Reading Resources
Reading Resources
Lecanemab (Leqembi) was recently given accelerated FDA approval for the treatment of mild cognitive impairment due to Alzheimer’s disease and mild Alzheimer’s disease dementia. This medication is an infusion that will be administered twice monthly in an infusion center and requires regular monitoring for side effects through a series of head MRIs. If you are a patient at the URMC Memory Care Program, please contact your provider if you are interested in finding out if you or your family member qualify for treatment with lecanemab. If you are interested in finding out more about clinical trial opportunities at ADCARE, contact us at 585-602-5200.
Books
There are numerous books available on the history, research, and effects of Alzheimer’s Disease (AD). Not only can reading these books bring you closer to understanding the disease, studies suggest that reading and keeping your mind active may help protect you from developing AD. So grab a book and start reading!
On Alzheimer’s Disease…
- The Alzheimer's Project: Momentum in Science by John Hoffman and Susan Froemke This is a companion book to the HBO Documentary Films series that explores the cutting-edge research on Alzheimer's disease that is creating new hope for the future.
- The Forgetting: Alzheimer’s Portrait of an Epidemic by David Shenk In an attempt to uncover the origins of the disease, journalist David Shenk travels through history to explain the clinical findings of German neurologist Dr. Alois Alzheimer. Shenk’s journey takes him from the modern world of AD, all the way back to the time of Plato, who chronicled his own senility. *Available in eBook
- Alzheimer's from the Inside Out by Richard Taylor This book focuses on individuals with early-stage Alzheimer's disease.
For the Caregiver…
- The 36 Hour Day by Nancy L. Mace and Peter V. Rabins Produced by two members of Johns Hopkins University Department of Psychiatry and Behavioral Sciences, this book offers basic facts about dementia and how to deal with the disease as a caregiver. *Available in eBook
- The Compassionate Guide to Dementia for Caregivers by Enlightened Insights Ink Written to support caregivers in the US, Canada, and the UK, this comprehensive companion guide addresses 100 frequently asked questions, offering the knowledge and tools to make each day more manageable and meaningful.
- Pathways to Well-Being with Dementia: Information from People living with Dementia, Care Partners and Leading Dementia Specialist: Second Edition This is a comprehensive book providing personal insight for those living with the disease and their caregivers.
- Age in Place: A Guide to Modifying, Organizing and Decluttering Mom and Dad's Home by Lynda Shrager OTR, MSW A practical step-by-step, room-by-room guide to simple modifications that can help seniors make their homes safer and easier to navigate.
Personal Accounts of Alzheimer’s Disease…
- A Tattoo on My Brain by Daniel Gibbs A book written by a neurologist who describes his own experience of being diagnosed and living with the disease.
- Losing My Mind: An Intimate Look at Life with Alzheimer’s by Thomas DeBaggio
In this unusual memoir, DeBaggio chronicles his own mental deterioration that began with a gradual loss of memory, which lead to a diagnosis of AD at the age of 57. *Available in eBook
- The Story of My Father by Sue Miller
In her first nonfiction book, novelist Sue Miller contemplates the nature of memory as she watches her father navigate his last years with AD. *Available in eBook
- The Family on Beartown Road: A Memoir of Love and Courage by Elizabeth Cohen
This memoir describes the author’s struggle to balance raising her daughter and caring for her father in the later stages of his AD. The challenges of caring for both provoke surprising and moving comparisons as the author parallels her daughter’s growth with her father’s decline. *Available in eBook
Please note that this material shall not be used in any manner that may be considered derogatory to the title, content, or authors of the material, or to the corresponding publisher.
Selected Abstracts of Articles from Our Faculty and Staff or studies the program has participated in:
Smartwatch and smartphone-based remote assessment of brain health and detection of MCI
Donanemab in Early Symptomatic Alzheimer Disease: The TRAILBLAZER-ALZ 2 Randomized Clinical Trial
ADNI in the era of Alzheimer's disease treatment: A review of ADNI studies from 2021-2022
Role of citalopram in the treatment of agitation in Alzheimer's disease. (2014)
Effect of citalopram on agitation in Alzheimer disease: the CitAD randomized clinical trial. (2014)
Two phase 3 trials of bapineuzumab in mild-to-moderate Alzheimer's disease. (2014)
Depression predicts cognitive disorders in older primary care patients (2010)
Memantine in the treatment of mild-to-moderate Alzheimer's disease (2007)
Memantine in the treatment of Alzheimer's disease (2006)
Effectiveness of atypical antipsychotic drugs in patients with Alzheimer's disease (2006)