 01 01.

African-Americans with End Stage Renal Disease in the Early Years of Kidney Transplantation.

Wang JY, Lederer SE, Ross LF

Journal of the National Medical Association.. 2019 August 111 (4):352-362. Epub 02/16/2019.

Spinal Muscular Atrophy: Past, Present, and Future.

Ross LF, Kwon JM

NeoReviews.. 2019 August 20 (8):e437-e451. Epub 1900 01 01.

Missed Opportunities in the Preparticipation Physical Examination for High School Athletes.

Perlman M, Williams WA, Ross LF

Clinical pediatrics.. 2019 May 58 (5):547-554. Epub 02/21/2019.

Living Donation by Individuals with Life-Limiting Conditions.

Ross LF, Thistlethwaite JR

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2019 March 47 (1):112-122. Epub 1900 01 01.

50 Years Ago in The Journal of Pediatrics: Prenatal Detection of Genetic Defects.

Ross LF

The Journal of pediatrics.. 2019 January 204 :45. Epub 1900 01 01.

Better than Best (Interest Standard) in Pediatric Decision Making.

Ross LF

The Journal of clinical ethics.. 2019 30 (3):183-195. Epub 1900 01 01.

In Further Defense of "Better than Best (Interest)".

Ross LF

The Journal of clinical ethics.. 2019 30 (3):232-239. Epub 1900 01 01.

Developing an ethics framework for living donor transplantation.

Ross LF, Thistlethwaite JR

Journal of medical ethics.. 2018 December 44 (12):843-850. Epub 07/04/2018.

Public Attitudes and Knowledge About Youth Sports Participation and Concussion Risk in an Urban Area.

Taranto E, Fishman M, Garvey K, Perlman M, Benjamin HJ, Ross LF

Journal of the National Medical Association.. 2018 December 110 (6):635-643. Epub 10/28/2018.

Respecting Choice in Definitions of Death.

Ross LF

The Hastings Center report.. 2018 November 48 Suppl 4 :S53-S55. Epub 1900 01 01.

Protect NIH's DNA advisory committee.

Adelman ZN, Albritton LM, Boris-Lawrie K, Buchmeier MJ, Cannon P, Cho M, DiGiusto D, Donahue JK, Federoff HJ, Hammarskjold ML, Hardison AD, Hearing P, Lee B, Lee DA, Porteus MH, Ross LF, Ross SR, Wooley DP, Zoloth L

Science.. 2018 October 26362 (6413):409-410. Epub 1900 01 01.

The Complexities of Ascertaining Public Preferences for Newborn Screening Policies.

Ross LF, Paquette ET

The Journal of pediatrics.. 2018 October 201 :8-9. Epub 07/17/2018.

50 Years Ago in The Journal of Pediatrics: Maternal Phenylketonuria: Implications for Growth and Development.

Ross LF, Paul DB

The Journal of pediatrics.. 2018 October 201 :121. Epub 1900 01 01.

It is time to revise the kidney allocation system to restore the pediatric advantage.

Gallo AE, Parker WF, Thistlethwaite JR, Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2018 September 18 (9):2365-2366. Epub 05/22/2018.

Unspoken ambivalence in kinship obligation in living donation.

Halverson CME, Crowley-Matoka M, Ross LF

Progress in transplantation : official publication, North American Transplant Coordinators Organization ... [et al.]. 2018 September 28 (3):250-255. Epub 06/12/2018.

The Role of Gender in Publication in The Journal of Pediatrics 2015-2016: Equal Reviews, Unequal Opportunities.

Williams WA, Garvey KL, Goodman DM, Lauderdale DS, Ross LF

The Journal of pediatrics.. 2018 September 200 :254-260.e1. Epub 07/17/2018.

Pediatric Decision Making Requires Both Guidance and Intervention Principles.

Paquette ET, Ross LF

The American journal of bioethics : AJOB.. 2018 August 18 (8):44-46. Epub 1900 01 01.

Ethical Analysis and Policy Recommendations Regarding Domino Liver Transplantation.

Schenck D, Mazariegos GV, Thistlethwaite JR, Ross LF

Transplantation.. 2018 May 102 (5):803-808. Epub 1900 01 01.

Impact of the kidney allocation system on young pediatric recipients.

Parker WF, Ross LF, Richard Thistlethwaite J, Gallo AE

Clinical transplantation.. 2018 April 32 (4):e13223. Epub 03/14/2018.

Describing how children with life threatening complex chronic conditions die.

Ross LF

The Journal of pediatrics.. 2018 February 193 :1-2. Epub 1900 01 01.

Prisoners as Living Donors: A Vulnerabilities Analysis.

Ross LF, Thistlethwaite JR

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2018 January 27 (1):93-108. Epub 1900 01 01.

50 Years Ago in The Journal of Pediatrics: Editorial Comment: Therapeutic Orphans.

Ross LF

The Journal of pediatrics.. 2018 January 192 :59. Epub 1900 01 01.

Gender Differences in the Authorship of Original Research in Pediatric Journals, 2001-2016.

Fishman M, Williams WA, Goodman DM, Ross LF

The Journal of pediatrics.. 2017 December 191 :244-249.e1. Epub 10/12/2017.

Threading the Needle for the Tiniest Babies.

Andrews B, Ross LF

The Journal of pediatrics.. 2017 November 190 :8-9. Epub 1900 01 01.

Ethical and Logistical Issues Raised by the Advanced Donation Program "Pay It Forward" Scheme.

Ross LF, Rodrigue JR, Veatch RM

The Journal of medicine and philosophy.. 2017 October 142 (5):518-536. Epub 1900 01 01.

Reply.

Ross LF, Fishman M

The Journal of pediatrics.. 2017 August 187 :336-337. Epub 05/15/2017.

Attitudes and Counseling Practices of Pediatricians Regarding Youth Sports Participation and Concussion Risks.

Fishman M, Taranto E, Perlman M, Quinlan K, Benjamin HJ, Ross LF

The Journal of pediatrics.. 2017 May 184 :19-25. Epub 02/24/2017.

50 Years Ago in The Journal of Pediatrics: Conference on Treatment of Phenylketonuria.

Paul DB, Ross LF

The Journal of pediatrics.. 2017 January 180 :169. Epub 1900 01 01.

The Best Interest Standard: Same Name but Different Roles in Pediatric Bioethics and Child Rights Frameworks.

Ross LF, Swota AH

Perspectives in biology and medicine.. 2017 60 (2):186-197. Epub 1900 01 01.

Attitudes of Lay Stakeholders and Transplant Professionals About Disclosure to Living Kidney Donors in Exchanges and Chains.

