Join the Registry Call us toll-free at (888) 925-4302 to request an application, or Download an application from one of the links below. Instructions You will need a copy of Adobe Acrobat to view the forms. If you do not have Acrobat on your computer, you can download it free from Adobe. Please select the appropriate link below, as the forms are designed to meet your particular needs. There are different forms for adults and children (under 18 years of age). Once you have downloaded the forms, please print and complete them and return by mail using the postage paid label provided. Please download and complete ALL of the forms so we are able to process your application as quickly as possible. If you need assistance, please call us at (888) 925-4302. Myotonic Dystrophy Adult with myotonic dystrophy Child with myotonic dystrophy Unaffected family member (adult) Unaffected family member (child) FSHD Adult with FSHD Child with FSHD Unaffected family member (adult) Unaffected family member (child) Help us Recruit If you are a clinic, physician’s office, or patient support group, please contact us to request multiple packets. Please indicate the quantity of each type of packet needed. We will be happy to ship them to you!