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Useful Links

The Alzheimer’s Project – Presented by HBO and NIA

In 2009, the National Institute on Aging partnered with HBO to create a documentary on Alzheimer's Disease (AD). The documentary series and corresponding website explore current research in the science of AD and examine many of the challenges AD brings to patients, caregivers, and communities.

Geriatric Mental Health Foundation (GMHF)—Developed by the American Association for Geriatric Psychiatry, the GMHF was developed to promote a better understanding of mental health concerns among the elderly. Their website provides information on a variety of topics, including AD, anxiety, depression, and health aging.

Alzheimer’s Association – Rochester Chapter—The Rochester, NY Chapter of the Alzheimer’s Association provides resources and services specific to the greater Rochester community and surrounding counties. Their website offers information about AD and coping with the disease in addition to presenting information regarding support for patient care and caregivers, educational programs, and opportunities for advocacy and volunteering.

Alzheimer’s and Dementia Program—Unity Health System is a health care network that serves the city of Rochester and western Monroe County. Several programs are available to members of the community affected by dementia and Alzheimer’s disease.

Alzheimer's Disease Education and Referral (ADEAR) CenterThe ADEAR website offers up-to-date information and resources pertaining to Alzheimer’s disease provided by the National Institute on Aging (NIA). The NIA is an institute of the NIH, a U.S. federal government agency that provides accurate, current information about all aspects of aging research, information about clinical trials, educational materials and resources about aging for the general public, and information for researchers and health professionals.

Family Caregiver Alliance (FCA)—The FCA is a national center on caregiving that offers support to families who care for loved ones with chronic, disabling health conditions. Support is provided for caregivers through education, services, research and advocacy programs. Online resources include discussion groups, online workshops, and collections of fact sheets and other publications.

Alzheimer’s Disease Cooperative Study (ADCS)—This link provides an overview of the ADCS, a collaborative effort developed by the National Institute of Aging and the University of California San Diego to investigate the potential usefulness of drugs not developed by industry for the treatment of AD. Descriptions of past and present studies conducted by the ADCS are available on this site.

Alzheimer’s Association – National Site—This site contains information and resources provided by the Alzheimer’s Association, the most prominent voluntary health organization in AD care, research, and support. Patients and caregivers are also welcomed to contact the 24/7 Helpline number at 1-800-272-3900.