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UR Medicine


Brain Injury Resources

Brain Injury Association of America

  • Offers support groups and many resources for brain injury survivors in NYS

TBI Waiver Program NYS

  • The New York State Department of Health (DOH) Traumatic Brain Injury (TBI) waiver program provides services to persons with a TBI. The purpose of the program is to help persons with a TBI live in the community setting of their choice. Medicaid funds the program.
  • To enroll in the TBI waiver, you must:
    • Be a Medicaid recipient;
    • Choose to live in the community rather than in a nursing facility;
    • Be between 18 and 64 years old at the time you apply for waiver services 
    • Have a primary diagnosis of TBI or similar non-degenerative condition that results in deficits similar to a TBI such as stroke, or anoxia (oxygen supply loss)
    • Be assessed to need nursing home level of care; and
    • Have an approved plan of available services that reflects the services you need in order for you to live safely in the community.
    • Rochester Region: Monroe, Wayne, Ontario, Seneca, Genesee, Livingston, Yates
  • Phone: (585) 368-3354

Brain Injury Support Group Through URMC

Pieter’s Life Center

  • Adaptive gym in Rochester, offers memberships, also have land based or aquatic PT

CP Rochester

  • Clinical and therapeutic services
  • Community services
  • Day habilitation
  • Free standing respite
  • Accessible home renovations
  • Individual support services
  • Residential services
  • Self direction services
  • Stroke support group
  • Adaptive sports

Happiness House

  • Clinical and therapeutic services
  • Developmental disability services
  • Prevocational services
  • Traumatic brain injury services (day program, home and community based services, service coordination)
  • Nursing home transition and diversion waiver services
  • Self direction services
  • Region: Canandaigua, Ontario County
  • Phone: (585) 394-9510

Arc of Monroe

  • Health services
  • Family services
  • Residential services
  • Day programs
  • Employment readiness services and supported employment services
  • Life planning services
  • Transition services
  • Contact Information:
    2060 Brighton Henrietta Townline Rd.
    Rochester, NY 14623
    (585) 271-0660

Hickok Center for Brain Injury, Inc.

  • The Hickok Center for Brain Injury is to provide a safe, supportive environment that encourages people with brain injuries and other neurological challenges to design and direct their own life
  • Day and evening programs, community engagement, vocational training
  • Contact Information: 
    2320 Brighton Henrietta Town Line Rd., Suite 400 & 500
    Rochester, NY 14623
    (585) 271-8640

Article 16 clinics

  • OPWDD Article 16 Clinics principally serve persons with Intellectual/Developmental Disabilities (I/DD) and their collaterals, either at the main clinic site or at satellite sites.
  • Article 16 Clinic services are habilitative in nature, as they improve or limit disabling conditions, disease, or illnesses through the provision of assessments and therapies to persons with I/DD, through an interdisciplinary model of care.
  • Services provided in Article 16 Clinics help individuals with I/DD remain in, or move to, the least restrictive setting and make services available that would otherwise be inaccessible.
  • This includes maintenance physical therapy for patients who are looking for long term PT maintenance programs for ROM, strength, etc, ex: CP Rochester, Happiness House

Nazareth College Neurological Clinic

Bridges for Brain Injury

  • Community services and recreation
  • Can help set patients up with care management

Rochester Accessible Adventures

Concussion Alliance

  • Offers up to date education, research, resource recommendations for concussion

Drive On Program

  • DriveOn, is a driving school located in Upstate New York that helps people of all ages and abilities to drive safely and confidently. Whether your goal is to obtain or retain a driver’s license, our driver specialists will train you in a full range of roadway environments.
  • Phone: (585) 271-1894

Acces VR

  • ACCES-VR assists individuals with disabilities to achieve and maintain employment and to support independent living through training, education, rehabilitation, and career development.
  • Phone: 1-800-222-JOBS (5627)