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Supportive & Palliative Care Service

UR Medicine / Neurology / Our Divisions / Neuropalliative Care / Resources- Local

 

Resources- Local

Acupuncture

  • Mindful Medicine (https://www.mindfulmed.com/) 421 Penbrooke Dr. #12A, Building D, Penfield, NY 14526. (585)481-1811. Dr. Olden is an Internal Medicine physician offering Acupuncture in Rochester NY, with specialized training in the management of symptoms such as pain, nausea, depression, anxiety, shortness of breath, and insomnia.
  • University of Rochester Medical Center Offers acupuncture services in various locations.  (585)341-9150
  • University of Rochester Pain Treatment Center (Dept. of Anesthesiology and Perioperative Medicine) 180 Sawgrass Drive, Suite 210, Rochester, NY 14620; (585)242-1300 has an acupuncturist on staff.

Adaptive (Inclusive Recreation)

  • Pieters Family Life Center (www.pietersfamilylifecenter.org)  1025 Commons Way, Rochester, NY 14623, (585)487-3500 Has a fitness classes, a fitness center, and personal training that is accessible to persons with disabilities and seniors. Other services include aquatic classes, massage, physical therapy, speech-language pathology, and creative arts therapy as well as various social activities.  Monthly membership is $15 for individuals and $30 for families.
  • Central Roc Gym (http://www.centralrockgym.com/rochester/adaptive-climbing/) Partners with Adaptive Climbing Group to provide climbing opportunities for those with chronic illness or disabilities.
  • Black Creek Fishing Access Site Located on Black Creek Road in Chili has an accessible fishing platform and floating dock, paved parking lot with accessible parking, picnic tables.
  • Braddock - Bay Wildlife Management Area Located in the towns of Parma and Greece, NY.  Provides accessible wildlife observation and fishing platform on Salmon Creek.
  • Genesee River at Rochester Naval Militia Located off Lake Ontario State Parkway on the east bank.
  • Rochester Accessible Adventures (https://rochesteraccessibleadventures.org/)
  • New York State Department of Environmental Conservation (http://www.dec.ny.gov/outdoor/34038.html)

Art, Music, and Dance Therapy

  • Spectrum Creative Arts Center (https://spectrumcreativearts.org)  at 3300 Monroe Avenue, Rochester, NY 14618, (585)383-1999 Offers individual music and art therapy.  
  • Rochester Art Therapy (www.rochesterarttherapy.com) at 595 Blossom Road, Suite 310, Rochester, NY 14610, (585)420-8494 offers art therapy; specialties include grief and compassion fatigue.
  • Halligan Art Therapy Services (www.halliganarts.com) located at 215 Alexander Street, Suite 200. Rochester, NY 14607; (585)557-3323 offers art therapy with specialization in working with people who have dementia, Alzheimer’s Disease, and Traumatic Brain Injury. They also work with issues of grief and loss.
  • Nazareth College York Wellness and Rehabilitation Institute 4245 East Avenue, Rochester, NY 14618; (585)389-2541.  Student clinicians offer art therapy under the direction of licensed art therapists.

Bodywork/Massage

Caregiver Support

  • Lifetime Care David H. Klein Center for Compassion and Healing (https://www.rochesterregional.org/services/hospice-care/patient-and-family-resources) 3111 Winton Road South, Henrietta, NT; (585)475-8800.   Offers wellness days for family caregivers, bereavement groups for surviving spouses, young adults. Adults who have lost a parent, and veterans. There is also a group for healing after suicide and one for healing after addiction or overdose.
  • Family Caregiver Alliance (https://www.caregiver.org) Offers online support groups for caregivers. This organization has a goal of providing services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.  Call (800)445-8106.
  • The Veterans Association (https://www.caregiver.va.gov) has a range of information and resources for caregivers.  There is a Caregivers Support Line and a section of tips and tools as well as many downloadable information sheets and brochures.
  • Domus Pacis (https://www.domuspacis.org/) Provides respite places for cancer patients and families.