Grubbs A, Meadow J, Thistlethwaite JR, Ross LF

Progress in transplantation : official publication, North American Transplant Coordinators Organization ... [et al.]. 2016 December 26 (4):299-308. Epub 09/20/2016.

Kidney Donor Profile Index Does Not Accurately Predict the Graft Survival of Pediatric Deceased Donor Kidneys.

Parker WF, Thistlethwaite JR, Ross LF

Transplantation.. 2016 November 100 (11):2471-2478. Epub 1900 01 01.

50 Years Ago in TheJournal ofPediatrics: Evaluation of the Effects of Terminating the Diet in Phenylketonuria.

Paul DB, Ross LF

The Journal of pediatrics.. 2016 October 177 :113. Epub 1900 01 01.

Introducing Genetic Tests With Uncertain Implications in Living Donor Kidney Transplantation: ApoL1 as a Case Study.

Ross LF, Thistlethwaite JR

Progress in transplantation : official publication, North American Transplant Coordinators Organization ... [et al.]. 2016 September 26 (3):203-6. Epub 06/14/2016.

50 Years Ago in TheJournal ofPediatrics: Legislation and Advances in Medical Knowledge-Acceleration or Inhibition?

Paul DB, Brosco JP, Ross LF

The Journal of pediatrics.. 2016 August 175 :53. Epub 1900 01 01.

Should Medical Errors Be Disclosed to Pediatric Patients? Pediatricians' Attitudes Toward Error Disclosure.

Kolaitis IN, Schinasi DA, Ross LF

Academic pediatrics.. 2016 July 16 (5):482-488. Epub 08/29/2015.

The 1966 Ciba Symposium on Transplantation Ethics: 50 Years Later.

Ross LF, Thistlethwaite JR

Transplantation.. 2016 June 100 (6):1191-7. Epub 1900 01 01.

Pediatric Resident Preparedness and Educational Experiences With Informed Consent.

Nickels AS, Tilburt JC, Ross LF

Academic pediatrics.. 2016 April 16 (3):298-304. Epub 10/13/2015.

Theory and Practice of Pediatric Bioethics.

Ross LF

Perspectives in biology and medicine.. 2016 58 (3):267-80. Epub 1900 01 01.

Living Kidney Donors Who Develop Kidney Failure: Excerpts of Their Thoughts.

Halverson CM, Wang JY, Poulson M, Karlin J, Crowley-Matoka M, Ross LF

American journal of nephrology.. 2016 43 (6):389-96. Epub 05/25/2016.

To tell or not to tell: attitudes of transplant surgeons and transplant nephrologists regarding the disclosure of recipient information to living kidney donors.

Meadow J, Thistlethwaite JR, Rodrigue JR, Mandelbrot DA, Ross LF

Clinical transplantation.. 2015 December 29 (12):1203-12. Epub 11/20/2015.

Age and equity in liver transplantation: An organ allocation model.

Cucchetti A, Ross LF, Thistlethwaite JR, Vitale A, Ravaioli M, Cescon M, Ercolani G, Burra P, Cillo U, Pinna AD

Liver transplantation : official publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society.. 2015 October 21 (10):1241-9. Epub 1900 01 01.

Disclosing Health and Health Behavior Information between Living Donors and Their Recipients.

Mataya L, Meadow J, Thistlethwaite JR, Mandelbrot DA, Rodrigue JR, Ross LF

Clinical journal of the American Society of Nephrology : CJASN.. 2015 September 410 (9):1609-16. Epub 08/13/2015.

50 Years Ago in The Journal of Pediatrics: Phenylketonuria in a Negro Infant.

Ross LF, Paul DB, Brosco JP

The Journal of pediatrics.. 2015 August 167 (2):304. Epub 1900 01 01.

Living kidney donors and ESRD.

Ross LF

American journal of kidney diseases : the official journal of the National Kidney Foundation.. 2015 July 66 (1):23-7. Epub 04/30/2015.

Racial disparities in reaching the renal transplant waitlist: is geography as important as race?

Saunders MR, Lee H, Alexander GC, Tak HJ, Thistlethwaite JR, Ross LF

Clinical transplantation.. 2015 June 29 (6):531-8. Epub 04/27/2015.

Ethical and policy issues in newborn screening of children for neurologic and developmental disorders.

Ross LF

Pediatric clinics of North America.. 2015 June 62 (3):787-98. Epub 04/07/2015.

Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children.

Barajas M, Ross LF

The Journal of pediatrics.. 2015 May 166 (5):1276-1282.e7. Epub 02/26/2015.

Reporting incidental findings in genomic scale clinical sequencing--a clinical laboratory perspective: a report of the Association for Molecular Pathology.

Hegde M, Bale S, Bayrak-Toydemir P, Gibson J, Bone Jeng LJ, Joseph L, Laser J, Lubin IM, Miller CE, Ross LF, Rothberg PG, Tanner AK, Vitazka P, Mao R

The Journal of molecular diagnostics : JMD.. 2015 March 17 (2):107-17. Epub 02/12/2015.

Universal state newborn screening programs can reduce health disparities.

Brosco JP, Grosse SD, Ross LF

JAMA pediatrics.. 2015 January 169 (1):7-8. Epub 1900 01 01.

Consent Is the Cornerstone of Ethically Valid Research: Ethical Issues in Recontacting Subjects Who Enrolled in Research as a Minor.

Paquette ET, Ross LF

The American journal of bioethics : AJOB.. 2015 15 (10):61-3. Epub 1900 01 01.

Adding Another Voice to the Living Donor Kidney Transplant Discussions at the CIBA Symposium of 1966.

Wang JY, Thistlethwaite JR, Ross LF

Perspectives in biology and medicine.. 2015 58 (4):379-94. Epub 1900 01 01.

Outcomes after kidney donation.

Ross LF, Thistlethwaite JR

JAMA.. 2014 July 2312 (1):94. Epub 1900 01 01.

The need to promote all pediatric stem cell donors' understanding and interests.

Ross LF, Antommaria AH

Pediatrics.. 2014 May 133 (5):e1356-7. Epub 1900 01 01.

Relational autonomy: moving beyond the limits of isolated individualism.

Walter JK, Ross LF

Pediatrics.. 2014 February 133 Suppl 1 :S16-23. Epub 1900 01 01.

When the living and the deceased cannot agree on organ donation: a survey of US organ procurement organizations (OPOs).

Chon WJ, Josephson MA, Gordon EJ, Becker YT, Witkowski P, Arwindekar DJ, Naik A, Thistlethwaite JR, Liao C, Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2014 January 14 (1):172-7. Epub 1900 01 01.

