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UR Medicine

UR Medicine / Neurology / Clinical Study of Spinal Muscular Atrophy (SMA) / Pediatric Neuromuscular Clinical Research


PNCR Measures

  • Pediatric Quality of Life Inventory (PedsQL)
  • Gross Motor Function Measure (GMFM)
  • Expanded Hammersmith (HFMSE)
  • Children's Hospital of Philadelphia Test of Strength in SMA1 (CHOPTOSS)
  • Dual Energy X-ray Absorptiometry (DEXA)
  • Motor Unit Number Estimation (MUNE)
  • Pulmonary Function Tests
  • Myometry
  • Magnetic Resonance Imaging (MRI)
  • Bioelectrical Impedance Analysis (BIA)
  • Clinical Meaningfulness Questionnaire
  • 6 Minute Walk Test (6MWT)
  • 10-Meter Run/WalkWalk
  • Pediatric Evaluation of Disability Index (PEDI)
  • Caregiver Burden Inventory (CBI)