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Understanding the Kidney Replacement Therapy Decision-making Process

Research Question:
What are the steps that patients with stages 4 and 5 chronic kidney disease (CKD) experience when making a kidney function replacement therapy decision?

Basic Study Information

This study aims to understand how people with stages 4, and 5 chronic kidney disease (CKD) make decisions about kidney replacement therapy (KRT). We want to discover which steps are helpful and which ones are not. If some steps aren't helpful, we'd like to know how they can be improved, and what additional steps might be useful in aiding people in their KRT decisions. If you decide to participate, you will be invited to a journey mapping interview of 60-90 minutes with a study team member who will create a visual map with you, of the steps you went through to make your kidney replacement therapy option decision or the steps you have taken so far if you have not yet made a decision. The reimbursement for participation is $50. You will also have the option of participating in a 2-hour focus group with other people at a later date. What we learn from your experience will be used to help improve this decision-making process for others who are faced with needing to make decisions about kidney replacement treatment options. Who can participate: Individuals who are 18 years or older, with less than 30% kidney function ( stage 4 or 5 chronic kidney disease), and are not on dialysis.

Location: University of Rochester Medical Center
Study Reference #: Study00008289

Lead Researcher (Principal Investigator)

Lead Researcher:  Suma Prakash

Study Contact Information

Study Coordinator: Spoorthy Vangala
Phone: (585) 274-0029

Additional Study Details

Number of Visits:  1
Reimbursement:  Yes

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