Addressing the ethical challenges in genetic testing and sequencing of children.

Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM,

The American journal of bioethics : AJOB.. 2014 14 (3):3-9. Epub 1900 01 01.

The moral and legal need to disclose despite a certificate of confidentiality.

Paquette ET, Ross LF

The American journal of bioethics : AJOB.. 2014 14 (10):51-3. Epub 1900 01 01.

Recommendations for returning genomic incidental findings? We need to talk!

Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, Wilfond B, Wolf SM, Zimmern R

Genetics in medicine : official journal of the American College of Medical Genetics.. 2013 November 15 (11):854-9. Epub 08/01/2013.

Young physicians' recall about pediatric training in ethics and professionalism and its practical utility.

Cook AF, Ross LF

The Journal of pediatrics.. 2013 October 163 (4):1196-201. Epub 05/21/2013.

Premature guidance about whole-genome sequencing.

Ross LF, Rothstein MA, Clayton EW

Personalized medicine.. 2013 August 110 (6):523-526. Epub 1900 01 01.

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.

Ross LF, Rothstein MA, Clayton EW

JAMA.. 2013 July 24310 (4):367-8. Epub 1900 01 01.

The OHRP and SUPPORT.

Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S

The New England journal of medicine.. 2013 June 20368 (25):e36. Epub 06/05/2013.

Newborns and other children: in defense of differential attitudes and treatment.

Ross LF, Frader JE

The Journal of pediatrics.. 2013 June 162 (6):1096-9. Epub 02/15/2013.

A K-nearest neighbors survival probability prediction method.

Lowsky DJ, Ding Y, Lee DK, McCulloch CE, Ross LF, Thistlethwaite JR, Zenios SA

Statistics in medicine.. 2013 May 3032 (12):2062-9. Epub 1900 01 01.

Ethics and professionalism in medical physics: a survey of AAPM members.

Ozturk N, Armato SG, Giger ML, Serago CF, Ross LF

Medical physics.. 2013 April 40 (4):047001. Epub 1900 01 01.

Technical report: Ethical and policy issues in genetic testing and screening of children.

Ross LF, Saal HM, David KL, Anderson RR, ,

Genetics in medicine : official journal of the American College of Medical Genetics.. 2013 March 15 (3):234-45. Epub 02/21/2013.

A pilot study to evaluate awareness of and attitudes about prenatal and neonatal genetic testing in postpartum African American women.

Kusyk D, Acharya K, Garvey K, Ross LF

Journal of the National Medical Association.. 2013 105 (1):85-91. Epub 1900 01 01.

Teaching and assessment of ethics and professionalism: a survey of pediatric program directors.

Cook AF, Sobotka SA, Ross LF

Academic pediatrics.. 2013 13 (6):570-6. Epub 1900 01 01.

Predictive genetic testing of children and the role of the best interest standard.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2013 41 (4):899-906, Table of Contents. Epub 1900 01 01.

Engaging African-Americans about biobanks and the return of research results.

Halverson CM, Ross LF

Journal of community genetics.. 2012 October 3 (4):275-83. Epub 03/28/2012.

Attitudes of African-American parents about biobank participation and return of results for themselves and their children.

Halverson CM, Ross LF

Journal of medical ethics.. 2012 September 38 (9):561-6. Epub 05/09/2012.

Parents: critical stakeholders in expanding newborn screening.

Ross LF, Waggoner DJ

The Journal of pediatrics.. 2012 September 161 (3):385-9. Epub 06/22/2012.

50 years ago in the Journal of Pediatrics: mass screening for phenylketonuria.

Ross LF

The Journal of pediatrics.. 2012 September 161 (3):433. Epub 1900 01 01.

Equal Opportunity Supplemented by Fair Innings: equity and efficiency in allocating deceased donor kidneys.

Ross LF, Parker W, Veatch RM, Gentry SE, Thistlethwaite JR

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2012 August 12 (8):2115-24. Epub 06/15/2012.

Newborn screening for lysosomal storage diseases: an ethical and policy analysis.

Ross LF

Journal of inherited metabolic disease.. 2012 July 35 (4):627-34. Epub 12/22/2011.

Incidental findings of therapeutic misconception in biobank-based research.

Halverson CM, Ross LF

Genetics in medicine : official journal of the American College of Medical Genetics.. 2012 June 14 (6):611-5. Epub 01/26/2012.

SU-E-E-03: Ethics and Professionalism Education in Medical Physics: A Needs Assessment Study.

Ozturk N, Armato S, Giger ML, Serago C, Ross LF

Medical physics.. 2012 June 39 (6Part3):3623-3624. Epub 1900 01 01.

Newborn screening for sickle cell disease: whose reproductive benefit?

Ross LF

European journal of human genetics : EJHG.. 2012 May 20 (5):484-5. Epub 11/09/2011.

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

Lemke AA, Halverson C, Ross LF

American journal of medical genetics. Part A.. 2012 May 158A (5):1029-37. Epub 03/21/2012.

Research ethics education for community-engaged research: a review and research agenda.

Anderson EE, Solomon S, Heitman E, DuBois JM, Fisher CB, Kost RG, Lawless ME, Ramsey C, Jones B, Ammerman A, Ross LF

Journal of empirical research on human research ethics : JERHRE.. 2012 April 7 (2):3-19. Epub 1900 01 01.

A re-examination of the use of ethnicity in prenatal carrier testing.

Ross LF

American journal of medical genetics. Part A.. 2012 January 158A (1):19-23. Epub 11/21/2011.

Different standards are not double standards: all elective surgical patients are not alike.

Ross LF, Glannon W, Gottlieb LJ, Thistlethwaite JR

The Journal of clinical ethics.. 2012 23 (2):118-28. Epub 1900 01 01.

Identification and management of sickle cell trait by young physicians.

Koopmans J, Ross LF

Journal of the National Medical Association.. 2012 104 (5-6):299-304. Epub 1900 01 01.

Age should not be considered in the allocation of deceased donor kidneys.

Ross LF, Thistlethwaite JR

Seminars in dialysis.. 2012 25 (6):675-81. Epub 10/19/2012.

Attitudes and beliefs of sports medicine providers to sickle cell trait screening of student athletes.

Acharya K, Benjamin HJ, Clayton EW, Ross LF

Clinical journal of sport medicine : official journal of the Canadian Academy of Sport Medicine.. 2011 November 21 (6):480-5. Epub 1900 01 01.

Sickle cell trait screening in athletes: pediatricians' attitudes and concerns.