Float Tank

  • The Bodymind Float Center (www.bodymindfloatcenter.com) at 622-2 Park Avenue, Rochester, NY; (585)413-0616. Floating involves relaxing in warm salt water pools or tanks and is said to help with pain management and a sense of well-being.

Grief Services

  • Lifetime Care The David H. Klein Center for Compassion and Healing (https://www.rochesterregional.org/services/hospice-care/patient-and-family-resources) Contact at (800)734-1410 or (585)214-1000.  Services include massage therapy, acupuncture, grief counseling, music and art therapy, Yoga and Tai Chi instruction and other health and wellness services.
  • The Grief & Trauma Recovery Centre (https://ptsdexpert.vpweb.com/) at 1100 University Avenue, Suites 203/204, Rochester, NY  14607; (585)735-4785 offers a variety of counseling services to those dealing with grief and loss.
  • Crossbridge Wellness Affiliates (www.crossbridgewellness.com) at 2000 S. Winton Road, Blgd. 4, Suite 200, Rochester, NY 14618; (585)473-2678 offers a general grief group and one for parents grieving the loss of their children.
  • GriefShare (https://www.griefshare.org) An international organization that supports grief groups at various locations.  
  • The Compassionate Friends (www.compassionatefriends.org) A national organization that provides grief support.  There is a chapter at the First Unitarian Church, 220 South Winton Rd., Rochester, NY 14610-2956.  This group meets on the 2nd and 4th Tuesday of each month from 7-9 PM. Contact Steven at (585)727-9584 or email stecola1214@yahoo.com.  The Rochester chapter’s website is http://www.tcfrochester.org.
  • Rochester Center for Pet Grief and Loss (http://www.petlossroc.com) At 95 Allens Creek Road, Building 1, Suite 114, Rochester, NY 14618; (585)615-5492 offers a support group for people who are grieving the loss of a pet.

Healthy Eating

Integrated Cancer Care (Oncology)

  • The University of Rochester Medical Center offers integrated care and wellness services for cancer patients at the Pluta Cancer Center, 125 Red Creek Drive, Rochester, NY 14623; (585)275-5830.  Services include exercise programs, massage therapy, acupuncture, nutritional services, cooking classes, yoga (for patients and caregivers), art therapy, Qi Gong, Tai Chi, meditation, and yoga.

Medical Hypnosis

  • Blossom Hypnosis (www.cognitivehealing.com/hypnosis-services). Located at 20 Office Parkway, Suite 201, Pittsford, NY 14534; (585)281-2988 Certified hypnotherapist provides treatment for anxiety, stress management, and pain management.

Mental and Spiritual practices

  • The Rochester Zen Center (http://www.rzc.org) 7 Arnold Park, Rochester, NY 14607-2082; (585)473-9180 offers group and individual instruction in meditation.
  • UR Center for Community Health and Prevention (https://www.urmc.rochester.edu/community-health/patient-care/reduce-stress.aspx) offers a group program in Mindfulness Based Stress Reduction 46 Prince Street, Rochester; (585)530-2050.  
  • Buddhi Institute (http://www.Buddhiinstitute.com) Offers wisdom courses based on mindfulness, spiritual development programs, private coaching sessions, meditation classes and retreats, and guidebooks for individual study and meditation practice. The teachings and trainings do not focus on a particular religious tradition. A women’s group is available. 500 Helendale Road, Suite 260, Rochester, NY; (585)672-5250 
  • The Assisi Institute (http://www.assisi-institute.org) at 1400 North Winton Road, Rochester, NY 14609; (585)473-8731 offers classes in Kriya yoga and meditation (based on mystic Christianity), including an online meditation course.  A men’s spirituality group is held once a month.  
  • Mercy Spirituality Center (http://www.mercyspiritualitycenter.org) 65 Highland Avenue, Rochester, NY 14620; (585)473-6893 offers classes and retreats on topics related to spirituality.  Recent topics included centering prayer, Christian meditation, and art and spirituality.  There are also 12 Step programs and spiritual direction is available.
  • Contemplative Outreach of Rochester (https://contemplativeoutreachrny.com/) A list of contemplative prayer groups in the Rochester area.

