UR Medicine / Neurology / Clinical Study of Spinal Muscular Atrophy (SMA) / Pediatric Neuromuscular Clinical Research PNCR Measures Pediatric Quality of Life Inventory (PedsQL) Gross Motor Function Measure (GMFM) Expanded Hammersmith (HFMSE) Children's Hospital of Philadelphia Test of Strength in SMA1 (CHOPTOSS) Dual Energy X-ray Absorptiometry (DEXA) Motor Unit Number Estimation (MUNE) Pulmonary Function Tests Myometry Magnetic Resonance Imaging (MRI) Bioelectrical Impedance Analysis (BIA) Clinical Meaningfulness Questionnaire 6 Minute Walk Test (6MWT) 10-Meter Run/WalkWalk Pediatric Evaluation of Disability Index (PEDI) Caregiver Burden Inventory (CBI)