Koopmans J, Cox LA, Benjamin H, Clayton EW, Ross LF

Pediatrics.. 2011 September 128 (3):477-83. Epub 08/08/2011.

A pilot study to determine whether health care professionals perceive stigma in heterozygote carrier identification and disclosure decisions.

Moffett A, Ross LF

American journal of medical genetics. Part A.. 2011 August 155A (8):1897-905. Epub 07/07/2011.

Consent for emergency medical services for children and adolescents.

Pediatrics.. 2011 August 128 (2):427-33. Epub 07/25/2011.

Maternal-fetal intervention and fetal care centers.

,

Pediatrics.. 2011 August 128 (2):e473-8. Epub 07/25/2011.

Ethical and policy issues raised by heterozygote carrier identification and predictive genetic testing of adolescents.

Ross LF

Adolescent medicine: state of the art reviews.. 2011 August 22 (2):251-64, ix. Epub 1900 01 01.

Are we adequately protecting vulnerable patients in longitudinal observational studies?

Ross LF

The Journal of pediatrics.. 2011 June 158 (6):1036-7; author reply 1037. Epub 02/06/2011.

Risk, prognosis, and unintended consequences in kidney allocation.

Hippen BE, Thistlethwaite JR, Ross LF

The New England journal of medicine.. 2011 April 7364 (14):1285-7. Epub 03/16/2011.

In defense of the American Academy of Pediatrics policy statement--children as hematopoietic stem cell donors.

Ross LF

Pediatric blood & cancer.. 2011 April 56 (4):520-3. Epub 01/24/2011.

A pilot study to evaluate knowledge and attitudes of Illinois pediatricians toward newborn screening for sickle cell disease and cystic fibrosis.

Stark AP, Lang CW, Ross LF

American journal of perinatology.. 2011 March 28 (3):169-76. Epub 09/09/2010.

Parental understanding of newborn screening for cystic fibrosis after a negative sweat-test.

Lang CW, McColley SA, Lester LA, Ross LF

Pediatrics.. 2011 February 127 (2):276-83. Epub 01/10/2011.

Are we ready to expand donation after cardiac death to the newborn population?

Ross LF, Frader J

The Journal of pediatrics.. 2011 January 158 (1):6-8. Epub 09/25/2010.

Mandatory versus voluntary consent for newborn screening?

Ross LF

Kennedy Institute of Ethics journal.. 2010 December 20 (4):299-328. Epub 1900 01 01.

Maternal attitudes about sickle cell trait identification in themselves and their infants.

Lang CW, Ross LF

Journal of the National Medical Association.. 2010 November 102 (11):1065-72. Epub 1900 01 01.

360 Degrees of human subjects protections in community-engaged research.

Ross LF

Science translational medicine.. 2010 August 182 (45):45cm23. Epub 1900 01 01.

Reactions of pediatricians to refusals of medical treatment for minors.

Talati ED, Lang CW, Ross LF

The Journal of adolescent health : official publication of the Society for Adolescent Medicine.. 2010 August 47 (2):126-32. Epub 04/28/2010.

Neighborhood poverty, racial composition and renal transplant waitlist.

Saunders MR, Cagney KA, Ross LF, Alexander GC

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2010 August 10 (8):1912-7. Epub 1900 01 01.

Honoring do-not-attempt-resuscitation requests in schools.

, Murray RD, Antommaria AH

Pediatrics.. 2010 May 125 (5):1073-7. Epub 04/26/2010.

Ritual genital cutting of female minors.

, Davis DS

Pediatrics.. 2010 May 125 (5):1088-93. Epub 04/26/2010.

Carrier detection in childhood: a need for policy reform.

Ross LF

Genome medicine.. 2010 April 222 (4):25. Epub 04/22/2010.

Good ethics requires good science: why transplant programs should not disclose misattributed parentage.

Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2010 April 10 (4):742-746. Epub 02/03/2010.

What the medical excuse teaches us about the potential living donor as patient.

Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2010 April 10 (4):731-736. Epub 02/03/2010.

How different conceptions of risk are used in the organ market debate.

Aronsohn A, Thistlethwaite JR, Segev DL, Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2010 April 10 (4):931-937. Epub 02/25/2010.

Pediatricians' attitudes about screening newborns for infectious diseases.

Schittek H, Koopmans J, Ross LF

Maternal and child health journal.. 2010 March 14 (2):174-83. Epub 12/09/2008.

Human subjects protections in community-engaged research: a research ethics framework.

Ross LF, Loup A, Nelson RM, Botkin JR, Kost R, Smith GR, Gehlert S

Journal of empirical research on human research ethics : JERHRE.. 2010 March 5 (1):5-17. Epub 1900 01 01.

The challenges of collaboration for academic and community partners in a research partnership: points to consider.

Ross LF, Loup A, Nelson RM, Botkin JR, Kost R, Smith GR, Gehlert S

Journal of empirical research on human research ethics : JERHRE.. 2010 March 5 (1):19-31. Epub 1900 01 01.

Nine key functions for a human subjects protection program for community-engaged research: points to consider.

Ross LF, Loup A, Nelson RM, Botkin JR, Kost R, Smith GR, Gehlert S

Journal of empirical research on human research ethics : JERHRE.. 2010 March 5 (1):33-47. Epub 1900 01 01.

An ethical and policy analysis of elective transplantation for metabolic conditions diagnosed by newborn screening.

Ross LF

The Journal of pediatrics.. 2010 January 156 (1):139-44. Epub 1900 01 01.

When physicians forego the doctor-patient relationship, should they elect to self-prescribe or curbside? An empirical and ethical analysis.

Walter JK, Lang CW, Ross LF

Journal of medical ethics.. 2010 January 36 (1):19-23. Epub 1900 01 01.

Population screening for genetic disorders in the 21st century: evidence, economics, and ethics.

Grosse SD, Rogowski WH, Ross LF, Cornel MC, Dondorp WJ, Khoury MJ

Public health genomics.. 2010 13 (2):106-15. Epub 06/29/2009.

Forty years later: the scope of bioethics revisited.

Ross LF

Perspectives in biology and medicine.. 2010 53 (3):452-7. Epub 1900 01 01.

Policy statement--Pediatrician-family-patient relationships: managing the boundaries.

Pediatrics.. 2009 December 124 (6):1685-8. Epub 1900 01 01.

The University of Chicago Institute for Translational Medicine.

Solway J, Rehman B, Ross LF

Clinical and translational science.. 2009 December 2 (6):394-7. Epub 1900 01 01.

Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis.

Lang CW, Stark AP, Acharya K, Ross LF

American journal of medical genetics. Part A.. 2009 November 149A (11):2424-9. Epub 1900 01 01.