Neurofeedback/Biofeedback

  • Leslie Randall, LCAT, ATR, BC (www.rochesterminds.com)  625 Panorama Train, Building 1, Suite 230 Rochester, NY 14625; (585)257-0886. Offers cognitive behavioral therapy, art therapy, biofeedback, neurofeedback and art therapy.

Pet Assisted Therapy

  • Lollipop Farm (https://www.lollypop.org/) at 99 Victor Road, Fairport, NY 14450; Contact Esca M. Strumph at (585)223-1330, ext. 139 for information on pet assisted therapy.
  • Equicenter (www.equicenterny.org)  3247 Rush Mendon Road, Honeoye Falls. NY 14472; (585)624-7772. Offers therapeutic riding for people of all ages.

Physical Therapy

  • Rock Steady Boxing (https://www.rocksteadyboxing.org/)  Boxing program for people with Parkinson’s Disease.  Local programs include:
  • Safe at Home Physical Therapy 1290 Blossom Drive, Suite 2, Victor, NY. (585)398-6050.
  • Inside Genesee Valley Physical Therapy 1670 Empire Blvd. Webster, NY 14580. (585)469-0201
  • Flower City Perinton Square (585)314-1823
  • Wellness 360 (https://www.wellness360fitness.com/) Specialized Physical Therapy for Parkinson’s disease, Chronic Pain and Neuro-Rehab.
  • Thrive (https://thriverochester.com/) Home physical therapy in the Rochester area.

Relational Practices/Mental Health

  • URMC Department of Psychiatry:  Institute for the Family (https://www.urmc.rochester.edu/psychiatry/institute-for-the-family/strong-family-therapy/services) Strong Memorial Hospital, 601 Elmwood Avenue, Rochester, NY 14642; (585)275-0320 provides therapeutic and consultation services to individuals, couples, and families across the lifespan.  
  • URMC Mental Health and Wellness: General Adult Outpatient Services (https://www.urmc.rochester.edu/mental-health-wellness/adult-services/outpatient.aspx)
  • Strong Memorial Hospital, 300 Crittenden Blvd. Rochester, NY 14642; (585)273-5050.  Provides individual, family, couples, and group counseling for individuals 18 years of age and older.  They offer specializations in Cognitive Behavioral Therapy, Interpersonal Therapy, Dialectical Behavioral Therapy, and Problem Solving Therapy.  There is also an Adult Ambulatory Clinic at Science Parkway (315 Science Parkway, Rochester, NY 14620).  Spanish Language Services are also available.
  • Older Adult Outpatient Clinic (585)279-7849 Provides specialized mental health care for adults age 65 and older, including individual, group, and family counseling.
  • Spiritus Christi Mental Health Center (https://www.scmentalhealth.org/) 121 North Fitzhugh Street, Rochester, NY 14614; (585)325-1180, ext 114 Faith-based organization that offers free mental health services to those who cannot afford the cost of their insurance co-payments.  Services include psychotherapy, family therapy, group therapy, psychiatric collaboration and referral, case management/advocacy, and peer support meetings.
  • Perspectives Mental Health Counseling (www.perspectivesroc.com) 45 Prince Street, LL004, Rochester, NY 14607; (585)406-3012.  Offers therapy groups for individuals coping with a medical illness and another for spouses who are caring for a person with medical issues.  E-mail jbondperspectives@gmail.com.
  • Finding others: The Rochester area has many providers of counseling services.  They include psychiatrists (MD’s), nurse practitioners (NP’s), psychologists (Ph.D. or Psy.D. ), Licensed Marriage and Family Therapists (LMFT’s), Licensed Mental Health Counselors (LMHC), and social workers (LSW or LCSW).  Psychiatrists and NP’s are the only practitioners who can prescribe psychotropic medications. Psychologists as well as some psychiatrists can do testing to identify the type and severity of mental illnesses.  Any of the above may offer counseling services to individuals, families, and groups. Below are two online resources for identifying providers who meet your needs:
  • http://www.psychologytoday.com/rochester/counselors .  This is a searchable data base that lists counselors by geographic location, types of clients seen, therapeutic modalities used, and insurance accepted.
  • http://www.goodtherapy.org/therapists/rochester  This is a similar searchable data base.
  • https://www.therapytribe.com is another searchable data base.

