URochester Medicine / Clinical Cardiovascular Research Center (CCRC) / LQTS Registry / LQTS Seminar 2019

LQTS Seminar 2019

LQTS Patients and Families Seminar
Celebrating 40 Years of the International LQTS Registry

The International LQTS Registry was established in 1979 and on September 21, 2019 we held a seminar for patients and families to celebrate 40^th anniversary of our Registry. For the last 40 years, LQTS patients and their families contributed with very important data to the registry allowing us to advance the field of LQTS research on diagnosis, genetics, and clinical management of this inherited arrhythmia disorder. The seminar was well attended with over 50 LQTS patients or their family members learning from several lectures by Rochester faculty and participating in vigorous discussions. Questions about diagnosis, genetics, clinical testing, risk assessment, optimal management, therapy and prevention were empowering and motivating our team to further pursue new research goals to alleviate challenges of this disease. The agenda of the seminar with specific talks and respective slides is provided below.

Welcome and Introductions Wojciech Zareba MD, PhD Video
Clinical Cardiovascular Research Center (CCRC) Ilan Goldenberg, MD Video
40 years of the LQTS Registry – Dr. Arthur Moss (1931-2018) and his Legacy Wojciech Zareba MD, PhD Video
Update on the Long QT syndrome – scientific output of the Registry Ilan Goldenberg, MD Video
LQTS Registry – How does it work? Kris Cutter, MS Video
Children with LQTS Jeffrey Vinocur, MD Video
Sport Activities in LQTS Spencer Rosero, MD Video
LQTS Patients’ Perspective Video
Therapies in LQTS Spencer Rosero MD Video
Drugs prolonging QT Wojciech Zareba MD, PhD Video
Pregnancy in LQTS Ilan Goldenberg, MD Video
Why genetic testing is important Ilan Goldenberg, MD Video
Implanted Cardioverter Defibrillators (ICDs) and Automatic External Defibrillators (AEDs) – Patient 101 David Huang, MD Video
Therapies of the Future Wojciech Zareba MD, PhD Video

University of Rochester Faculty for the Seminar:

Wojciech Zareba MD, PhD Professor of Medicine/Cardiology Director of the International LQTS Registry	Ilan Goldenberg, MD Professor of Medicine/Cardiology Director of Clinical Cardiovascular Research Center
Kris Cutter, MS Manager of the International LQTS Registry	Jeffrey Vinocur, MD Assistant Professor of Pediatrics/Cardiology Pediatric Electrophysiology
Spencer Rosero, MD Professor of Medicine/Cardiology Director of Clinical Cardiology Research Electrophysiologist	David Huang, MD Professor of Medicine/Cardiology Director of Electrophysiology Section Electrophysiologist
Bonnie MacKecknie Information Analyst of the International LQTS Registry	Rebecca Horn Information Analyst of the International LQTS Registry

LQTS Seminar 2019

LQTS Patients and Families Seminar Celebrating 40 Years of the International LQTS Registry

LQTS Patients and Families Seminar
Celebrating 40 Years of the International LQTS Registry