The ethics of hematopoietic stem cell donation by minors.

Ross LF

Archives of pediatrics & adolescent medicine.. 2009 November 163 (11):1065; author reply 1065-6. Epub 1900 01 01.

A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease.

Acharya K, Lang CW, Ross LF

Journal of the National Medical Association.. 2009 November 101 (11):1163-72. Epub 1900 01 01.

Ethics and professionalism in the pediatric curriculum: a survey of pediatric program directors.

Lang CW, Smith PJ, Ross LF

Pediatrics.. 2009 October 124 (4):1143-51. Epub 09/14/2009.

Saving lives is more important than abstract moral concerns: financial incentives should be used to increase organ donation.

Hippen B, Ross LF, Sade RM

The Annals of thoracic surgery.. 2009 October 88 (4):1053-61. Epub 1900 01 01.

Clinical and ethical considerations in managing carrier detection.

Ross LF, Clayton EW

American journal of public health.. 2009 August 99 (8):1348-9. Epub 06/18/2009.

Clinical report--Forgoing medically provided nutrition and hydration in children.

Diekema DS, Botkin JR,

Pediatrics.. 2009 August 124 (2):813-22. Epub 07/27/2009.

From genetics to genomics: ethics, policy, and parental decision-making.

Wilfond B, Ross LF

Journal of pediatric psychology.. 2009 July 34 (6):639-47. Epub 07/22/2008.

Hypoplastic left heart syndrome: a paradigm case for examining conscientious objection in pediatric practice.

Ross LF, Frader J

The Journal of pediatrics.. 2009 July 155 (1):12-5. Epub 1900 01 01.

Long-term consequences of kidney donation.

Ross LF, Thistlethwaite JR

The New England journal of medicine.. 2009 May 28360 (22):2371; author reply 2372. Epub 1900 01 01.

Pediatricians' attitudes toward resuscitation in children with chronic illnesses.

Hoehn KS, Acharya K, Joseph JW, Ross LF

Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.. 2009 May 10 (3):369-74. Epub 1900 01 01.

Fragile X screening: attitudes of genetic health professionals.

Acharya K, Ross LF

American journal of medical genetics. Part A.. 2009 February 15149A (4):626-32. Epub 1900 01 01.

Qualitative insights into how pediatric pay-for-performance programs are being designed.

Chien AT, Colman MW, Ross LF

Academic pediatrics.. 2009 9 (3):185-91. Epub 1900 01 01.

Against the tide: arguments against respecting a minor's refusal of efficacious life-saving treatment.

Ross LF

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2009 18 (3):302-15; discussion 315-22. Epub 1900 01 01.

Arguments against respecting a minor's refusal of efficacious life-saving treatment redux, part II.

Ross LF

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2009 18 (4):432-40; discussion 440-2. Epub 1900 01 01.

A descriptive and moral evaluation of providing informal medical care to one's own children.

Walter JK, Pappano E, Ross LF

The Journal of clinical ethics.. 2009 20 (4):353-61. Epub 1900 01 01.

Pediatricians are more supportive of the human papillomavirus vaccine than the general public.

Ishibashi KL, Koopmans J, Curlin FA, Alexander KA, Ross LF

Southern medical journal.. 2008 December 101 (12):1216-21. Epub 1900 01 01.

Ethical and policy lessons to be learned from a family with inherited bone marrow failure.

Ross LF

American journal of medical genetics. Part A.. 2008 November 1146A (21):2715-8. Epub 1900 01 01.

Paediatricians' attitudes and practices towards HPV vaccination.

Ishibashi KL, Koopmans J, Curlin FA, Alexander KA, Ross LF

Acta paediatrica.. 2008 November 97 (11):1550-6. Epub 07/29/2008.

Policy considerations in designing a fragile X population screening program.

Ross LF, Acharya K

Genetics in medicine : official journal of the American College of Medical Genetics.. 2008 October 10 (10):711-3. Epub 1900 01 01.

Newborn screening for cystic fibrosis: a lesson in public health disparities.

Ross LF

The Journal of pediatrics.. 2008 September 153 (3):308-13. Epub 1900 01 01.

Minors as living solid-organ donors.

Ross LF, Thistlethwaite JR,

Pediatrics.. 2008 August 122 (2):454-61. Epub 1900 01 01.

An empirical investigation of physicians' attitudes toward intrasibling kidney donation by minor twins.

Joseph JW, Thistlethwaite JR, Josephson MA, Ross LF

Transplantation.. 2008 May 1585 (9):1235-9. Epub 1900 01 01.

American academy of pediatrics policy statements on bioethics: summaries and commentaries: part 3.

Mercurio MR, Forman EN, Ladd RE, Maxwell MA, Ross LF, Silber TJ,

Pediatrics in review. 2008 May 29 (5):e28-34. Epub 1900 01 01.

Preservation of fertility in pediatric and adolescent patients with cancer.

Fallat ME, Hutter J, , ,

Pediatrics.. 2008 May 121 (5):e1461-9. Epub 1900 01 01.

Potential inefficiency of a proposed efficiency model for kidney allocation.

Ross LF, Thistlethwaite JR

American journal of kidney diseases : the official journal of the National Kidney Foundation.. 2008 April 51 (4):545-8. Epub 1900 01 01.

American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2.

Mercurio MR, Maxwell MA, Mears BJ, Ross LF, Silber TJ

Pediatrics in review. 2008 March 29 (3):e15-22. Epub 1900 01 01.

Ethical and policy issues in pediatric genetics.

Ross LF

American journal of medical genetics. Part C, Seminars in medical genetics.. 2008 February 15148C (1):1-7. Epub 1900 01 01.

Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes.

Joseph JW, Neidich AB, Ober C, Ross LF

American journal of medical genetics. Part A.. 2008 February 1146A (3):305-11. Epub 1900 01 01.

Empirical data about women's attitudes towards a hypothetical pediatric biobank.

Neidich AB, Joseph JW, Ober C, Ross LF

American journal of medical genetics. Part A.. 2008 February 1146A (3):297-304. Epub 1900 01 01.

American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 1.

Mercurio MR, Adam MB, Forman EN, Ladd RE, Ross LF, Silber TJ,

Pediatrics in review. 2008 January 29 (1):e1-8. Epub 1900 01 01.

Ethics of hematopoietic stem cell transplantation in type 1 diabetes mellitus.

Ross LF, Philipson LH

JAMA.. 2007 July 18298 (3):285; author reply 285-6. Epub 1900 01 01.

Against newborn screening for type 1 diabetes.

