Parent Cafe Study for Caregivers of Children with Medical Complexity

Basic Study Information

Purpose:
We are starting peer and emotional support group sessions for caregivers of infants with medical complexity. We are looking for interested parents and caregivers to participate in our research and share their experience and perspective. A child with medical complexity means that a child has/had 2 or more long-term diagnoses and uses/used medical devices (like a feeding tube or tracheostomy). Depending on the status and age of your child, you could either help us design the support groups, lead the support groups, or participate in the support groups as an attendee. Families with different diagnoses, outcomes, racial and ethnic backgrounds, genders, sexual orientations, religions, geographic regions and physical abilities all provide important insight and perspective. We are recruiting caregivers of children who have fully recovered, have recovered with ongoing needs, are undergoing treatment, or have passed away. Your lived experience and perspective matters.

Lead Researcher (Principal Investigator)

Lead Researcher:  Nathaniel Bayer

Study Contact Information

Additional Study Details

Parking:  Reimbursed
Reimbursement:  Yes
Payment Details:  $50 for Attending each Interview or a Monthly Advisory Council Meeting, $100 for Co-Leading each Support Group Session and Providing Feedback, $100 for Attending each Support Group Session and Providing Feedback. For those Co-Leading Support Group Sessions, there is also a required 3 day training (8 hour days) February 6-8, 2024 which you would be paid $600.

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