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UR Medicine


Medications in Muscular Dystrophy

With helpful information that you’ve shared with us, a pharmacy research team has studied medication use in members of the National Registry of Myotonic Dystrophy and FSHD Patients and Family Members. Below are summaries of their findings to date:

Special thanks to the following at the Wegmans School of Pharmacy (WSOP) at St. John Fisher College (Rochester, NY) faculty and students for their leadership on these projects and for sharing their results with National Registry members.


Current students

  • Kimberly Miller, 3rd year
  • Deidre Skalla, 3rd year 

Pharmacy school graduates

  • Bryan Fitzgerald, PharmD - Pharmacy resident at Niagara Falls Memorial Hospital, Niagara Falls, NY
  • Andrew Walker, PharmD - Pharmacist at Brattleboro Memorial Hospital; Guilford, VT
  • Joanne Smith, PharmD - Critical Care Pharmacist, Cleveland Clinic; Cleveland, OH


  • Amy Parkhill, PhD
  • Kelly Conn, PhD