Ross LF

Archives of pediatrics & adolescent medicine.. 2007 June 161 (6):616-7; author reply 617-8. Epub 1900 01 01.

Religion, conscience, and controversial clinical practices.

Ross LF, Clayton EW

The New England journal of medicine.. 2007 May 3356 (18):1889-92; author reply 1889-92. Epub 1900 01 01.

The participation of children in nontherapeutic diabetes research in the US.

Ross LF

Nature clinical practice. Endocrinology & metabolism.. 2007 May 3 (5):378-9. Epub 1900 01 01.

Methodology matters.

Ross LF

American journal of public health.. 2007 April 97 (4):589; author reply 589-90. Epub 02/28/2007.

Growth attenuation by commission and omission may be ethically justifiable in children with profound disabilities.

Ross LF

Archives of pediatrics & adolescent medicine.. 2007 April 161 (4):418; author reply 419-20. Epub 1900 01 01.

The moral status of the newborn and its implications for medical decision making.

Ross LF

Theoretical medicine and bioethics.. 2007 28 (5):349-55. Epub 1900 01 01.

We need a registry of living kidney donors.

Ross LF, Siegler M, Thistlethwaite JR

The Hastings Center report.. 2007 37 (6):1 p following 48. Epub 1900 01 01.

Meiotic resumption in response to luteinizing hormone is independent of a Gi family G protein or calcium in the mouse oocyte.

Mehlmann LM, Kalinowski RR, Ross LF, Parlow AF, Hewlett EL, Jaffe LA

Developmental biology.. 2006 November 15299 (2):345-55. Epub 08/05/2006.

Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy.

Koopmans J, Hiraki S, Ross LF

American journal of medical genetics. Part A.. 2006 November 1140 (21):2305-11. Epub 1900 01 01.

Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children.

Hiraki S, Ormond KE, Kim K, Ross LF

American journal of medical genetics. Part A.. 2006 November 1140 (21):2312-9. Epub 1900 01 01.

Shared decision making in deceased-donor transplantation.

Ross LF, Zenios S, Thistlethwaite JR

Lancet.. 2006 July 22368 (9532):333-7. Epub 1900 01 01.

Ethical issues in haemophilia.

DiMichele D, Chuansumrit A, London AJ, Thompson AR, Cooper CG, Killian RM, Ross LF, Lillicrap D, Kimmelman J

Haemophilia : the official journal of the World Federation of Hemophilia.. 2006 July 12 Suppl 3 :30-5. Epub 1900 01 01.

The ethical limits in expanding living donor transplantation.

Ross LF

Kennedy Institute of Ethics journal.. 2006 June 16 (2):151-72. Epub 1900 01 01.

Newborn screening technology: proceed with caution.

Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond B, Berg A, Ross LF

Pediatrics.. 2006 May 117 (5):1793-9. Epub 1900 01 01.

Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy.

Ross LF

American journal of medical genetics. Part A.. 2006 April 15140 (8):914-22. Epub 1900 01 01.

Ethical considerations related to pregnancy in transplant recipients.

Ross LF

The New England journal of medicine.. 2006 March 23354 (12):1313-6. Epub 1900 01 01.

Pediatric research and the federal minimal risk standard.

Ross LF, Nelson RM

JAMA.. 2006 February 15295 (7):759; author reply 759-60. Epub 1900 01 01.

Ethics of placebos in clinical asthma trials.

Coffey MJ, Ross LF

The Journal of allergy and clinical immunology.. 2006 February 117 (2):470; author reply 470-1. Epub 11/02/2005.

Implications of disclosing individual results of clinical research.

Clayton EW, Ross LF

JAMA.. 2006 January 4295 (1):37; author reply 37-8. Epub 1900 01 01.

Attitudes of minority patients with end-stage renal disease regarding ABO-incompatible list-paired exchanges.

Ackerman PD, Thistlethwaite JR, Ross LF

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2006 January 6 (1):83-8. Epub 1900 01 01.

Should a PVS patient be a live organ donor?

Ross LF

Medical ethics.. 2006 13 (1):3. Epub 1900 01 01.

What is wrong with the Physician Charter on Professionalism.

Ross LF

The Hastings Center report.. 2006 36 (4):17-9. Epub 1900 01 01.

Informed consent for genetic research involving pleiotropic genes: an empirical study of ApoE research.

Cooper ZN, Nelson RM, Ross LF

IRB.. 2006 28 (5):1-11. Epub 1900 01 01.

A compounding of errors: the case of bone marrow donation between non-intimate siblings.

Ross LF, Glannon W

The Journal of clinical ethics.. 2006 17 (3):220-6. Epub 1900 01 01.

Heterozygote carrier testing in high schools abroad: what are the lessons for the U.S.?

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2006 34 (4):753-64. Epub 1900 01 01.

In defense of a single standard of research risk for all children.

Nelson RM, Ross LF

The Journal of pediatrics.. 2005 November 147 (5):565-6. Epub 1900 01 01.

Pediatricians' attitudes toward expanding newborn screening.

Acharya K, Ackerman PD, Ross LF

Pediatrics.. 2005 October 116 (4):e476-84. Epub 1900 01 01.

Reproduction and transplantation: report on the AST Consensus Conference on Reproductive Issues and Transplantation.

McKay DB, Josephson MA, Armenti VT, August P, Coscia LA, Davis CL, Davison JM, Easterling T, Friedman JE, Hou S, Karlix J, Lake KD, Lindheimer M, Matas AJ, Moritz MJ, Riely CA, Ross LF, Scott JR, Wagoner LE, Wrenshall L, Adams PL, Bumgardner GL, Fine RN, Goral S, Krams SM, Martinez OM, Tolkoff-Rubin N, Pavlakis M, Scantlebury V,

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2005 July 5 (7):1592-9. Epub 1900 01 01.

The participation of minorities in published pediatric research.

Kelly ML, Ackerman PD, Ross LF

Journal of the National Medical Association.. 2005 June 97 (6):777-83. Epub 1900 01 01.

Motivation, risk, and benefit in living organ donation: a reply to Aaron Spital.

Glannon W, Ross LF

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2005 14 (2):191-4; discussion 195-8. Epub 1900 01 01.

Parental attitudes and beliefs regarding the genetic testing of children.

Campbell E, Ross LF

Community genetics.. 2005 8 (2):94-102. Epub 1900 01 01.

Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research?

Ackerman PD, Kelly ML, Walsh CA, Ross LF

Accountability in research.. 2005 12 (1):17-31. Epub 1900 01 01.

Lessons to be learned from the 407 process.

Ross LF

Health matrix.. 2005 15 (2):401-21. Epub 1900 01 01.

Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood.

Campbell E, Ross LF

Journal of medical ethics.. 2004 December 30 (6):580-6. Epub 1900 01 01.

Ethical issues in identifying and recruiting participants for familial genetic research.

Beskow LM, Botkin JR, Daly M, Juengst ET, Lehmann LS, Merz JF, Pentz R, Press NA, Ross LF, Sugarman J, Susswein LR, Terry SF, Austin MA, Burke W

American journal of medical genetics. Part A.. 2004 November 1130A (4):424-31. Epub 1900 01 01.

Should children and adolescents undergo genetic testing?

Ross LF

Pediatric annals.. 2004 November 33 (11):762-9. Epub 1900 01 01.

Practical and ethical challenges to paired exchange programs.

Ross LF, Zenios S

American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons.. 2004 October 4 (10):1553-4. Epub 1900 01 01.

Restricting living-donor-cadaver-donor exchanges to ensure that standard blood type O wait-list candidates benefit.

Ross LF, Zenios S

Transplantation.. 2004 September 1578 (5):641-6. Epub 1900 01 01.

Convening a 407 panel for research not otherwise approvable: "Precursors to diabetes in Japanese American youth" as a case study.

Ross LF

Kennedy Institute of Ethics journal.. 2004 June 14 (2):165-86. Epub 1900 01 01.

Incorporating newborn screening into prenatal care.

Campbell ED, Ross LF

American journal of obstetrics and gynecology.. 2004 April 190 (4):876-7. Epub 1900 01 01.

Ethical assessment of clinical asthma trials including children subjects.

Coffey MJ, Wilfond B, Ross LF

Pediatrics.. 2004 January 113 (1 Pt 1):87-94. Epub 1900 01 01.

Certificates of confidentiality in research: rationale and usage.

Cooper ZN, Nelson RM, Ross LF

Genetic testing.. 2004 8 (2):214-20. Epub 1900 01 01.

Children in medical research: balancing protection and access--has the pendulum swung too far?

Ross LF

Perspectives in biology and medicine.. 2004 47 (4):519-36. Epub 1900 01 01.

Informed consent in pediatric research.

Ross LF

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2004 13 (4):346-58. Epub 1900 01 01.

Are minority children under- or overrepresented in pediatric research?

Walsh C, Ross LF

Pediatrics.. 2003 October 112 (4):890-5. Epub 1900 01 01.

Is kidney donation in the donor's best interest?

Ross LF

Transplantation.. 2003 September 1576 (5):753-4. Epub 1900 01 01.

Parental attitudes regarding newborn screening of PKU and DMD.

Campbell E, Ross LF

American journal of medical genetics. Part A.. 2003 July 15120A (2):209-14. Epub 1900 01 01.

Whether and why pediatric researchers report race and ethnicity.

Walsh C, Ross LF

Archives of pediatrics & adolescent medicine.. 2003 July 157 (7):671-5. Epub 1900 01 01.

Effect of family history on disclosure patterns of cystic fibrosis carrier status.

Ormond KE, Mills PL, Lester LA, Ross LF

American journal of medical genetics. Part C, Seminars in medical genetics.. 2003 May 15119C (1):70-7. Epub 1900 01 01.

Do healthy children deserve greater protection in medical research?

Ross LF

The Journal of pediatrics.. 2003 February 142 (2):108-12. Epub 1900 01 01.

Minimizing risks: the ethics of predictive diabetes mellitus screening research in newborns.

Ross LF

Archives of pediatrics & adolescent medicine.. 2003 January 157 (1):89-95. Epub 1900 01 01.

Lethal language, lethal decisions.

Koogler TK, Wilfond BS, Ross LF

The Hastings Center report.. 2003 33 (2):37-41. Epub 1900 01 01.

Responding to the challenge of the children's health act: an introduction to children in research.

Ross LF

Theoretical medicine and bioethics.. 2003 24 (2):101-6. Epub 1900 01 01.

The ethics of type 1 diabetes prediction and prevention research.

Ross LF

Theoretical medicine and bioethics.. 2003 24 (2):177-97. Epub 1900 01 01.

Why "doctor, if this were your child, what would you do?" deserves an answer.

Ross LF

The Journal of clinical ethics.. 2003 14 (1-2):59-62. Epub 1900 01 01.

Minority children in pediatric research.

Ross LF, Walsh C

American journal of law & medicine.. 2003 29 (2-3):319-36. Epub 1900 01 01.

Do not resuscitate orders and iatrogenic arrest during dialysis: should "No" mean "No"?

Ross LF

Seminars in dialysis.. 2003 16 (5):395-8. Epub 1900 01 01.

Adolescent autonomy in health care?

Ross LF

Newsletter on philosophy and medicine. 2003 2 (2):193-200. Epub 1900 01 01.

Predictive genetic testing for conditions that present in childhood.

Ross LF

Kennedy Institute of Ethics journal.. 2002 September 12 (3):225-44. Epub 1900 01 01.

Should all living donors be treated equally?

Ross LF, Glannon W, Josephson MA, Thistlethwaite JR

Transplantation.. 2002 August 1574 (3):418-21; discussion 421-2. Epub 1900 01 01.

Are research ethics standards satisfied in pediatric journal publications?

Weil E, Nelson RM, Ross LF

Pediatrics.. 2002 August 110 (2 Pt 1):364-70. Epub 1900 01 01.

Protecting research subjects.

Ross LF

The New England journal of medicine.. 2002 June 27346 (26):2093-5; author reply 2093-5. Epub 1900 01 01.

Are doctors altruistic?

Glannon W, Ross LF

Journal of medical ethics.. 2002 April 28 (2):68-9; discussion 74-6. Epub 1900 01 01.

Do genetic relationships create moral obligations in organ transplantation?

Glannon W, Ross LF

Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees.. 2002 11 (2):153-9. Epub 1900 01 01.

In defense of the Hopkins Lead Abatement Studies.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2002 30 (1):50-7. Epub 1900 01 01.

Media appeals for directed altruistic living liver donations: lessons from Camilo Sandoval Ewen.

Ross LF

Perspectives in biology and medicine.. 2002 45 (3):329-37. Epub 1900 01 01.

Patient autonomy: imperfect, insufficient, but still quite necessary.

Ross LF

The Journal of clinical ethics.. 2002 13 (1):57-62. Epub 1900 01 01.

Solid organ donation between strangers.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2002 30 (3):440-5. Epub 1900 01 01.

All donations should not be treated equally: a response to Jeffrey Kahn's commentary.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2002 30 (3):448-51. Epub 1900 01 01.

