Resources

Blog

The SCDD Connections Blog will keep you up to date on our activities and provide you with information you can use about intellectual and developmental disabilities.

 

Developmental and Behavioral Pediatrics Resource Directory

The Developmental and Behavioral Pediatrics Resource Directory can help you find information, services, and supports. The directory is organized by disability, health condition, and topic. The directory is an ongoing collaborative effort with the Golisano Children's Hospital Family Resource Library.

Advocacy

Local/State

• Center for Disability Rights
• Empire Justice Center
• HCBS Advocacy
• Managing Autism Together Today
• New York State Office of Disabilities
• Parent to Parent of New York State
• Self-Advocacy Association in New York State
• Skip of New York
• Starbridge, Inc.

Federal

• AUCD
• Health and Human Services Office of Disability
• National Council on Disability
• The Art of Impact: A Handbook for Self-Determined Living

Child Well-Being

General Information

• Glossary of Disability Terminology
  Lists common terms used in disability services in New York State. See the addendum for links and additional information about many of the terms listed in the glossary.
• Guide to Special Education
  This guide has been developed by The Legal Aid Society of Rochester, NY, to provide an overview of the special education process. It discusses the definition of special education, the rights of students after being classified, and the process a school district must follow to identify and classify students. It also outlines the rights of parents, and how disputes are handled.
• Institute for Innovative Transition
  The Institute for Innovative Transition works to improve the quality of life for people with developmental disabilities and their families as they transition from school age to adulthood. The institute provides support to community members in the Finger Lakes Region to effectively address transition issues for individuals with developmental disabilities, ages 12 and older. Community members include young adults with developmental disabilities, family members, local education institutions, and agencies who provide service to individuals with developmental disabilities.
• Know Your Rights Toolkit for Parents
  This toolkit provides a summary of disability laws that protect families' rights and includes information on topics like adoption, custody, visitation, family law, and the child welfare system.
• MyPathNY.org
  Would you like to get a job and build a life of your own? MyPathNY.org is your place to start. It connects you to people and resources that can help you find and keep a job, step by step.
• NYS Education Department List of School Districts by County
  Select a county to view all school districts.
• NYS Multiple Systems Navigator Website
  Access helpful health, education, and human service systems information on one user-friendly website.
• Partnering for Successful Outcomes in Education for Youth with Disabilities in Foster Care: School Recommendations (Spanish Version)
  Provides recommendations to school district personnel for maximizing collaboration with foster care service providers and support persons.
• Partnering for Successful Outcomes in Education for Youth with Disabilities in Foster Care: Service Provider Recommendations (Spanish Version)
  Provides recommendations to foster care service providers and support persons for maximizing collaboration with schools.
• Person-Centered Thinking and Planning in Foster Care Training: To Dos and Takeaways
  Companion document to the online training modules for Person-Centered Thinking and Planning in Foster Care.
• Person-Centered Thinking and Planning Tip Sheets for Foster Care in New York
  These quick references will help caseworkers, foster parents, and others learn about person-centered thinking and planning. Use these tip sheets and their resources to get the information you need to help young people more successfully transition to adulthood!
• Using Person-Centered Thinking in Foster Care Quick Reference Sheet
  Includes links and recommendations for working on foundation or preparation skills for person-centered work including understanding self-determination, knowing your rights, finding interests, and setting goals.
• What Helps What Harms - Youth Move National's Policy Document
  A youth-driven resource for positive change; what works and what does not work within youth-serving systems.

Person-Centered Planning Tip Sheets

• Helen Sanderson’s One-Page Profile
• Individualized Skill-Building
• Lane ESD Life Skills Program
• Person-Centered Thinking, Planning, and Culture (Spanish Version)
• Relationship and Community Building (Spanish Version)
• Words Matter: Person-Centered Language (Spanish Version)

Workbooks

• Future Planning Workbook (Spanish Version)
  Developed with New York State stakeholders including youth in care, this workbook can be used by and with young people in foster care to learn about their strengths, likes/dislikes, and needs.
• I Want a Good Life: Supporting My Life with My Plan Workbook
• It’s My Choice… Minnesota Governor’s Council on DD
• Listen to me: USARC/PACE
• Person-Centered Planning Process: Florida’s Positive Behavior Support Project, University of South Florida
• Sonoran UCEDD (Arizona): Person-Centered Planning – Pathways to your Future
  The workbook portion can be found beginning on page 74. It's also available in Spanish.

Diagnostic Centers

• Developmental and Behavioral Pediatrics at the University of Rochester
• Easter Seals
• Margaret L. Williams Developmental Education Center at University Hospital (Syracuse)
• Rochester General Hospital - Behavioral Pediatrics Program
• The Kelberman Center

Early Childhood Direction Centers (ECDC)

• Binghamton (Southern Tier Region)
• Rochester Region (RECDC)
• Syracuse (Central New York Region)

General

• American Academy of Pediatrics (AAP)
• Americans with Disabilities Act (ADA)
• Autism Society of America (ASA)
• Autism Speaks
• Centers for Disease Control and Prevention (CDC)
• Developmental Disabilities Service Office (DDSO)
• Health Resources and Services Administration (HRSA)
• Monroe Housing Collaborative
• Museum of disABILITY History
• National Dissemination Center for Children with Disabilities (NICHCY)
• National Institute of Mental Health (NIMH)
• National Institutes of Health (NIH)
• New York State Education Department-Autism
• New York State Regional Centers for Autism Spectrum Disorders (RCASDs)
• OPWDD
• Special Olympics
• Spina Bifida Association of Western New York, Inc.
• The ARC