It is with excitement that we announce a new quality improvement initiative here in Rochester at our Adult CF Center! The goal of this year-long project sponsored by the National CF Foundation is to improve the care of CF patients with advanced lung disease who are in need of referral for lung transplantation. We are paired with the UPMC Lung Transplant Center in Pittsburgh, PA, to work collaboratively on improving the referral process and post-transplant care coordination of lung transplant patients.
The project kickoff was in Chicago, IL in October 2017 and work will continue until the North American Cystic Fibrosis Conference (NACFC) in October, 2018. Teams are having weekly meetings and monthly teleconferencing with all 20 CF and lung transplant centers involved in the LLC (learning/leadership collaborative) across the country. In-person meetings will also take place in Washington, D.C. in March, 2018 and Toronto, Canada in June, 2018.
We are committed to this project and to our CF community as a whole. If you have any questions or curiosities regarding this project, please contact your CF Center, or any team member!
Rochester Team Members: Steven Scofield, MD; Donna Germuga, RT; Elle Woodworth, RD; Shandell Moreno, and Lisa Brady, family member
Pittsburgh Team Members: Joseph Pilewski, MD; Matthew Morrell, MD; Shannon Whiteman, RN, and Eric Wright, CF patient
Team Coach: Ian McIntosh, Director of Healthcare, Cystic Fibrosis Canada