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Emergency/Disaster Preparedness Plan

  • The Ambu bag is your PRIMARY piece of emergency equipment. This should be with your child at all times.
  • Have an emergency contact list of providers and family members readily accessible.
  • Ensure the ‘Go-Bag’ travels with your child at all times.
  • Your home should have fire extinguisher, smoke alarms and carbon monoxide detector. Check batteries every 6 months.

Long Term Loss of Power

  • Ensure back-up ventilator battery has full charge. Check this daily. The internal battery only provides power to the ventilator for a limited amount of time.
  • You can estimate how long power is expected to be out by calling local power provider.
    • RG&E (800-456-5153)
    • NYS Electric and Gas (800-456-5153)
    • National Grid (315-428-5140)
  • Identify a facility with a backup power source(such as emergency power generator). Call and discuss your child’s needs, and availability of the facility during possible emergency. Possible facilities include:
    • Local police, fire or EMS station
    • Nearest hospital
    • Local hotel
    • Friend or family member who has not lost power, or has a generator at their home
  • When power is restored, ensure settings of the ventilator and other devices have not changed, as some will reset to factory settings.

Options for Back-Up Power at Home

  • External battery pack
    • This is a portable battery that produces AC and/or DC power.
    • There are different types and capacities, typically this will need to produce more than 300 watts to power a ventilator alone.
    • This needs to be kept to a maximum charge, follow manufacturer instructions.
  • Generator
    • Generators need to be stored in a well ventilated area. Apartment buildings are not appropriate for generator use due to being gas powered.
    • Talk with your DME provider to calculate how much power is needed to power devices
  • Car Battery and Power Inverter
    • Do not leave car running in an enclosed space due to carbon monoxide.
    • Do not use a humidifier device in a car.

Print the Emergency/Disaster Preparedness PDF