Deaf Community Partners
The Rochester Prevention Research Center (RPRC) has a strong commitment to community based participatory research (CBPR). CBPR is a way to involve community partners in all stages of RPRC research. RPRC has grown tremendously since we opened in 2004, and much of that growth has been with our work with the Deaf community. We want to continue to strengthen and grow our community partnerships and collaborations.
We value CBPR and carefully considered ways to grow our community partnerships to match the growth of RPRC projects and programs. After discussion with many stakeholders we decided on a new approach for RPRC collaboration with the Deaf Community. We are forming several small community committees, one for each RPRC project. This approach is based on a model used by Barbara Israel, a well-known CBPR researcher from the University of Michigan.
To watch the 2014 vlog about the new Deaf Community Committees, click here.
To read the full article, click here.
To read about the history of Deaf community collaboration, click here.
If you are interested in joining any of the below community committees, please email Kelly Matthews at Kelly_Matthews@urmc.rochester.edu (VP 585-512-8519).
Deaf Health Survey Community Committee
The Deaf Health Survey was collected over 2013/2014 and will provide a “snapshot” of the health of the overall deaf community here in Rochester. Activities for this project's community committee include: assisting with data analysis, interpreting results of the survey, choosing survey topics for the next survey, and hosting town hall meetings to share the results of this survey with our community.
Click to learn more about the Deaf Health Survey.
New York State Deaf Health Survey Community Committee
More information to come soon.
Deaf Weight Wise Community Committee
Deaf Weight Wise is our most recent Clinical Trial that provided a research intervention for those aged 40-70 (2009-2014). The goal of Deaf Weight Wise was to teach participants healthy lifestyle habits, including proper nutrition and physical activity. Activities for this project's community committee will include sharing research results with the community, hosting town hall meetings to share results, and also providing feedback on the new cycle of Deaf Weight Wise, which will be known as DWW 2.0.
Click to learn more about the Deaf Weight Wise .
Deaf Weight Wise 2.0 Community Committee
Deaf Weight Wise 2.0 is our new core research project for 2014-2019. This is a Deaf Weight Wise intervention and Clinical Trial that will be adapted to suit those from ages 21-70. This will include both group interventions and one on one intervention through the VideoPhone. Activities for this project's community committee will include, assisting with the new curriculum, providing feedback on our research methods,and actively recruit community members to enroll in the study.
Deaf2 Community Committee .
Pilot video call center to enhance access to HIV counseling with Deaf sign language users in New York state. Raising awareness with NYS Deaf communities regarding accessible information, testing, and care.