Tai Chi and Qi Gong

  • The Rochester T’ai Chi Ch’uan Center (https://www.rtccc.com/)  595 Blossom Rd. Suite 304, Rochester, NY 14610; (585)461-0130 (preferred contact is through email link available on their web site).  

Therapeutic Yoga

  • Sati Virya (www.sativirya.com)  Lisa D. Maynard, LMSW, ACSW, TC-TSY-F, RYT offers meditation, mindfulness, and movement yoga classes, and trauma-sensitive yoga.
  • Michael Amy Yoga and Physical Therapy (www.michaelamyyogapt.com); (585)451-3851 or michaelamyyogapt@gmail.com.  Adaptive/Inclusive yoga class offered for those with physical disabilities and those who use wheelchairs.  Offered Thursdays 4:15-5:30 at Central Rock Gym, 725 Averill Avenue, Rochester, NY 14607 and taught by a physical therapist who is also a registered yoga teacher.

Speech-Language Pathology Services

Support Groups

  • Huntington’s Disease
  • Migraine
  • Parkinson’s Disease
    • The Parkinson’s Foundation of Greater Rochester (https://www.parkinson.org) has groups that are open to anyone diagnosed with Parkinson’s, spouse/partner, support people, and friends.  There is also a young-onset support group for people diagnosed in their 30’s, 40’s, and 50’s.  A group for newly diagnosed patients meets two times per year and there is a 6-week self-care workshop for caretakers/care partners.  Monthly education sessions are offered August-May of each year. For information, call the PFGR office at (585)234-5355.
  • Alzheimer’s and Dementia
    • Alzheimer’s Association (https://www.alz.org)
    • Rochester and Finger Lakes Region Chapter of the Alzheimer’s Association (https://www.alz.org/rochesterny) 435 East Henrietta Road. Rochester, NY 14620; (800)272-3900 provides programs, services, and advocacy to people living in a nine-county area.  A support group is held on the third Wednesday of each month from 6:30-7:30 PM for patients, caregivers, family, and friends.  Caregiver support groups are offered at multiple locations. 
    • Dementia Mentors (https://www.dementiamentors.org/) Hosts virtual memory cafés, a social gathering for those living with dementia. One-on-one mentoring sessions are also offered.
  • Multiple Sclerosis
    • National Multiple Sclerosis Society (https://www.nationalmssociety.org) 800/344-4867.  Many resources and information are available, including an MS navigator to help identify solutions and provide access to resources.
    • Upstate NY Chapter (https://www.nationalmssociety.org/chapters/NYR) 1000 Elmwood Avenue, Suite 900, Rochester, NY 14629; (585)271-0801.  Provides groups and discussions as well as services and support for persons diagnosed with MS.  A support group is offered at the NMSS chapter office at 1000 Elmwood Ave., Suite 900, Rochester, NY 14620 on the 2nd Tuesday of the month from 6:30-8:00 pm. For information, contact Dee Mascari at (800)344-4867 ext. 70341 or email Dee.Mascari@nmss.org.
  • Brain Cancer
    • T.H.E. Brain Trust (https://www.braintrust.org) 459 Broadway, Suite 302, Everett. MA 02149; (877)252-8480 offers on-line support groups for people coping with different types of brain tumors.  One of the groups is for people living with glioblastoma; another is for caretakers.

If you would like to have us add a resource to our site, please email us at: NeurologyPalliativeCare@URMC.Rochester.edu