Patient Support and Advocacy Groups

Patient Support and Advocacy Groups:

• Leukodystrophy Care Network ;  https://www.huntershope.org/family-care/leukodystrophy-care-network/
• ALD Connect;  http://aldconnect.org/
• Bethanys Hope Foundation;  http://bethanyshope.org/
• Global Leukodystrophy Initiative ;  http://theglia.org/
• Hunter’s Hope Foundation;  https://www.huntershope.org/
• MDL Foundation;   http://mldfoundation.org/
• The Myelin Project;  https://www.myelin.org/
• The Stop ALD Foundation;  http://www.stopald.org/
• United Leukodystrophy Foundation (ULF);  https://ulf.org/
• World Leukodystrophy Alliance;  http://leukodystrophyalliance.org/