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Brain & Spinal Cord Tumors

Wilmot Cancer Institute / Cancers We Treat / Brain & Spinal Cord Tumors / Support & Survivorship

 

Support & Survivorship

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Support

Brain and spine cancers can affect some of the most basic human functions including speech, sight and appearance. That’s why the Wilmot Cancer Institute provides the area’s most extensive support services for patients and their families.

Adult Brain Tumor Network

Wilmot Cancer Institute hosts the Adult Brain Tumor Network support group for those with a diagnosis of a primary brain tumor and their caregivers. This group meets monthly on a Monday from 4-6 p.m. in the second-floor conference room of Wilmot Cancer Center (Room 2.0727). To learn more, contact Barbara Guttman, LMSW, at (585) 275-4631 or Barbara_Guttman@urmc.rochester.edu.

Caregiver workshop

Each year, UR Medicine’s Neuro-Oncology Program hosts a free day-long workshop for family and friends who are caring for an adult with a primary brain tumor. The workshop focuses on tools and strategies for caregivers and an opportunity to connect with others. To learn more, contact Jennifer Serventi, RPA-C, at (585) 276-3971 or at Jennifer_Serventi@urmc.rochester.edu.

Survivorship 

Community Sharing Hope Picnic: Each spring, the Neuro-Oncology Program hosts a picnic to celebrate survivorship. This free event is open to adult and pediatric brain cancer patients, survivors and their families. To learn more, contact Barbara Guttman, LMSW, at (585) 275-4631 or Barbara_Guttman@urmc.rochester.edu. 

Survivorship program: A healthy life after cancer is the goal of every patient. But the best way to achieve that varies widely—depending on you, your type of cancer, and the treatment you received. The Wilmot Cancer Institute offers the area’s only Survivorship Program. Each patient receives a comprehensive, personalized survivorship plan. To learn more about the program, talk with your care team.

Palliative Care

At Wilmot, physicians from UR Medicine’s Palliative Care Program are key members of the cancer care team. Palliative care focuses on alleviating pain and symptoms—such as nausea and shortness of breath—that can come with any serious illness like cancer and its treatment. Sometimes confused with hospice, palliative care is different. It can accompany any and all desired medical treatments for cancer or other conditions. Palliative care is about helping patients and their families live better while undergoing treatment.