Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors.
Applied Behavior Analysis Integrated Care Team
The Complex Care Center has integrated an Applied Behavior Analysis team into its practice. For more information please refer to our Applied Behavior Analysis Integrated Care team program brochure
For Patients and Families
AutismUp - our mission is to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life. http://autismup.org/
Autism Speaks - provides many practical topics on important issues - financial planning, higher education, medication - to help individuals with Autism and their families. https://www.autismspeaks.org/family-services/tool-kits
Byte - As an accredited member of the BBB with thousands of 5-star reviews and a proud member of the American Teledentistry Association, we’re pushing oral care forward every single day.
Children with autism are likely to suffer many more oral health problems, including tooth decay, gum disease, and dental injury than children without autism, so we provide information about autistic kids and how sensory sensitivities make it difficult to maintain effective oral hygiene routine, and also, children with autism may have difficulty tolerating the sensory inputs involved in brushing and flossing, leading them to skip these necessary tasks. Children with autism are prone to suffering more dental issues than other kids, and their natural behaviors tend to make them not develop strong oral-care habits.
Here is a Guide to Dental Care for Children with Autism: https://www.byteme.com/community/resources/article/dental-care-children-with-autism-guide/
Our Resources section offers great information and tips on oral health. We also provide fact-based comparisons and medically reviewed articles, when clinical issues and information are discussed.
CARD (Center for Autism & Related Disorders) - Leading the way in successful treatment of Autism. AT CARD, we believe a child who eats well, sleeps well, and feels well is a child who will learn well. CARD works with you, your physician to create best overall treatment plan for child. https://www.centerforautism.com
CPR Certified - A Medical Guide to Autism - Supportive resources and information to assist parents in navigating the medical process of identifying childhood autism diagnosis, including an explanation of how the screening process works for determining if a child has autistic conditions, which includes special tests and social and language skills checks. www.cprcertified.com/a-medical-guide-to-autism
FACES of Autism - The goal of Faces of Autism is to help families in Livingston County who have family members with Autism Spectrum Disorders. Our desire is to determine the needs of these families and work hard to help those needs be met. firstname.lastname@example.org
The Family Autism Connection - A grassroots non-profit organization created by a collaboration of educators and parents. Our mission is to provide traditional family experiences for families in Monroe County, NY dealing with Autism Spectrum Disorder and other developmental delays. www.familyautismconnection.com
Scerts - The SCERTS® Model is a research-based educational approach and multidisciplinary framework that directly addresses the core challenges faced by children and persons with ASD and related disabilities, and their families. SCERTS® focuses on building competence in Social Communication, Emotional Regulation and Transactional Support as the highest priorities that must be addressed in any program, and is applicable for individuals with a wide range of abilities and ages across home, school and community settings. www.scerts.com
Autisitc Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit organization run by and for autistic people. ASAN was created to serve as a national grassroots disability rights organization for the autistic community run by and for autistic Americans, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power. Our staff work to educate communities, support self-advocacy in all its forms, and improve public perceptions of autism. For more information, visit: http://autisticadvocacy.org/about-asan/
The Autism Council of Rochester seeks to educate the community at large, bringing a greater awareness of Autism. In addition to offering direct services and support to individuals on the Autism Spectrum, The Autism Council is a NYS Department of Education Approved Autism awareness training provider for teachers, education administrators, community groups, law enforcement, first responders and the medical community. Call 585-413-1681 or visit: https://www.theautismcouncil.org/
Contact Stacey Smith: StaceyL_Smith@urmc.rochester.edu or call (585) 276-7932 to add your services to this list, make changes or suggestions.