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Autism rate rises to 1 in 68 children

According to a new estimate issued March 27 by the Centers for Disease Control (CDC) the number of kids with autism has risen sharply. The data identifies 1 in 68 children (1 in 42 boys and 1 in 189 girls) as having Autism Spectrum Disorder (ASD). The estimate, based on data of 8-year-old children in 11 sites across the U.S. is a 30 percent increase from the 1 in 88 reported two years ago.
 
In a recent Health Matters blog, Susan Hyman, M.D., autism expert and chief of Neurodevelopmental and Behavioral Pediatrics at UR Medicine’s Golisano Children’s Hospital, explains four major needs underscored by these new statistics and the beneficial resources we have in the Rochester community that provide early intervention and family support.
 
Autism is one of the seven priority programs of Golisano Children’s Hospital’s $100 million campaign and the prevalence of these new findings demonstrates the need for more research, treatment and support. Please consider making a gift toward this program. Your support could help enhance care, advance research, and educate future professionals who will work with children diagnosed with autism today. Learn more.
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NICU Patient's Fairy Tale Journey

Did you know that Golisano Children's Hospital is not just a place of healing, but also a place of magic and enchantment? The Colon family and their daughter Maiya experienced this magic first hand during Maiya's stay in our Neonatal Intensive Care Unit (NICU). Maiya's mother, Maria Colon, has compiled her memories of Maiya's NICU experience into a book titled, Becoming Maiya's Mommy, that dives into Maiya's story with the fairy tale of "Princess Maiya the Mighty," as its introduction. Through Maria's writing, Golisano Children's Hospital is transformed into a land of nursemaids, mighty knights, and powerful wizards all working around the clock to save Princess Maiya the Mighty.

Maiya was born seven weeks early in August 2012. Though she had an easy birth, Maiya was admitted to the NICU at Golisano Children's Hospital because of her premature arrival. For the first few days Maiya was progressing along smoothly, but she, unfortunately, took a turn for the worse and complications stemming from her premature birth began to develop. As Maiya's condition deteriorated, our NICU team sprang into action to stabilize her condition and bring her back to health.

Read more...

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Spread the Word to End the Word

This week, Cafe 601 at the University of Rochester Medical Center broke into a party, celebrating with a DJ and a blues band the many pledges from its diners to end the use of the “R-word.”

All across the University of Rochester, other groups joined The Golisano Foundation to Spread the Word to End the Word. with the encouragement of developmental pediatricians at Golisano Children’s Hospital and the school’s chapter of the American Academy of Developmental Medicine and Dentistry. Eastman Dental set up a table in its lobby and took pledges, and for the first time, our friends on the University of Rochester‘s River Campus joined in taking pledges and celebrating our differences.
 
Medical School and River Campus students aimed to inspire respect and acceptance of individuals with intellectual or developmental disabilities through raising the consciousness of society about the hurtful impact of the “R-word” (“retard” or “retarded”). Students got pledges from hundreds of people while also raising awareness of abilities, not disabilities.
 
Have you taken the pledge yet? Take it now at www.r-word.org.
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Take a Look Inside Our Future Hospital Building

In preparation for Thursday and Friday’s Drive for Miracles Radiothon broadcast, members of the Rochester Clear Channel Radio team had the opportunity to take a look inside some of the areas of the future Golisano Children’s Hospital building.

After learning more details about the NICU and general care rooms while standing in the two mock up rooms, the crew was off to the main construction site, hard hats and safety gear in hand. Members of the planning and building team from the University of Rochester and LeChase Construction took the group through what will soon be the main lobby and up several floors into the children’s hospital.

The space for the future Ronald McDonald House Hospitality Suite and the Neonatal Intensive Care Unit (NICU) floor were two of the main areas that were explored. The suite  will allow families to find respite during their stay, giving them a place to cook, do laundry, and bond with one another during a difficult time. Near the suite will be a resource library, where guardians and visitors can learn more about the illness or injury their loved ones have.

Close to 1,200 premature newborns are annually admitted to the NICU. Being able to stand in what will house 44 NICU rooms was remarkable. Just seeing the framework of the different rooms showed how much space and privacy families will be provided when staying with their babies.

To make a gift toward the future Golisano Children’s Hospital, please visit givetokids.urmc.edu or call Advancement at (585) 273-5948.

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