Contact Us

Phone/Fax

• Toll free: (888) 925-4302
• Local (Rochester, NY): (585) 276-0004
• Fax: (585) 276-2492

Address

National Registry of Myotonic Dystrophy and FSHD

University of Rochester Medical Center
601 Elmwood Avenue, Box 673
Rochester, NY 14642-8673

Email

dystrophy_registry@urmc.rochester.edu

Please include your phone number in your email so we can call you if needed.