(Women and) children first: applicable to lifeboats? Applicable to human experimentation?

Ross LF, Coffey MJ

Journal of health care law & policy.. 2002 6 (1):14-33. Epub 1900 01 01.

The ethics of preadoption genetic testing.

Jansen LA, Ross LF

American journal of medical genetics.. 2001 December 1104 (3):214-20. Epub 1900 01 01.

Primum non nocere: avoiding harm to vulnerable wait list candidates in an indirect kidney exchange.

Zenios SA, Woodle ES, Ross LF

Transplantation.. 2001 August 2772 (4):648-54. Epub 1900 01 01.

Ethical issues in pediatric trials.

Ross LF, Newburger JW, Sanders SP

American heart journal.. 2001 August 142 (2):233-6. Epub 1900 01 01.

Options for increasing the supply of living organ donors.

Ross LF

JAMA.. 2001 March 21285 (11):1440-1. Epub 1900 01 01.

Genetic exceptionalism vs. paradigm shift: lessons from HIV.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2001 29 (2):141-8. Epub 1900 01 01.

Disclosing the diagnosis of HIV in pediatrics.

Flanagan-Klygis E, Ross LF, Lantos J, Frader J, Yogev R

The Journal of clinical ethics.. 2001 12 (2):150-7. Epub 1900 01 01.

Ethical and policy issues in genetic testing.

Ross LF

Pancreatology : official journal of the International Association of Pancreatology (IAP) ... [et al.].. 2001 1 (6):576-80. Epub 1900 01 01.

Ethical issues in genetic testing of children.

Ross LF, Moon MR

Archives of pediatrics & adolescent medicine.. 2000 September 154 (9):873-9. Epub 1900 01 01.

Is academic medicine for sale?

Ross LF

The New England journal of medicine.. 2000 August 17343 (7):508; author reply 510. Epub 1900 01 01.

Genetic testing of adolescents: is it in their best interest?

Ross LF

Archives of pediatrics & adolescent medicine.. 2000 August 154 (8):850-2. Epub 1900 01 01.

Ethical issues in increasing living kidney donations by expanding kidney paired exchange programs.

Ross LF, Woodle ES

Transplantation.. 2000 April 2769 (8):1539-43. Epub 1900 01 01.

Donating a second kidney: a tale of family and ethics.

Ross LF

Seminars in dialysis.. 2000 13 (3):201-3. Epub 1900 01 01.

Patient confidentiality and the surrogate's right to know.

Jansen LA, Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 2000 28 (2):137-43. Epub 1900 01 01.

Pediatric bioethics: reintroducing the parents.

Ross LF

The Responsive community : rights and responsibilities.. 1999 9 (3):40-7. Epub 1900 01 01.

Paired exchanges should be part of the solution to ABO incompatibility in living donor kidney transplantation.

Woodle ES, Ross LF

Transplantation.. 1998 August 1566 (3):406-7. Epub 1900 01 01.

Should doctors reconstruct the vaginal introitus of adolescent girls to mimic the virginal state? Surgery is not what it seems.

Ross LF

BMJ : British medical journal. 1998 February 7316 (7129):462. Epub 1900 01 01.

Consent for clinical research.

Ross LF

The New England journal of medicine.. 1997 July 24337 (4):282. Epub 1900 01 01.

Advantages and disadvantages of neonatal circumcision.

Ross LF

JAMA.. 1997 July 16278 (3):201-2; author reply 203. Epub 1900 01 01.

Overriding a patient's refusal of treatment after an iatrogenic complication.

Casarett D, Ross LF

The New England journal of medicine.. 1997 June 26336 (26):1908-10. Epub 1900 01 01.

Ethics of a paired-kidney-exchange program.

Ross LF, Rubin DT, Siegler M, Josephson MA, Thistlethwaite JR, Woodle ES

The New England journal of medicine.. 1997 June 12336 (24):1752-5. Epub 1900 01 01.

Health care decisionmaking by children. Is it in their best interest?

Ross LF

The Hastings Center report.. 1997 27 (6):41-5. Epub 1900 01 01.

Religious exemptions to the immunization statutes: balancing public health and religious freedom.

Ross LF, Aspinwall TJ

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 1997 25 (2-3):202-9, 83. Epub 1900 01 01.

Children as research subjects: a proposal to revise the current federal regulations using a moral framework.

Ross LF

Stanford law & policy review.. 1997 8 (1):159-76. Epub 1900 01 01.

Adolescent sexuality and public policy: an unrepentant liberal approach.

Ross LF

Politics and the life sciences : the journal of the Association for Politics and the Life Sciences.. 1996 September 15 (2):323-8. Epub 1900 01 01.

Disclosing misattributed paternity.

Ross LF

Bioethics.. 1996 April 10 (2):114-30. Epub 1900 01 01.

Adolescent sexuality and public policy: a liberal response.

Ross LF

Politics and the life sciences : the journal of the Association for Politics and the Life Sciences.. 1996 March 15 (1):13-21. Epub 1900 01 01.

Immunisation against chickenpox.

Ross LF, Lantos JD

BMJ : British medical journal. 1995 January 7310 (6971):2-3. Epub 1900 01 01.

Arguments against health care autonomy for minors.

Ross LF

Bioethics forum.. 1995 11 (4):22-6. Epub 1900 01 01.

Justice for children: the child as organ donor.

Ross LF

Bioethics.. 1994 April 8 (2):105-26. Epub 1900 01 01.

Life support for patients with cervical-level quadriplegia.

Ross LF

The New England journal of medicine.. 1993 August 26329 (9):663; author reply 664. Epub 1900 01 01.

Moral grounding for the participation of children as organ donors.

Ross LF

The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.. 1993 21 (2):251-7. Epub 1900 01 01.

Books

Defining Death: The Case for Choice (2106)

Authors: Robert M Veatch and Lainie Friedman Ross

Publisher: Georgetown University Press, Washington DC, USA 2106

The Living Organ Donor as Patient: Ethics and Practice (2021)

Authors: Lainie Friedman Ross and J. Richard Thistlethwaite, Jr

Publisher: Oxford University Press, New York, NY, USA 2021

Transplantation Ethics, 2nd ed (2015)

Authors: Robert M Veatch and Lainie F Ross

Publisher: Georgetown University Press, Washington DC, USA 2015

Children in Medical Research: Access versus Protection (2006)

Authors: Lainie Friedman Ross

Publisher: Oxford (Clarendon) University Press, Oxford UK 2006

Children, Families and Health Care Decision Making (1998)

Authors: Lainie Friedman Ross

Publisher: Oxford (Clarendon) University Press, Oxford UK 1998