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Intellectual & Developmental Disabilities Research at University of Rochester

Intellectual & Developmental Disabilities Research at University of Rochester


The term intellectual and development disability (IDD) encompasses a host of diseases that strike before birth and in early childhood and result in pervasive mental and physical impairment. These disorders can impact how the brain develops and functions, which can affect intelligence and learning and give rise to behavioral disorders, speech and language difficulties, seizures, and impaired motor function. These disorders can also impact the sensory systems – sight, hearing, touch, taste, and smell – and how the brain interprets and processes the world around us. 

While the more common forms include autism spectrum disorders, cerebral palsy, Down syndrome, Fragile X syndrome, there are a host of other rare disorders that fall into the category of IDD. Collectively, an estimated two to three percent of the population suffers from one of these diseases and the lifelong burden of care takes a tremendous toll on these patients and their families.

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Intellectual & Developmental Disabilities Research Center

A hub and infrastructure to promote research in the field of IDD and accelerating the translation of scientific discoveries into the next generation of therapies and interventions that improve the lives of people with IDD.


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University Center for Excellence in Developmental Disabilities (UCEDD)

The Center strives to develop community partnerships, foster accessibility and inclusion, and translate research into best practice with and for people.


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Leadership Education in Neurodevelopmental Disabilities (LEND)

Collaborative interdisciplinary training focused on improving the health of children with neurodevelopmental disabilities and special healthcare needs.